Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,999 members•940 posts

All posts for October 2019

Anyone else feel really sad when accepting their limits?

Hey guys, So in July I diagnosed with POTS and in August I got formally diagnosed with hEDS after years of being ignored by a lovely geneticist. This has been...

Hey guys, So in July I diagnosed with POTS and in August I got formally diagnos...

emilyhedgehog

•5 years ago

6 Replies

Can someone please point me to an hEDS specialist

Hi, first time I have tried something like this I have been diagnosed with hEDS for the past 7 years (13), I am 20 now and the orthopaedic doctor told me it...

Hi, first time I have tried something like this I have been diagnosed with hEDS ...

Tired_glitter

•5 years ago

8 Replies

Autoantibodies tests

Does anyone know if German laboratory Cell Trend is reputable? We would like to get muscarinic and adrenergic autoantibodies tested. Our daughter has major...

Does anyone know if German laboratory Cell Trend is reputable? We would like to ...

JHardiman

•5 years ago

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Dr Hakim or Dr Aziz

Our daughter has been diagnosed with hEDS and Behçet’s disease. We are from New Zealand. Which doctor would you recommend-Dr Hakim or Dr Aziz ? Thanks

Our daughter has been diagnosed with hEDS and Behçet’s disease. We are from New ...

JHardiman

•5 years ago

6 Replies

Immunoglobulin therapy

Has anyone tried immunoglobulin therapy for dysautonomias?

JHardiman

•5 years ago

40 Replies

Left arm pain and burning sensation

I have hypermobility spectrum disorder and Posts. I have always had problems with left shoulder. However, now my arm has become painful with a burning...

I have hypermobility spectrum disorder and Posts. I have always had problems wit...

OTPOTS

•5 years ago

7 Replies

Spine instability and surgerys

I need 2 spine surgerys due to my EDS I have severe instability and a tethered spinal cord . I'm posting this Incase any of you are willing to donate or just...

I need 2 spine surgerys due to my EDS I have severe instability and a tethered ...

Jmeds3

•5 years ago

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Raising EDS awareness in the UK

Inquiry into treatment of Ehlers Danlos patients and its comorbidities Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders,...

Inquiry into treatment of Ehlers Danlos patients and its comorbidities Ehlers-Da...

EOLHPC

•5 years ago

18 Replies

Headaches and dry nose

I have lots of debilitating symptoms but there is something really troubling me I would like to get help with. I wake every morning with severe headache. As a...

I have lots of debilitating symptoms but there is something really troubling me ...

Details

•5 years ago

11 Replies

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Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

All posts for October 2019

Anyone else feel really sad when accepting their limits?

Can someone please point me to an hEDS specialist

Autoantibodies tests

Dr Hakim or Dr Aziz

Immunoglobulin therapy

Left arm pain and burning sensation

Spine instability and surgerys

Raising EDS awareness in the UK

Headaches and dry nose

Search posts

Latest poll

What other conditions have you been diagnosed with in addition to EDS?

Topics

Archive