Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

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For those with pectus carinatum (I think that’s what it’s called)

Hello, does anyone have the protruding bump on your chest? If so, have you gotte...

Possible EDS or hyper Mobility

Hi 34 F diagnosed with ME/CFS, fibro, pernicious aneamia, migraines, ibs, orthos...

HEDS & sore throat?

Hi, anyone with a sore throat here? I’ve had a plethora of symptoms, but one I a...
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Postural/low pressure headache (CSF Leak)

Hi everyone, Has anyone experienced a CSF leak low pressure headache? Apparentl...

Fatty Liver Disease

I was diagnosed two years ago with Ehlers Danlos, and just learned I have NALD—I...

Wrists constantly dislocating

Hi there! Hope you are all well. I’m having serious issues with my wrists recent...

Advice on accessing NHS help after private diagnosis

Hi, I have just received my diagnosis of Hypermobile EDS with Marfanoid phenotyp...

Doctors

Hi Im a newbie from Wales who has had to explain to every doctor Iv met with in ...

Suspected Ed’s gastro problems

So I have been to the gps numerous times now I do think it’s possible that I ha...

Flecainide

I have started taking 2 x 50mg flecainide after being on bisoprolol for a year. ...

New diagnosis for 18 year old

Hello, my 18 yr old daughter has been diagnosed with Hypermobility Syndrome and ...

4 year old with constipation

My daughter is 4 years old and has always had huge GI issues. She can eat a hand...

Any mums in wheelchair or crutches had a c section???

Looking for others experiences, that have to use crutches and wheelchair perman...

Pulsating artery

I keep noting a pulsating artery in my hand, it’s very worrisome. What do y’all ...

HEDS

Hello all warriors 🦓🦓🦓, I’m michelle, hoping to make some friends on here who...

Eds and pregnancy

I was just wondering if anyone can share their stories on getting pregnant and h...

Snap crackle and pop

Hey guys and gals, I’m sure we’re all aware of the daily clicks n grinding our ...

Newbie signed!

Hi everyone! Ive just found this wonderful site & wanted to introduce myself & s...

Rectus Sheath pain

Hi everyone - anyone having rectus sheath pain ? Any advice on how to manage wou...

Find the ONE

I just need to know how to find a specialist in my area who can help with a diag...

Just joined

Hello All, Good to have found this and I identify with lots that have been writt...

Runs in the family

My mother who is no longer with us , 2 of my children and i almost certainly are...

Toe Nightmare

Hello all. I’ve been having constant toe cramping, twitching, and spasms for the...

New to HSD

Hi all This is likely to be a long post so I apologise in advance! I’ve been st...

How can I get help from EDS professionals, or anyone? The care in my area is appalling even for children.

I need help but no medical professional is really helping me. I have h-EDS and a...

Alternative to Lidocaine Patch?

Hi all, Wondering if anyone knows the name of or has any experience with any pa...

Never been unemployed

I have been self employed for most of my life. Always driven by myself. Finding ...

I’m a newbie and looking for a bit of advice x

Hiya guys I’m 19 and have been through the mil a bit with my health since starti...

Snap, pop, pain... what is this? Is this how it starts? Or is it something else entirely?

Hi I am currently living with chronic joint pain in my shoulders, lower back a...

Cambridge University survey for MCAS

Hi all, A group of Cambridge University students is doing a survey on MCAS. They...
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