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Ehlers-Danlos Support UK
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More than just benign hypermobility syndrome??

March this year I was diagnosed with benign hyper mobility syndrome, I scored 7/...

Sleep apnoea??

Hi Along with most of us with hEDS and associated Fibromyalgia I get bouts of d...

Lethargy

I have depression and Ehlers-Danlos syndrome, classical. I read something early ...

Blue Sclera

Hello everybody. I recently joined the Health Unlocked community to try and get ...

Lungs and hypermobility

Just wondering if anyone with JHS has ever had episodes of haemoptysis?

The pain

Hi All, I was wondering if anyone had tips about dealing with pain caused by hy...

Hypermobility spectrum disorder and POTS. Has anyone had CBT? Was it helpful?

I'm 39 and recently had a diagnosis after 25 years of symptoms. I'm struggling w...

No Quality of Life. No Hope left.

I'm so miserable I don't know where to start! I posted on here for first time in...

What do i do next? EDS or just me being a hypercondriact?

Have been to physio today i scored 5/9 on the beighton score and said i am hyper...

My spine sticks out and pains and it started at sixth standard.

My lower spine sticks out and pains when I lie flat on my back and I have heds. ...

Suspected eds

Well i never thought id be posting here but i wondered if someone could help me ...

Don’t give up

After three and a half long years I’ve finally got somewhere! I had my ESA asse...

Best place to buy CBD vape in the UK

Please can people give me suggestions for where to get it in the UK high strengt...

HSD and PoTS question.

My 16 year old daughter has recently been diagnosed with HSD. She also has sympt...

Trying to figure it out

Hi Everyone, I'm Hannah, I'm undergoing investigation to find out what's going o...

I'm stuck on a 'wait and see'

Background.... Started having various joint pain issues and a wonky coccyxx over...

Just been told i am hyper-mobile. hEDS? This might explain my chronic fatigue / post exercise malaise and more!

Hi EDS forum! For most of my adult life if have suffered with poor sleep, chroni...

Getting A Diagnosis Of EDS Through The NHS

I did not know about EDS until last year when a consultant Gynaecologist told me...

How to get a diagnosis?

Hi I explain a little, im 45 , have had body issues all my life, dislocations, j...

Diagnosis at last...…...or is it?

Hi everyone I'm dad to a once bubbly, challenging, into everything daughter who ...

This is all new to me.

Hello Everyone. I have suffered from various health problems that the medical pr...

Bad Experience At. Genetic Medicine Clinic

Well I put a post on here a while back after a bad experience at Genetic Medicin...

The caretaker,martre problem

Hi all recently me and my wife split up and going through a divorce 21 years mar...

Diagnosis and support

Hello I am diagnosed with Behcet’s Syndrome and ‘primary hyper mobility syndrom...

Hello everyone

Hi everyone, I was wondering how you were all diagnosed I just want a bit more ...

Diagnosed with Joint Hypermobility Syndrome but I’m not sure.

Hi everyone. I’m looking for your thoughts. I have been suffering from considera...

Feel like being ignored by Rheumatologist and GP not sure what to do next?

Hi guys, I posted here a while back because I had suspected EDS (probably Type 3...

Family with vascular EDS but I have hypermobility...

Hello So on my mother's side there is Vascular type EDS unfortunately. My broth...

The puzzle of EDS

My son (26) was diagnosed with hEDS & POTS this year after 16 years of pain and ...

A little worried...could I have vEDS?

Hello, I'm Lisa, 29 years old and here goes my story... Back in 2017 I went to m...
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