It's honestly so distressing that things never seem to improve.
I am always managing pain and symptoms, I feel old before my time. I feel like this has been my life.
I against all prior medical advice even attempted the mini pill recently, this just made me massively ill, people were asking me to stop taking it, but I kept saying itll need to settle I need to give it a chance, then even the doctor said just stop that isnt ever going to work for you. Which then rules out any other hormonal contraception, which tbf are a massive risk to my health anyway because of other health risks, but at this point I felt like I'm sitting on a fence and theres crocodiles one side , lions the other and I had to prioritise one side of my health and try something, it didnt pay off, I feel awful, now for multiple reasons.
I'm actually pretty decent at being "ok" the majority of the time, but the fact that I barely sleep and I have to position myself specifically to try and aid pain relief at all times, the fact that I cant just feel "ok" EVER is really getting to me.
I actually dont see that I ever will and that's a pretty daunting thought isnt it. It's not who I feel I am. I'm a busy person, always active, so why is my body blocking me from being me.
Anyway I'm ranting on here cos I dont want to rant in the real world, then people would think I'm a miserable mare and that's not helping anyone, best to do it in a faceless place, where it can be forgotten.