Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,952 members • 935 posts

All posts for March 2018

Anyone have a PIP phone offer

Hi everyone I hope your well today! I have been declined by PIP and have made an appeal. I spent quite a bit of time on research while writing my appeal. I've...

Hi everyone I hope your well today! I have been declined by PIP and have made an...

Ladyuponthelake

•6 years ago

16 Replies

Casualty Episode, Saturday night!

The conditions of fibromyalgia, EDS, POTS, hypermobility all featured on prime time TV!! 💥

The conditions of fibromyalgia, EDS, POTS, hypermobility all featured on prime t...

sing123sleep

•6 years ago

7 Replies

Positive and speckled ANA

Hi all. I was wondering if anyone here has a positive ANA or speckled ANA? I had to go to another rhmy in December, my gyno wanted to see if I could have an...

Hi all. I was wondering if anyone here has a positive ANA or speckled ANA? I h...

rosesinbloom

•6 years ago

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loss of medical care

Hi Im new here - I am a carer of a 28 yro with EDS, fibromyalgia and autism and in recent months following his EDS diagnosis he's now lost all medical care and...

Hi Im new here - I am a carer of a 28 yro with EDS, fibromyalgia and autism and ...

Hidden

•6 years ago

18 Replies

Does anyone else with EDS have puncta plugs for Secondary Sjögren’s? and feel like their body is just packing up

First post on here, I have very dry eyes and very light sensitive which I put down on to my having EDS. I was referred by an optometrist to a Dry Eye...

First post on here, I have very dry eyes and very light sensitive which I put ...

Hidden

•6 years ago

1 Reply

Gastro problems

I have EDS type three and have always struggled with gastro problems. But recently they have gotten worse. My GP is doing a test to check for blood in the...

I have EDS type three and have always struggled with gastro problems. But recent...

alice2800

•6 years ago

9 Replies

Bladder prolapse and hypermobilty EDS

Hey everyone! I was just wondering if any of you suffer from bladder prolapse without having children as a result of EDS type 3? I was just wondering how...

Hey everyone! I was just wondering if any of you suffer from bladder prolapse wi...

Iheartfashionsaginaw

•6 years ago

14 Replies

POTS and pilots

Hi, I came across something pilots do to counteract g-forces from causing them to black out: to keep the blood from being pulled down into their legs when...

Hi, I came across something pilots do to counteract g-forces from causing them ...

Hidden

•6 years ago

6 Replies

Autoimmunity and eds

I'm one of the very unfortunate who is collecting autoimmune diseases with my eds. I had taken steroids and started cellcept then within weeks became very ill...

I'm one of the very unfortunate who is collecting autoimmune diseases with my ed...

Joanna36

•6 years ago

6 Replies

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Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

All posts for March 2018

Anyone have a PIP phone offer

Casualty Episode, Saturday night!

Positive and speckled ANA

loss of medical care

Does anyone else with EDS have puncta plugs for Secondary Sjögren’s? and feel like their body is just packing up

Gastro problems

Bladder prolapse and hypermobilty EDS

POTS and pilots

Autoimmunity and eds

Search posts

Latest poll

What other conditions have you been diagnosed with in addition to EDS?

Topics

Archive