Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,007 members • 52,267 posts

All posts for September 2021

Endo nerve pain - suggestions welcome

Hello Has anyone been prescribed a painkiller or anything else that's helped with endo nerve pain? I take Etoricoxib for pain and that works pretty well but...

Hello Has anyone been prescribed a painkiller or anything else that's helped wi...

TennisAM

•3 years ago

10 Replies

Seeking comfort

Brand newly diagnosed, scheduled for a surgery to remove a big fat endometrioma and a few small ones…lots of scary side effects and complications! Anyone got...

Brand newly diagnosed, scheduled for a surgery to remove a big fat endometrioma ...

Nnekar

•3 years ago

5 Replies

Prostap 3 and FET

Hello. Any ladies out there had the Prostap 3 for 12 weeks before your FET. After the check scan did you have to wait for your period to try again or were you...

Hello. Any ladies out there had the Prostap 3 for 12 weeks before your FET. Aft...

Hallj10

•3 years ago

8 Replies

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Heavy bleeding on pill

Does anyone have any experience of heavy menstrual bleeding whilst on birth control pills? I’ve been having heavy periods last 3 cycles. I put the first one...

Does anyone have any experience of heavy menstrual bleeding whilst on birth cont...

Clara12

•3 years ago

9 Replies

Support Group

Hi Does anyone know how to find out about local support groups for endometriosis? I’ve checked the endometriosis website and there are none running near me and...

Hi Does anyone know how to find out about local support groups for endometriosis...

Vw28

•3 years ago

2 Replies

What was your lap after care instructions?

Hi all, Hope you're well. Just had my second lap, had excision this time. The hospital I went to is connected to a private hospital, and nhs arranged for my...

Hi all, Hope you're well. Just had my second lap, had excision this time. The ...

Peachii

•3 years ago

5 Replies

investigations

hi im new to the group im due to get hysterscropy on sunday the 12th i have severe lower back pain for the last 6 weeks im postmenopausal to anyone have this...

hi im new to the group im due to get hysterscropy on sunday the 12th i have seve...

mano1970

•3 years ago

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Now what? they've found a cyst on a basic ultrasound but is that it now?

I got referred for an ultrasound due to listing some symptoms of Endo, the one that got them listening was painful sex etc so they sent me for USS, I was...

I got referred for an ultrasound due to listing some symptoms of Endo, the one t...

betty31

•3 years ago

14 Replies

Adenomyosis

I know endometriosis is not given the attention is deserves but does anyone find this is even more so the case with adenomyosis? I struggle to find much info...

I know endometriosis is not given the attention is deserves but does anyone find...

gettingusedtoendo

•3 years ago

33 Replies

Just awful

It's honestly so distressing that things never seem to improve. I am always managing pain and symptoms, I feel old before my time. I feel like this has been...

It's honestly so distressing that things never seem to improve. I am always man...

LauRAa-1

•3 years ago

2 Replies

Endo Hell… refused by hospital and can’t get in GP.

Hello, Currently lying here in pain whilst I try to convince A&E to see me who then do the usual and stick me up with a fridge full of opioids and tell me to...

Hello, Currently lying here in pain whilst I try to convince A&E to see me who ...

LucozadeOrange

•3 years ago

7 Replies

Endometriosis

Watery light blood discharge at night while sleeping

Malinee

•3 years ago

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Endometriosis

Hello . Am an endometriosis patient since my last period is over just after tht a started to bleeding spotting throughout the whole month till next period. Am...

Hello . Am an endometriosis patient since my last period is over just after tht ...

Malinee

•3 years ago

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Increased peeing on decapeptyl?

Hey all Just wondering if anyone else has experienced increased peeing on decapeptyl injection? As soon as I drink anything I have to go to the toilet...

Hey all Just wondering if anyone else has experienced increased peeing on decap...

Endofaye

•3 years ago

3 Replies

I’m new to this I just been diagnosed with endometriosis not been for my lap as I’m on a waiting list given pain relief that it 😢

Endometriosis new to this no support at all

Chloe-87

•3 years ago

16 Replies

Worst experience at the hospital with my endometriosis

So I went into hospital yesterday with severe pain that my 5mg of morphine couldn’t help I’m 17 btw and I have suspected endometriosis which is what was...

So I went into hospital yesterday with severe pain that my 5mg of morphine could...

Daisy2212

•3 years ago

12 Replies

Vagus nerve damage following hysterectomy.

Hi , just wondered if anyone has had similar experience? I had hysterectomy 20 years ago! When I had operation I had an abdomen full of violin string...

Hi , just wondered if anyone has had similar experience? I had hysterectomy 20 ...

Mrsmr

•3 years ago

4 Replies

Speaker for an endometriosis talk - suggestions please

Hello A friend is looking for a speaker (who has endo) who is willing to speak of their own experiences in a event about invisible illnesses. I couldn't think...

