Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK
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Hi. New here. Am I barking up the right tree?

Not diagnosed yet but have joined the dots and hopefully have it right. I have ...

I'm New - Boyfriend has EDS

Hello all! I do not know much about EDS other than what I've read online or wha...

Am I odd or do I really show symptoms of Elhers-Danlos?

Hi I haven’t been diagnosed, but a few years ago a hospital nurse suggested I lo...

Anyone else feel really sad when accepting their limits?

Hey guys, So in July I diagnosed with POTS and in August I got formally diagnos...

Can someone please point me to an hEDS specialist

Hi, first time I have tried something like this I have been diagnosed with hEDS ...

Autoantibodies tests

Does anyone know if German laboratory Cell Trend is reputable? We would like to ...

Dr Hakim or Dr Aziz

Our daughter has been diagnosed with hEDS and Behçet’s disease. We are from New ...

Immunoglobulin therapy

Has anyone tried immunoglobulin therapy for dysautonomias?

Left arm pain and burning sensation

I have hypermobility spectrum disorder and Posts. I have always had problems wit...

Spine instability and surgerys

I need 2 spine surgerys due to my EDS I have severe instability and a tethered ...

Raising EDS awareness in the UK

Inquiry into treatment of Ehlers Danlos patients and its comorbidities Ehlers-Da...

Headaches and dry nose

I have lots of debilitating symptoms but there is something really troubling me ...

LPR - or silent reflux

Does anyone else suffer with LPR. I wonder if it’s an EDS thing as everything el...

Hypermobility confusion

5 years ago I was told that I had hypermobility which was why I had so much pain...

Extreme Muscle Fatigue with EDS

Hi everyone. I’ve gotten to the point that any type of activity or walking or co...

Symptoms suggesting EDS

Hi I’m 24 years old and have a number of symptoms suggesting I have EDS but was ...

Pain in the Neck!?!?

Hi! I've never been diagnosed with craniocervical instability (CCI) but I do thi...

Stomach problems, possibly slow transit?

I have recently been diagnosed by my rheumatologist with HEDS . I have quite a f...

Osteoporosis help

My mum is 55 and has recently been diagnosed with osteoporosis in her spine and ...

Chronic dislocation of atlanto-axial joint

Thoughts please. I have a diagnosis of joint hypermobility syndrome along with ...

Leg tremors

I've been getting a lot of leg pain while on holiday due to walking more than us...

ACNES

Does anyone here have experience with Anterior Cutaneous Nerve Entrapment Syndro...

Tennis Elbow surgery

Hi I've been struggling with tennis elbow for years with no improvement. I also...

Private Referral

Hi guys, So about a month ago my GP agreed with me that I needed to see a rheum...

Pelvis instability and advice?

Hey guys. So i am in middle of being diagnosed, basically three physio, osteo an...

Joint Hypermobility Confusion

Hello! So I'll start off saying that I don't have EDS (at least not that I kno...

hEDS and MCAS

Hi, I’ve recently got my hEDS diagnosis ( also got Fibro, migraines and PoTs) an...

Rosehip?

Does anyone use “rosehip” supplements ive been told there good for joints, infla...

Problems with ankles and feet

Hey guys, Have posted on here before a few times so I'm not a super newbie. So ...

Toe correction

Hi Everone Got Hypermobility everywhere . Was thinking about having my clawtoes ...
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