Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,952 members • 935 posts

All posts for June 2017

Interesting and very true article on how the medical establishment frequently dismisses and dehumanizes women.

https://qz.com/1006387/women-are-flocking-to-wellness-because-traditional-medicine-still-doesnt-take-them-seriously/?utm_source=qzfb

https://qz.com/1006387/women-are-flocking-to-wellness-because-traditional-medici...

•7 years ago

Hypermobility syndrome, fybromyalgia

hi, I'm just new here and was hoping for some advice, I have been suffering for years with joint and muscle pain (amongst other things) only to have first been...

hi, I'm just new here and was hoping for some advice, I have been suffering for ...

•7 years ago

New here

Hello everyone, after many years of health problems I think I might be getting somewhere in understanding what's going on. As a child, flat feet, hallux...

Hello everyone, after many years of health problems I think I might be getting s...

•7 years ago

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Where do we go?

I have just discover My son has E D. Can anyone tell me the best hospital or Consultant in London, I should present my child to?

I have just discover My son has E D. Can anyone tell me the best hospital or Con...

•7 years ago

Will they know?

I'm terrified that the rheumatologist won't even know what EDS is, let alone be able to diagnose me! And I've been waiting a month for the appointment and it's...

I'm terrified that the rheumatologist won't even know what EDS is, let alone be ...

•7 years ago

EDS type h and Cerebrospinal fluid leaks

Hi all, just a quick question is there anyone on here who has spontaneous CSF Leaks due to EDS type H? I have had recurrent leaks since 2007 and this March EDS...

Hi all, just a quick question is there anyone on here who has spontaneous CSF Le...

•7 years ago

Recent diagnosis of hypermobility.

Hi all, i have just been diagnosed with hypermobility at 39. In the last two years my health has deteriorated and in that time have also been diagnosed...

Hi all, i have just been diagnosed with hypermobility at 39. In the last two yea...

•7 years ago

Hypermobile joint syndrome and h-EDS

Hello, I've just been diagnosed with hypermobile joint sydrome. I've had significant health issues for about 11 years now but things got a lot worse over the...

Hello, I've just been diagnosed with hypermobile joint sydrome. I've had signi...

•7 years ago

Haven't been diagnosed hEDS yet but...

When I walk up the stairs, I have to take micro breaks because my legs feel like I've done a 5k. Doing minimal things makes my energy level plummet so badly....

When I walk up the stairs, I have to take micro breaks because my legs feel like...

•7 years ago

Eyesight?

My eyes always feel tired and strained but the optician appointment I have a little over a year ago told me that I have an extremely slight astigmatism, so...

My eyes always feel tired and strained but the optician appointment I have a lit...

•7 years ago

Blood test results.

The reason the GP referred me to the rheumatologist is because I have an elevated Plasma C reactive protein, an elevated Erythrocyte sedimentation rate and a...

The reason the GP referred me to the rheumatologist is because I have an elevate...

•7 years ago

Please give me advice if you can.

My joint pain is so much worse lately! But the nearest appointment the rheumatologist could give me is July 20th! Co-codamol isn't working! I have a pill...

My joint pain is so much worse lately! But the nearest appointment the rheumatol...

•7 years ago

Drugs?

Hi everyone :) I know it's an extremely personal question but I was wondering what medications you take to deal with all the lovely symptoms that EDS brings?...

Hi everyone :) I know it's an extremely personal question but I was wondering wh...

•7 years ago

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