Hello A friend is looking for a speaker (who has endo) who is willing to speak ...

TennisAM

•3 years ago

9 Replies

Hysterectomy

Hi! I was diagnosed with adenomyosis following a lap for endo excision on Wednesday. I already have the coil and, clearly, it's not helped the adeno so my...

Hi! I was diagnosed with adenomyosis following a lap for endo excision on Wedne...

EndoSuckss

•3 years ago

21 Replies

Norethisterone

Hi all hope everyone is well! Just needed a bit of advice about using norethisterone long-term. I have been using it pretty much for the last 4 years as I...

Hi all hope everyone is well! Just needed a bit of advice about using norethist...

SK2021

•3 years ago

22 Replies

Endometriosis and fevers

Hi all, new to the group, in the middle of trying to get a formal diagnosis but my lovely GP is already treating my symptoms and calling them endometriosis....

Hi all, new to the group, in the middle of trying to get a formal diagnosis but ...

AnonyMousey99

•3 years ago

3 Replies

Prostap and blood pressure

Hi Everyone Just looking for some advice. I have just had my third prostap, things going well except joint pain, so asked for the Tibolone and started taking...

Hi Everyone Just looking for some advice. I have just had my third prostap, thin...

Fortyoneandcounting

•3 years ago

8 Replies

Zoladex side effects...lump behind knee, do you get something like that?

Hello ladies, Hope you're having a lovely Sunday. So I've grown a lump behind my knee, I didn't injure myself or anything. I have read the side effects of...

Hello ladies, Hope you're having a lovely Sunday. So I've grown a lump behind m...

happyseal

•3 years ago

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Advice needed please 😔

Hi ladies, l posted a few weeks ago to say l was late for my period. After numerous pregnancy tests that all said negative l went for a scan. The scan revealed...

Hi ladies, l posted a few weeks ago to say l was late for my period. After numer...

ShiningStar123

•3 years ago

14 Replies

Weight and surgery 😬

Hi all 👋 hope everyone is ok, so I'm waiting for surgery and I've just received a letter to fill in an online form before surgery, this is fine but I'm...

Hi all 👋 hope everyone is ok, so I'm waiting for surgery and I've just received...

Pureunicorn

•3 years ago

4 Replies

Pro strap advice???

Hello….. well I finally met my consultant yesterday which was nice, she was female and the endometriosis specialist for my hospital. I had already had ultra...

Hello….. well I finally met my consultant yesterday which was nice, she was fema...

Jellybean20

•3 years ago

9 Replies

Confused

Hi, Had an internal scan on Thursday and she said I can see your about to ovulate and literally showed me the screen but then I come on on Friday? 😩 I’m so...

Hi, Had an internal scan on Thursday and she said I can see your about to ovula...

Xroisinellenx

•3 years ago

1 Reply

Advice and experience of private endo consultation

Hi all, I’m looking for some advice please. Could anyone share with me their experience of going through a private clinic for potential endo diagnosis please?...

Hi all, I’m looking for some advice please. Could anyone share with me their ex...

Bea0503

•3 years ago

12 Replies

Switching from Tibolone to standard HRT

I’ve actually posted this in the Menopause Community but realised you guys seem to mention Tibolone more. I was on Prostap injections with Tibolone as some...

I’ve actually posted this in the Menopause Community but realised you guys seem ...

Florrie2

•3 years ago

9 Replies

Any advise please!

Hi all, At the beginning of July I had surgery to hopefully remove what they thought was endo but turned out I have adenomyosis and no endo so hysterectomy is...

Hi all, At the beginning of July I had surgery to hopefully remove what they th...

Adeno2020

•3 years ago

5 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for September 2021

Endo nerve pain - suggestions welcome

Seeking comfort

Prostap 3 and FET

Heavy bleeding on pill

Support Group

What was your lap after care instructions?

investigations

Now what? they've found a cyst on a basic ultrasound but is that it now?

Adenomyosis

Just awful

Endo Hell… refused by hospital and can’t get in GP.

Endometriosis

Endometriosis

Increased peeing on decapeptyl?

I’m new to this I just been diagnosed with endometriosis not been for my lap as I’m on a waiting list given pain relief that it 😢

Worst experience at the hospital with my endometriosis

Vagus nerve damage following hysterectomy.

Speaker for an endometriosis talk - suggestions please

Hysterectomy

Norethisterone

Endometriosis and fevers

Prostap and blood pressure

Zoladex side effects...lump behind knee, do you get something like that?

Advice needed please 😔

Weight and surgery 😬

Pro strap advice???

Confused

Advice and experience of private endo consultation

Switching from Tibolone to standard HRT

Any advise please!

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