rosesinbloom24 days ago
So, I have EDS-hypermobility type.
I've had a good summer, pain wise, but it's caught up to me and my arms and legs and back are just...
Anne2018a month ago
On deciding that my son will be visiting a private EDS Specialist my son contacted our GP for a referral to the specialist. GP gave his appr...
Aisha49a month ago
Hey just joined this page, I’m 24 years old and have EDS type 3.
My condition is getting worse day by day and really effecting my life I’m i...
6 Replies2 Likes
How many times do I have get beat up
Country4evaa month ago
I went to ER Saturday. I have a rash on my legs , arms and back that feels like cigarette burns and my ribs were burning. I was so stressed ...
Autonomic unit UCHL
bendywelshiea month ago
I had an outpatient appt yesterday at UCHL for my autonomic symptoms
I have just o go in for tests ( long waiting list apparently )
Gel Treatment and suggestions on pain relief
HanSharland2 months ago
Has anyone tried Phropain Gel Maximum Strength? I’ve tried numerous drugs, the most recent was amitriptyline and it wasn’t giving me any pai...
6 Replies1 Like
Fractures low trauma?
rosserk2 months agoPOPULAR
Please excuse the length of this post but I’m desperately seeking answers.
Back in 2015 I was trying on a pair of trousers and my left ankle ...
30 Replies1 Like
Anne20182 months ago
I’m seriously thinking about taking my son to a hypermobility EDS specialist who can diagnose him, will he still have to be referred by his ...
Vascular EDS and Angina Bullosa Haemorrhagica
Saassii2 months ago
I have recently read that there is a connection between Angina bullosa haemorrhagica and vascular EDS. All I know so far is that I've been g...
10 Replies1 Like
Hi, I have just joined
Hi everyone, my youngest son was diagnosed with Hypermobility 3 years ago, alongside Generalised anxiety, he’d had many problems for quite ...
bendywelshie2 months ago
Has anyone been referred to neurology for autonomic dysfunction?
I have to make an appointment tomorrow at local hospital for a telephone ...
Advice? Diagnosis? Surrey services?
happyraindrop283 months ago
Hi, I'm new here. I have been referred to a rheamatologist (sorry about the spelling!) by my GP for meeting critera for POTS, EDS and possib...
Help where should I turn.
Siddy663 months ago
Hi well where do I start. Something has just clicked and I think myself ny daughyer and son and even my husband has some form of this disord...
Left side chest pain
Newbie13 months ago
For the second time in the last week 1.5 years I’ve had an ambulance called for stabbing left side chest pains for about 10-15 mins. H...
On the fence about vEDS
Guesswhosjack3 months ago
Just looking for some thoughts from anyone who’s gone through or decided not to go through with testing for vEDS! My mother’s side have a hi...
Nknsutton3 months ago
Just wondering if anyone has recommendations of where to get oval 8 ring splints? I found a place called zebra splints which is ...
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Suspected Hypermobility syndrome
jan443 months ago
Good morning all
This is the first time I have posted on this site. Today in the post I received the letter from the rheumatologist headed ‘s...
7 Replies1 Like
Cardiac discharge and rheumatology discharge despite both agreeing hypermobile
Neek13 months ago
So, I think I can definitely say I have come to a dead end when it comes to my health issues. Here's some background:
Since I was 15 I began...
Diagnosis override and lack of awareness in NHS of EDS
angie6103 months ago
I was diagnosed with hypermobility syndrome in 2014. I had an op on my knee in 2007. Broke my leg in 2010. Physio only look at my knee. ...
Re, searching for answers
Ibs173 months ago
Hi I am a member of another group on here, but I am wondering if I have aEDS. I saw a woman on the nhs quizzes who had something like this ...
Advice for a Hypermobility sufferer
HanSharland3 months ago
It’s my first ever post on here, and believe it or not my first ever post in a forum seeking advice.
I have had Hypermobility Syndrome my ...
10 Replies3 Likes
Hypermobility or more?
PixiePie973 months ago
Hey, just to give a round up I'm 21 and I've suffered from joint and muscle pain, stiffness and locking etc pretty much since I can remember...
Autonomic dysfunction and travel insurance
bendywelshie4 months ago
Following on from my previous post before I embark in asking for a referral from my GP next week can I ask those with an official diagnosi...
CSF LEAK WITH HYPERMOBILTY??
Justanothermama4 months ago
My daughter has ED—HT. After taking a hard fall (on her face/head) from her horse, she’s developed a metallic tasting drip down the back of ...
Update on No Access to a GP
CarerHMJ4 months ago
I have an update. I posted many weeks ago that as a carer for my son who has EDS, he has been left with no medical care. I wa...
6 Replies3 Likes
FlissFloss4 months ago
Getting ready to go out, body goes into the usual mode of heart racing and hot sweats ending in me having to lay down and rest before finish...
1 Reply1 Like
Not wanting to feel socially isolated
Haych34 months ago
Hi I'm haych
I just want to get a greater understanding of how to deal with EDS & hypermobility , as I'm struggling to cope with the pain me...
9 Replies1 Like
Jivesmum4 months ago
After 5 years of visiting the doctors one finally examined my joints and declared I have Joint Hypermobility Syndrome, Hypermobility in ever...
3 Replies2 Likes
Watsu water massage.
happytulip4 months ago
Does anyone have any experience of this? I have SLE, EDS and chronic pain. I have been advised to avoid yoga at all costs but have been offe...
Anyone else get extreme back pain??
Lynxx4 months ago
I am new here, was told i have hyper mobility syndrome a few months ago. Its taken years to get a real diagnois of anything. First they thou...
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