On the fence about vEDS
Guesswhosjack6 days ago
Just looking for some thoughts from anyone who’s gone through or decided not to go through with testing for vEDS! My mother’s side have a hi...
Nknsutton9 days ago
Just wondering if anyone has recommendations of where to get oval 8 ring splints? I found a place called zebra splints which is ...
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Suspected Hypermobility syndrome
jan449 days ago
Good morning all
This is the first time I have posted on this site. Today in the post I received the letter from the rheumatologist headed ‘s...
7 Replies1 Like
Cardiac discharge and rheumatology discharge despite both agreeing hypermobile
Neek110 days ago
So, I think I can definitely say I have come to a dead end when it comes to my health issues. Here's some background:
Since I was 15 I began...
Diagnosis override and lack of awareness in NHS of EDS
angie61010 days ago
I was diagnosed with hypermobility syndrome in 2014. I had an op on my knee in 2007. Broke my leg in 2010. Physio only look at my knee. ...
6 Replies1 Like
Re, searching for answers
Ibs1712 days ago
Hi I am a member of another group on here, but I am wondering if I have aEDS. I saw a woman on the nhs quizzes who had something like this ...
Advice for a Hypermobility sufferer
HanSharland14 days ago
It’s my first ever post on here, and believe it or not my first ever post in a forum seeking advice.
I have had Hypermobility Syndrome my ...
10 Replies2 Likes
Hypermobility or more?
PixiePie9715 days ago
Hey, just to give a round up I'm 21 and I've suffered from joint and muscle pain, stiffness and locking etc pretty much since I can remember...
Autonomic dysfunction and travel insurance
bendywelshiea month ago
Following on from my previous post before I embark in asking for a referral from my GP next week can I ask those with an official diagnosi...
CSF LEAK WITH HYPERMOBILTY??
Justanothermamaa month ago
My daughter has ED—HT. After taking a hard fall (on her face/head) from her horse, she’s developed a metallic tasting drip down the back of ...
Update on No Access to a GP
CarerHMJa month ago
I have an update. I posted many weeks ago that as a carer for my son who has EDS, he has been left with no medical care. I wa...
6 Replies3 Likes
FlissFlossa month ago
Getting ready to go out, body goes into the usual mode of heart racing and hot sweats ending in me having to lay down and rest before finish...
1 Reply1 Like
Not wanting to feel socially isolated
Haych3a month ago
Hi I'm haych
I just want to get a greater understanding of how to deal with EDS & hypermobility , as I'm struggling to cope with the pain me...
9 Replies1 Like
Jivesmuma month ago
After 5 years of visiting the doctors one finally examined my joints and declared I have Joint Hypermobility Syndrome, Hypermobility in ever...
3 Replies2 Likes
Watsu water massage.
happytulipa month ago
Does anyone have any experience of this? I have SLE, EDS and chronic pain. I have been advised to avoid yoga at all costs but have been offe...
Anyone else get extreme back pain??
Lynxx2 months ago
I am new here, was told i have hyper mobility syndrome a few months ago. Its taken years to get a real diagnois of anything. First they thou...
Anyone else with other painful conditions?
lily822 months ago
I was diagnosed with EDS Hypermobility a few years ago. I have a partial subluxation in my neck, lordosis and generally wobbly joints.
4 Replies1 Like
Help to find a nottingham rheumatologist with EDS interest
Daniellak2 months ago
Hi there ,Im 24 and have been looking for a EDS specialist rheumatologist in Nottingham so that the type of my EDS can be fully determined ....
Hello, new and advice needed pls!
Beckybexx2 months ago
Hi everyone, I’m new to this forum. I’ve been having all sorts of widespread pain problems and getting nowhere with GP, they have me pegged ...
Child with HEDS
bex682 months ago
My 13 year old daughter has EDS, very hypermobile, suffers from headaches, aches and pains, partial joint dislocations, food allergies, low ...
bendywelshie2 months ago
I have hEDS and I had a Gastroscopy 2 days ago. They took biopsies and since the procedure I haven’t been able to eat or drink anything with...
Is it EDS?
grasshopper20002 months ago
My 11 year old daughter has an autoimmune bleeding disorder, ASD, dyslexia and visual stress. She has also been suffering from various joint...
Hypermobile pelvis caused Scheuermanns kyphosis and lordosis!
Annalouk2 months ago
Has anyone experienced this? I only have a few mild hypermobile joints. Have suffered back pain and loads of other symptoms fo...
3 Replies1 Like
Samc712 months ago
Hi newbie here!
My 15 yr old daughter was diagnosed with hEDS earlier this year....still finding our way in these uncertain times and hoping ...
I can’t walk I’m in agony! Please help?
rosserk2 months ago
I did a bit more walking over the bank holiday than I’m used too and now I can’t walk! I literally can’t put any weight on my left foot i...
19 Replies1 Like
justiio2 months agoPOPULAR
After a long series of various doctors who each had a say in what I was dealing with and a loooot of pain, i was diagnosed in February wi...
What info to take to doctors?
Kanmi2 months ago
Im arranging to go to the doctor soon with as much info about EDS as i can. Are there any documents etc that you would advise I print off to...
EDS now has lots of huge online communities, so why are drs and nurses still not spotting and understanding it?
Jay663 months ago
I am on 3 Facebook forums for EDS sufferers (I like EDS UK best), plus Inspire.com and here. I am amazed at how it has grown in the last fou...
Sciatic and Sacroiliac Pain
Ladyuponthelake3 months ago
Does anyone have any helpful hints for Sciatic Nerve and Sacroiliac pain??? I use heat which helps a great deal but isn't always easy to do,...
8 Replies2 Likes
Newly diagnosed with hypermobility
Kanmi3 months ago
Hi im new to the group and was diagnosed with hypermobility this week. I am being tested for inflammation. I get horrible pain in my hips, k...
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