Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,954 members • 935 posts

All posts for April 2017

EDS Hypermobility and CSF leaks

Hi all, just a quick question is there anyone on here who has spontaneous CSF Leaks due to EDS type H? I have had recurrent leaks since 2007 and this March...

Hi all, just a quick question is there anyone on here who has spontaneous CSF Le...

DJML

•7 years ago

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Peads with my daughter.

Hey everyone first time in posting. My daughter was diagnosed with serve hyper mobility when she was 18months old she is now 3 will be 4 in august. We have...

Hey everyone first time in posting. My daughter was diagnosed with serve hyper ...

mum2three

•7 years ago

4 Replies

Hi new to eds

Hi everyone just wanted to say hi Was diagnosed with eds I'm always so tired and in awful pain quite a lot of the time can anyone recommend any other pain...

Hi everyone just wanted to say hi Was diagnosed with eds I'm always so tired an...

denni1uk

•7 years ago

2 Replies

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Hypermobility

Hi all. Since receiving my daughter diagnosis of Hypermobility have researched the condition and it resembles my symptoms the doctor has now classed as "nerve...

Hi all. Since receiving my daughter diagnosis of Hypermobility have researched t...

John-bacon

•7 years ago

2 Replies

Here it comes

Well my fellow Edsers, the Veteran administration is implementing a law that anyone who does not have cancer will mot be on Opiates. My GP told me either...

Well my fellow Edsers, the Veteran administration is implementing a law that any...

Country4eva

•7 years ago

5 Replies

Rheumatologist consultant

Hi I'm new here , and trying to get a final diagnosis for my daughter, possible EDS . She has now received an appointment to see a consultant Rheumatologist....

Hi I'm new here , and trying to get a final diagnosis for my daughter, possible ...

Sjac

•7 years ago

3 Replies

Anyone get hot flashes?

Hi, I'm 19, and I've been ill since 8. When I was 14 I became severe, and since then the way my body seems to tell me that it's had enough and that I've...

Hi, I'm 19, and I've been ill since 8. When I was 14 I became severe, and since ...

PugBex

•7 years ago

8 Replies

Tests for vascular EDS negative

Whew, well I just got the letter today that the tests came back that vascular EDS for me was 'unlikely'. This is generally good news, but does still leave a...

Whew, well I just got the letter today that the tests came back that vascular ED...

Silvergilt

•7 years ago

2 Replies

Hi Everyone

Hello Everyone, I`m new to this site so wanted to just say a little "hi" I have Elhers-Danlos and was diagnosed about 30 years ago, I was also diagnosed with...

Hello Everyone, I`m new to this site so wanted to just say a little "hi" I have ...

Kezza07

•7 years ago

5 Replies

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Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

All posts for April 2017

EDS Hypermobility and CSF leaks

Peads with my daughter.

Hi new to eds

Hypermobility

Here it comes

Rheumatologist consultant

Anyone get hot flashes?

Tests for vascular EDS negative

Hi Everyone

Search posts

Latest poll

What other conditions have you been diagnosed with in addition to EDS?

Topics

Archive