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Ehlers-Danlos Support UK
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Struggling to cope

It is likely that I have had fibromyalgia and elhers danlos syndrome since 12 ye...

Hypermobile EDS??

Does anyone here have hyper mobile EDS and sleep with eyes partially open, have ...

Surgery

Had surgery on my foot I had a the same surgery on my left foot painful been on ...

First timer

Hi, First time I've done a post of my own but I've been tempted plenty of times ...

Referral from rheumatologist for suspected ehlers danlos syndrome. With lupus like symptoms. Advice please.

I have been back to my rheumatologist due to lupus like symptoms. An endocrinolo...

My wife has eds type3 but it's wrecked both our lives

This evil horrible disease has finally played it's part on our marriage, in the ...

Afraid of vEDs

Hi all, I’m looking for some insight or opinion from those who have been through...

Wife has hms +eds type 2 when was the last time you both spent time as a husband and wife like walking hand in hand down street??

Hi I'm 42 and my wife is also 42 and she has this horrible condition, Last year ...

Tethered cord

Tethered cord symptoms? I have heds and doctors think I have a tethered cord ha...

EDS lower back pain/ muscle twitching

Hi. Does anyone have muscle twitching with small fiber neuropathy? Also, does an...

Looking Helpful for helpful information on best treatment for Ehlers danlod

Hi I'm new here. What does everybody find helpful with there Ehlers danlos. Ect ...

Designing an aid for hypermobility

Hello, my name is Lauren and I’m a student from Imperial College London. My grou...

Mattress advice

Anyone got any advise on the right bed mattress to use. Sleep an issue and my m...

Working how do you cope and not working thoughts please?

I'd like to know how you handle day to day life at work if you can hold down a j...

New medication

Hi all hope we are all coping! I’ve recently been out on some patches called mat...

I hate this invisible syndrome

I'm newly diagnosed trying to get my head around all this and I'm still convince...

Personal independence payment

Hello, hope everyone’s well, have been thinking about applying for Personal inde...

Digestive Relief. Fasting, Extra Chewing or Small Portion Eating?

Hello there, It has come to my attention that either opting to 'fast' for period...

My main issue is balance and the feeling like the lower half of my legs are wooden.

So newby as I've said in other posts waiting for my treatment which I'm told is ...

Bath pain clinic inpatient, please help

Hi guys , I got rejected from St Thomas as I’m not independent enough for their ...

Discovery of HMS - Relief or Frustration?

I've been struggling with pain my whole life. I remember being around the age o...

About my son...

Hello, I wonder whether anyone could tell me whether it sounds as though my 9 1/...

Applying for pip

I have JHS/hEDS and I applied for pip last October. I finally have a f2f assessm...

Trying to get back to work but it's hard

Well I'm a newby in this hypo-ehlers lark. Trying to get back to work but it's a...

scapular syskinesis

Hey everyone. I have been diagnosed with scapular dyskinesis. Ive been through 2...

Craniocervical Instability Symptoms

Hi all Does anyone suffer from craniocervical instability? I have some of the sy...

Newby at this and trying to deal with my job

Hi, I've just recently been diagnosed on the 2 January this year so I'm still ge...

Any advice will be welcomed

My adult son has hEDS & POTS recently diagnosed, we applied for a bus pass and w...

What could be wrong with me?

About five months ago, I developed a mild itch in my urethra as I finish urinati...

EDS and eating problems?

Hi, does anyone else have stomach problems relating to hEDS? I’ve been constantl...
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