Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,949 members • 935 posts

All posts for April 2019

What do i do next? EDS or just me being a hypercondriact?

Have been to physio today i scored 5/9 on the beighton score and said i am hypermobile but my knees are not, so what does this mean should i push my gp for a...

Have been to physio today i scored 5/9 on the beighton score and said i am hyper...

Lucymarlow1

•5 years ago

1 Reply

My spine sticks out and pains and it started at sixth standard.

My lower spine sticks out and pains when I lie flat on my back and I have heds. Why does this happens

My lower spine sticks out and pains when I lie flat on my back and I have heds. ...

Dishagffgffhg

•5 years ago

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Suspected eds

Well i never thought id be posting here but i wondered if someone could help me Ive been having symptoms since i was a child im 25 now but never got anywhere...

Well i never thought id be posting here but i wondered if someone could help me ...

Lucymarlow1

•5 years ago

6 Replies

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Don’t give up

After three and a half long years I’ve finally got somewhere! I had my ESA assessment 10 days ago and yesterday I got my acceptance! I applied jan 14th 2019....

After three and a half long years I’ve finally got somewhere! I had my ESA asse...

Itsallinthehips

•5 years ago

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Best place to buy CBD vape in the UK

Please can people give me suggestions for where to get it in the UK high strength and for vaping I want some real life reviews Thank you

Please can people give me suggestions for where to get it in the UK high strengt...

Itsallinthehips

•5 years ago

7 Replies

HSD and PoTS question.

My 16 year old daughter has recently been diagnosed with HSD. She also has symptoms of PoTS, mainly dizziness on standing, and has a tilt table test scheduled...

My 16 year old daughter has recently been diagnosed with HSD. She also has sympt...

Myflexiblefriend

•5 years ago

12 Replies

Trying to figure it out

Hi Everyone, I'm Hannah, I'm undergoing investigation to find out what's going on but I suspect something autoimmune/connective tissue as I've had a million...

Hi Everyone, I'm Hannah, I'm undergoing investigation to find out what's going o...

HannahJG

•5 years ago

10 Replies

I'm stuck on a 'wait and see'

Background.... Started having various joint pain issues and a wonky coccyxx over two years ago. Spent a lot of time being told not to sit on it (yes a...

Background.... Started having various joint pain issues and a wonky coccyxx over...

Ginge_31

•5 years ago

6 Replies

Just been told i am hyper-mobile. hEDS? This might explain my chronic fatigue / post exercise malaise and more!

Hi EDS forum! For most of my adult life if have suffered with poor sleep, chronic fatigue and severe physical exhaustion after what might be considered normal...

Hi EDS forum! For most of my adult life if have suffered with poor sleep, chroni...

TranceW1974

•5 years ago

5 Replies

Getting A Diagnosis Of EDS Through The NHS

I did not know about EDS until last year when a consultant Gynaecologist told me I 'almost certainly have it'. When I looked up all the associated...

I did not know about EDS until last year when a consultant Gynaecologist told me...

Details

•5 years ago

8 Replies

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Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

All posts for April 2019

What do i do next? EDS or just me being a hypercondriact?

My spine sticks out and pains and it started at sixth standard.

Suspected eds

Don’t give up

Best place to buy CBD vape in the UK

HSD and PoTS question.

Trying to figure it out

I'm stuck on a 'wait and see'

Just been told i am hyper-mobile. hEDS? This might explain my chronic fatigue / post exercise malaise and more!

Getting A Diagnosis Of EDS Through The NHS

Search posts

Latest poll

What other conditions have you been diagnosed with in addition to EDS?

Topics

Archive