Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,951 members • 935 posts

All posts for February 2016

Does anyone else feel like they're going crazy waiting for diagnosis?

I'm curious. I have been having major issues for years and I am certain now that I have EDS. I suffered with joint dislocations and hyper mobility syndrome....

I'm curious. I have been having major issues for years and I am certain now that...

•8 years ago

great gastro info & support

Hello all Following on from my current saga of investigations into the flare of my chronic lower GI symptoms which began last October....I've just finished...

Hello all Following on from my current saga of investigations into the flare of...

•8 years ago

Elhers danlos syndrome and Personal independent payment

I do high rate daily living under PIP as have to have my husband with me at all times from washing to pulling my trousers up after the toilet. On my good days...

I do high rate daily living under PIP as have to have my husband with me at all ...

•8 years ago

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University

Hiya As some of you may know I am hoping to have a career in adult nursing. I know that I will struggle, but its a career that I drastically want to at least...

Hiya As some of you may know I am hoping to have a career in adult nursing. I k...

•8 years ago

Spina bifida occulta anyone?

Following on from posting yesterday to sort of introduce myself a bit....I'm now hoping to make contact with anyone managing SBO. This is because I'm being...

Following on from posting yesterday to sort of introduce myself a bit....I'm no...

•8 years ago

Thanks for publicity

A couple of weeks ago, a group of young women with EDS from Derby were on our local news. In the week preceding, my mother heard a broadcast on BBC4...

A couple of weeks ago, a group of young women with EDS from Derby were on our lo...

•8 years ago

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Hello all

Am so glad this forum is here. I've popped in now & then over the past few years, but not said hello. I'm inspired to post by pam's thread..I like the way...

Am so glad this forum is here. I've popped in now & then over the past few year...

•8 years ago

Pam

I would just like to introduce myself I have EDS from my father Chiari1 probably from my mother who had Spina Bifida and Psoriasis! My Dads side are all bendy...

I would just like to introduce myself I have EDS from my father Chiari1 probably...

•8 years ago

Paedeatric consultant needed

Hello all, My 11 year old daughter has been diagnosed with JHS and GORD (although I am now starting to see that the gastro issues are due to the JHS....... I...

Hello all, My 11 year old daughter has been diagnosed with JHS and GORD (althou...

•8 years ago

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