Log in
Ehlers-Danlos Support UK
2,100 members662 posts

Sort posts by:

Suspected eds

Well i never thought id be posting here but i wondered if someone could help me ...

Don’t give up

After three and a half long years I’ve finally got somewhere! I had my ESA asse...

Best place to buy CBD vape in the UK

Please can people give me suggestions for where to get it in the UK high strengt...

HSD and PoTS question.

My 16 year old daughter has recently been diagnosed with HSD. She also has sympt...

Trying to figure it out

Hi Everyone, I'm Hannah, I'm undergoing investigation to find out what's going o...

I'm stuck on a 'wait and see'

Background.... Started having various joint pain issues and a wonky coccyxx over...

Just been told i am hyper-mobile. hEDS? This might explain my chronic fatigue / post exercise malaise and more!

Hi EDS forum! For most of my adult life if have suffered with poor sleep, chroni...

Getting A Diagnosis Of EDS Through The NHS

I did not know about EDS until last year when a consultant Gynaecologist told me...

How to get a diagnosis?

Hi I explain a little, im 45 , have had body issues all my life, dislocations, j...

Diagnosis at last...…...or is it?

Hi everyone I'm dad to a once bubbly, challenging, into everything daughter who ...

This is all new to me.

Hello Everyone. I have suffered from various health problems that the medical pr...

Bad Experience At. Genetic Medicine Clinic

Well I put a post on here a while back after a bad experience at Genetic Medicin...

The caretaker,martre problem

Hi all recently me and my wife split up and going through a divorce 21 years mar...

Diagnosis and support

Hello I am diagnosed with Behcet’s Syndrome and ‘primary hyper mobility syndrom...

Hello everyone

Hi everyone, I was wondering how you were all diagnosed I just want a bit more ...

Diagnosed with Joint Hypermobility Syndrome but I’m not sure.

Hi everyone. I’m looking for your thoughts. I have been suffering from considera...

Feel like being ignored by Rheumatologist and GP not sure what to do next?

Hi guys, I posted here a while back because I had suspected EDS (probably Type 3...

Family with vascular EDS but I have hypermobility...

Hello So on my mother's side there is Vascular type EDS unfortunately. My broth...

The puzzle of EDS

My son (26) was diagnosed with hEDS & POTS this year after 16 years of pain and ...

A little worried...could I have vEDS?

Hello, I'm Lisa, 29 years old and here goes my story... Back in 2017 I went to m...

Paralysis of colon, anal prolapse, way forward?

Hi - my daughter 26 has for many years been suffering from extreme digestive iss...

Domperidone side effects?

Has anyone else tried domperidone? Been told I have Gastroparesis and really wan...

Genetic Testing St Mary's Hospital Nightmare

Today I had my assessment at genetic testing at St Marys Hospital Manchester. I ...

Gastroparesis treatment (drugs or natural?)

Been suffering with stomach problems for months, posted a little while ago when ...

Where to get help on diagnosing EDs.

Hi, Where can I go to get genetic testing done for Ehlers Danlos. I live in East...

Pelvic Floor Exercises

So just needed some help and advice, my blood pressure doctor (for my hypotensio...

Stretchy eye and face skin... HELP

My eds is making my facial skin more elastic as I age.. My upper eyelids are sta...

I am 28 Year old male and I have EDS (Ehlers-Danlos syndrome) Everyone tells me that I have a soft body like a female. Is it related to EDS?

Hi Everyone. Last year I found out that I have EDS. I had hypermobility since I ...

Genetic Medicine Referral

Hello All. I recently had an appointment at a gynaecologist who told me it is n...

Struggling to cope

It is likely that I have had fibromyalgia and elhers danlos syndrome since 12 ye...
Write a post or ask a question

Search posts

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.