Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,948 members934 posts

All posts for January 2019

Looking Helpful for helpful information on best treatment for Ehlers danlod

Hi I'm new here. What does everybody find helpful with there Ehlers danlos. Ect ...
Daisy50 profile image

Designing an aid for hypermobility

Hello, my name is Lauren and I’m a student from Imperial College London. My grou...
LDICL profile image

Mattress advice

Anyone got any advise on the right bed mattress to use. Sleep an issue and my m...
aliD47 profile image
Want to take advantage of all our features? Just log in!
or

Working how do you cope and not working thoughts please?

I'd like to know how you handle day to day life at work if you can hold down a j...
aliD47 profile image

New medication

Hi all hope we are all coping! I’ve recently been out on some patches called mat...

I hate this invisible syndrome

I'm newly diagnosed trying to get my head around all this and I'm still convince...
aliD47 profile image

Personal independence payment

Hello, hope everyone’s well, have been thinking about applying for Personal inde...
Kahlan_tf profile image

Digestive Relief. Fasting, Extra Chewing or Small Portion Eating?

Hello there, It has come to my attention that either opting to 'fast' for period...
MontgomeryJ profile image

My main issue is balance and the feeling like the lower half of my legs are wooden.

So newby as I've said in other posts waiting for my treatment which I'm told is ...
aliD47 profile image

Bath pain clinic inpatient, please help

Hi guys , I got rejected from St Thomas as I’m not independent enough for their ...

Discovery of HMS - Relief or Frustration?

I've been struggling with pain my whole life. I remember being around the age o...
WardenQueen profile image

About my son...

Hello, I wonder whether anyone could tell me whether it sounds as though my 9 1/...
BlackInk profile image

Applying for pip

I have JHS/hEDS and I applied for pip last October. I finally have a f2f assessm...

Trying to get back to work but it's hard

Well I'm a newby in this hypo-ehlers lark. Trying to get back to work but it's a...
aliD47 profile image

scapular syskinesis

Hey everyone. I have been diagnosed with scapular dyskinesis. Ive been through 2...

Craniocervical Instability Symptoms

Hi all Does anyone suffer from craniocervical instability? I have some of the sy...
ella12345 profile image

Newby at this and trying to deal with my job

Hi, I've just recently been diagnosed on the 2 January this year so I'm still ge...
aliD47 profile image

Any advice will be welcomed

My adult son has hEDS & POTS recently diagnosed, we applied for a bus pass and w...
Anne2018 profile image

What could be wrong with me?

About five months ago, I developed a mild itch in my urethra as I finish urinati...
Hidden profile image

EDS and eating problems?

Hi, does anyone else have stomach problems relating to hEDS? I’ve been constantl...
AliPixie profile image

Confused over diagnosis!

Hello all, I wonder if someone can help me, please? I went for an assessment at ...

ME (cfs). Not hEDS

My daughter saw a different rheumatologist today. She said symptoms sounded mor...
Danlos166 profile image

    Search posts

    Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

    Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.