EDS and POTS diagnosis- How to cope with work?
Nero132 days ago
I have posted on this site a few times but not for a while.
I have been conclusively diagnosed as having hypermobility EDS after it wa...
Ferritin levels and anemia help please?
Kahlan_tf8 days ago
Hey wondering if anyone can help me out with a bit of info! As starting to feel a bit alone and crazy, I’ve had to get multiple iron infusio...
Dr Hakim Visit
Ladyuponthelake9 days ago
I've been for my visit with Dr Hakim. Absolutely lovely person.
Sadly I don't have anything to report to you. I'm being sent for num...
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Charliebear6815 days ago
Just a heads up for the BBC programme DIYSOS - they're helping a 17 year old tonight with EDS. I'
4 Replies3 Likes
Questions for Dr Hakim???
Ladyuponthelake19 days agoPOPULAR
Anyone have questions that they feel would be helpful to ask Dr Hakim? Brain seems to have gone, well just gone all together today.
Any help ...
Feel like a Hippo
Ladyuponthelake20 days ago
Hi everyone, I am still fairly new to this site. So still finding my way.
Feels like I'm blowing up like a balloon. I've been gaining wait bu...
8 Replies1 Like
Anyone have a PIP phone offer
Ladyuponthelakea month ago
Hi everyone I hope your well today!
I have been declined by PIP and have made an appeal. I spent quite a bit of time on research while writin...
16 Replies1 Like
Casualty Episode, Saturday night!
sing123sleepa month ago
The conditions of fibromyalgia, EDS, POTS, hypermobility all featured on prime time TV!! 💥
7 Replies6 Likes
Positive and speckled ANA
rosesinblooma month ago
I was wondering if anyone here has a positive ANA or speckled ANA?
I had to go to another rhmy in December, my gyno wanted to see if I...
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loss of medical care
CarerHMJa month ago
Hi Im new here - I am a carer of a 28 yro with EDS, fibromyalgia and autism and in recent months following his EDS diagnosis he's now lost a...
Does anyone else with EDS have puncta plugs for Secondary Sjögren’s? and feel like their body is just packing up
candiedatea month ago
First post on here, I have very dry eyes and very light sensitive which I put down on to my having EDS. I was referred by an optometrist...
alice2800a month ago
I have EDS type three and have always struggled with gastro problems. But recently they have gotten worse. My GP is doing a test to check fo...
Bladder prolapse and hypermobilty EDS
Iheartfashionsaginaw2 months ago
Hey everyone! I was just wondering if any of you suffer from bladder prolapse without having children as a result of EDS type 3? I was just ...
14 Replies1 Like
POTS and pilots
The_Bear2 months ago
I came across something pilots do to counteract g-forces from causing them to black out: to keep the blood from being pulled down into t...
6 Replies4 Likes
Autoimmunity and eds
Joanna362 months ago
I'm one of the very unfortunate who is collecting autoimmune diseases with my eds. I had taken steroids and started cellcept then within wee...
4 Replies1 Like
Endometriosis and Hypermobility-type?
jennt05062 months ago
Does anyone here suffer from both conditions and if so, any advice on managing?
Both conditions are chronic pain conditions, and I'm finding ...
15 Replies2 Likes
Please sign & share this petition to save the NHS
BadHare2 months ago
Patricia20152 months ago
I have an UCTD diagnosis (since 2014) and my unknown collagen disease is getting worse. I got two newly discovered symptoms: blue sclera, ...
Is it Worth Seeking Help?
Mmmmcp2 months ago
Hello I’m new here!
Recently I’ve become more aware of EDS and realised I relate to it a lot (hEDS). Ive had xrays and blood tests which didn...
EDS, Seronegative Sjogren's or something else?
Jar19733 months ago
I have been on the diagnosis treadmill for a while now and late 2017 finally met a Neurologist and an Immunologist that at least think i a...
18 Replies2 Likes
High CRP and ESR for first time ever in bloods since 2015.
Queencara783 months ago
Hi all, I had been feeling unwell for 6 days and knew I needed antibiotics but put off seeing my GP until after I had my planned appointment...
Careful13 months agoPOPULAR
Hello, I am 35 years old (36 next month) and have been having weird symptoms (mostly skin) since April of this passed year. Someone on anoth...
Seeking a Diagnosis
undiagnosedfighter3 months ago
How did you get a referral? My GP doesn’t seem to take my pain and dislocations seriously. He just says to get more exercise and go to the c...
Hi all, so the last lot of bloods my Rheumatologist ordered are considerably more extensive than before. I have had a positive ANA 1:160 up ...
Which type of Arthritis?
Hi everyone, I have joint hypermobility and have just been told by Rheumatologist I have Arthritis in my feet which is likely caused by the ...
Worried about son.
Booboo2124 months ago
Can anybody please give me some advice. I don’t know what to do for the best. My son has been diagnosed with flat feet and Hypermobile joint...
17 Replies1 Like
Hypermobility. New to this forum, new diagnosis
Hidden4 months ago
Hi everyone just a little about me I’m 27 and for the last two years I’ve suffered with extreme pain swelling and spasms in my hip and thigh...
18 Replies1 Like
Facial swelling with EDS?
Anri4 months ago
I am 28 and have EDS3, endometriosis, anemia, underactive thyroid, migranes with aura, fibromyalgia, Raynaud’s, IBS and what not... i...
New Year's Resolutions
Jay664 months ago
Happy New Year to all! I like the New Year - a time of hope and renewal, and another Christmas survived.
Christmas for me is the time of year...
Jojo914 months ago
Hi all . I have just been diagnosed with this. Basically tremors in the legs which makes me unable to stand still without feeling wobbly and...
10 Replies1 Like
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