About - The Ehlers-Danlos Support UK | HealthUnlocked

The Ehlers-Danlos Support UK (EDS UK) was set up in 1987 to support, advise and inform those living with the Ehlers-Danlos syndromes and hypermobility spectrum disorder. Over 30 years later, we are the largest and leading UK charity that exclusively represents and supports people with all types of EDS and HSD.

We work to minimise the impact of EDS/HSD by making its diagnosis, treatment and management accessible to everyone when they need it.

We provide support through local physical and virtual support groups led by trained volunteers and via our freephone helpline. We maintain a website, issue regular newsletters, and publish materials to inform the EDS/HSD community, those with a specialist interest in the condition, and the wider public. We engage with members of local and national public policy communities to enhance their knowledge of EDS/HSD and stimulate actions beneficial to the EDS/HSD community. Guided by our specialist Medical Advisory Panel, we work to fund appropriate, targeted and timely research projects.

We are a charity and rely on fundraising and donations to continue our work. Your support is greatly appreciated and is essential to ensure we can continue to make our invisible, visible.