Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,952 members • 935 posts

All posts for July 2018

Advice? Diagnosis? Surrey services?

Hi, I'm new here. I have been referred to a rheamatologist (sorry about the spelling!) by my GP for meeting critera for POTS, EDS and possibly mast cell...

Hi, I'm new here. I have been referred to a rheamatologist (sorry about the spel...

happyraindrop28

•6 years ago

5 Replies

Help where should I turn.

Hi well where do I start. Something has just clicked and I think myself ny daughyer and son and even my husband has some form of this disorder. I have only...

Hi well where do I start. Something has just clicked and I think myself ny daugh...

Siddy66

•6 years ago

6 Replies

Left side chest pain

Hello, For the second time in the last week 1.5 years I’ve had an ambulance called for stabbing left side chest pains for about 10-15 mins. Heart seems to be...

Hello, For the second time in the last week 1.5 years I’ve had an ambulance call...

Newbie1

•6 years ago

7 Replies

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On the fence about vEDS

Just looking for some thoughts from anyone who’s gone through or decided not to go through with testing for vEDS! My mother’s side have a history of it,...

Just looking for some thoughts from anyone who’s gone through or decided not to ...

Guesswhosjack

•6 years ago

11 Replies

Ring splints

Hi everyone, Just wondering if anyone has recommendations of where to get oval 8 ring splints? I found a place called zebra splints which is far cheaper than...

Hi everyone, Just wondering if anyone has recommendations of where to get oval 8...

Nknsutton

•6 years ago

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Suspected Hypermobility syndrome

Good morning all This is the first time I have posted on this site. Today in the post I received the letter from the rheumatologist headed ‘suspected...

Good morning all This is the first time I have posted on this site. Today in the...

jan44

•6 years ago

7 Replies

Cardiac discharge and rheumatology discharge despite both agreeing hypermobile

So, I think I can definitely say I have come to a dead end when it comes to my health issues. Here's some background: Since I was 15 I began getting minor...

So, I think I can definitely say I have come to a dead end when it comes to my h...

Neek1

•6 years ago

2 Replies

Diagnosis override and lack of awareness in NHS of EDS

I was diagnosed with hypermobility syndrome in 2014. I had an op on my knee in 2007. Broke my leg in 2010. Physio only look at my knee. Anyway I was...

I was diagnosed with hypermobility syndrome in 2014. I had an op on my knee in ...

angie610

•6 years ago

6 Replies

Re, searching for answers

Hi I am a member of another group on here, but I am wondering if I have aEDS. I saw a woman on the nhs quizzes who had something like this and I thought that...

Hi I am a member of another group on here, but I am wondering if I have aEDS. I...

Ibs17

•6 years ago

12 Replies

Advice for a Hypermobility sufferer

Hi, It’s my first ever post on here, and believe it or not my first ever post in a forum seeking advice. I have had Hypermobility Syndrome my entire life....

Hi, It’s my first ever post on here, and believe it or not my first ever post i...

HanSharland

•6 years ago

11 Replies

Hypermobility or more?

Hey, just to give a round up I'm 21 and I've suffered from joint and muscle pain, stiffness and locking etc pretty much since I can remember but I was only...

Hey, just to give a round up I'm 21 and I've suffered from joint and muscle pain...

PixiePie97

•6 years ago

5 Replies

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Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

All posts for July 2018

Advice? Diagnosis? Surrey services?

Help where should I turn.

Left side chest pain

On the fence about vEDS

Ring splints

Suspected Hypermobility syndrome

Cardiac discharge and rheumatology discharge despite both agreeing hypermobile

Diagnosis override and lack of awareness in NHS of EDS

Re, searching for answers

Advice for a Hypermobility sufferer

Hypermobility or more?

Search posts

Latest poll

What other conditions have you been diagnosed with in addition to EDS?

Topics

Archive