Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

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Pain relief

I have eds . Fibromyalgia. Hashimotos. CFS and allergies. My pain is getting wor...

Has anyone had speech problems with brain fog?

I'm just wondering if anyone has experienced the same thing I have. I'm still go...

Support group in the US?

Hello Everyone! Is there a support group for the US? I’ve been diagnosed with hy...
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Marfanoid Phenotype

Has anyone else been diagnosed with Marfanoid Phenotype with their hEDS? X

supportive sofa / chair

i have eds 3 and have been through so many chairs and sofas. none are supportive...

Exercise tips?

Hello! Does anyone have any helpful exercise / movement tips? I have had major s...

hEDS and intimacy

I feel like this not a topic that people really talk about but I would be intere...

I think I have EDS and pots

Hello everyone I am new here but I’m pretty sure that I have a form of EDS. I am...

Diagnosis Advice/ Specialists?

Hi all. My autonomic neuro team (POTS) suggested I have hEDS and referred me to ...

Have a chat

Hi everyone I recently posted on here about a recent diagnosis of HEDS and would...

Ehlers-Danlos type 3

Hello everyone, I have recently been diagnosed with Ehlers-Danlos syndrome type ...

EDS and period pain

Hello, I have always had particularly painful/ heavy periods but it’s always bee...

Help what help?

My doctor ignores my wish to see specialist for EDS. And parkinson im now really...

How to get fit for abdominal surgery, please?

Anyone on here with Ovarian Cancer? Do you knows London physio or doctor specia...

New to this site, looking for help

I have been diagnosed with hypermobility and have OA in almost every joint, this...

Hyper mobility tips

Hi everyone I hope you’re all well I suffer from fibro and hyper mobility and a...

Anyone have red inflamed feet while standing long periods?

Hi! I have EDS Hypermobile type and for the last two years my feet have been tur...

Hands & feet.

Can anyone suggest anything to help support my hands and feet? I have pain and s...

Formal diagnosis- worth it?

Hi, I’ve just spoken to doctor and she says it sounds like my joint pain is rela...

Anyone else with EDS have severe asthma?

I’m just wondering if anyone else is in the same situation as me and has EDS and...

Choice of having children

Hi there, I’m a woman of child bearing age suffering greatly with EDS (electric...

Vaccine & EDS

Has anyone who's had the covid vaccine notice their EDS symptoms suddenly get wo...

Bad Reaction to Urommune

Hi, I've been taking Urommune for the past 7 weeks and it's been such a rollerco...

I have pots but this is new for me, has anyone experienced anything similar?

My heart rate is normally between 30 and 130 and the last few days it has been g...

Has anyone been to a residential pain management course? If so what was your experience.

No including guys and at Tomas or the private clinic, as I won't be able to go t...

Trouble with getting initial diagnosis

Well this is my first post so if I am going on I apologise! I have been diagnose...

Big artery in neck

Hi guys! I don’t want to sound silly but I have a huge artery in my neck (obviou...

For those with pectus carinatum (I think that’s what it’s called)

Hello, does anyone have the protruding bump on your chest? If so, have you gotte...

Possible EDS or hyper Mobility

Hi 34 F diagnosed with ME/CFS, fibro, pernicious aneamia, migraines, ibs, orthos...

HEDS & sore throat?

Hi, anyone with a sore throat here? I’ve had a plethora of symptoms, but one I a...
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