Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,954 members • 935 posts

All posts for May 2019

End Of The Line

I feel terribly depressed. I complained about my visit to the Genetic medicine Unit regarding EDS and today after complaining I was offered an appointment with...

I feel terribly depressed. I complained about my visit to the Genetic medicine U...

•5 years ago

Self care tips for migraines

Hi, I’ve recently starting suffering from migraines. This is because I’ve recently been diagnosed with TMJ dysfunction and trigeminal neuralgia, which triggers...

Hi, I’ve recently starting suffering from migraines. This is because I’ve recent...

bethsunflowerfield

•5 years ago

Will My SSDI be renewed? Scared!

I have been on Social Security disability for the past three years. I was awarded three years of disability and will be reevaluated again soon. My disability...

I have been on Social Security disability for the past three years. I was awarde...

•5 years ago

Want to take advantage of all our features? Just log in!

or

Just the usual

Bad nights sleep after another migraine last night. Was waking up still with migraine pain. TMJ dysfunction is making my jaw really tight and sore, and keep...

Bad nights sleep after another migraine last night. Was waking up still with mig...

bethsunflowerfield

•5 years ago

Comorbidities

Hi, I have EDS classical, and of course I suffer from comorbidities. But this last month I have been diagnosed with two new ones- TMJ dysfunction which causes...

Hi, I have EDS classical, and of course I suffer from comorbidities. But this la...

bethsunflowerfield

•5 years ago

More than just benign hypermobility syndrome??

March this year I was diagnosed with benign hyper mobility syndrome, I scored 7/9 on the Beighton test, never refered to physio, my dad works alongside physios...

March this year I was diagnosed with benign hyper mobility syndrome, I scored 7/...

Crazycatlady_101

•5 years ago

Sleep apnoea??

Hi Along with most of us with hEDS and associated Fibromyalgia I get bouts of dreadful fatigue I am tired all the time and her days of fatigue when I wake...

Hi Along with most of us with hEDS and associated Fibromyalgia I get bouts of d...

•5 years ago

Lethargy

I have depression and Ehlers-Danlos syndrome, classical. I read something early this morning online about people are sometimes diagnosed wrongly with having...

I have depression and Ehlers-Danlos syndrome, classical. I read something early ...

•5 years ago

Blue Sclera

Hello everybody. I recently joined the Health Unlocked community to try and get answers about severe pain I’ve been having behind my right eye and in my right...

Hello everybody. I recently joined the Health Unlocked community to try and get ...

•5 years ago

Lungs and hypermobility

Just wondering if anyone with JHS has ever had episodes of haemoptysis?

Just wondering if anyone with JHS has ever had episodes of haemoptysis?

•5 years ago

The pain

Hi All, I was wondering if anyone had tips about dealing with pain caused by hypermobility syndrome? So I was pretty active, doing CrossFit, Pilates (I find...

Hi All, I was wondering if anyone had tips about dealing with pain caused by hy...

•5 years ago

Hypermobility spectrum disorder and POTS. Has anyone had CBT? Was it helpful?

I'm 39 and recently had a diagnosis after 25 years of symptoms. I'm struggling with now not thinking it's all in my head....I'm giving myself a hard time...

I'm 39 and recently had a diagnosis after 25 years of symptoms. I'm struggling w...

•5 years ago

No Quality of Life. No Hope left.

I'm so miserable I don't know where to start! I posted on here for first time in December about how I saw a gynaecologist who said I 'almost certainly' had...

I'm so miserable I don't know where to start! I posted on here for first time in...

•5 years ago

Search posts

Latest poll

What other conditions have you been diagnosed with in addition to EDS?

Topics

All things Ehlers-Danlos Support UK(4)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Mar

Jun

Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov

Dec

2021

Jan Feb Mar Apr May Jun

Jul

Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Feb

Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun

Jul

Aug

Sep Oct Nov Dec

2013

Jan

Feb Mar Apr May Jun Jul Aug Sep Oct Nov

Dec