Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,952 members • 935 posts

All posts for December 2018

Vascular EDS gene testing in UK

Hello, I have a diagnosis of hypermobile EDS made clinically with no genetic testing, however two of my family members have features suggestive of vascular...

Hello, I have a diagnosis of hypermobile EDS made clinically with no genetic te...

bombsh3ll

•5 years ago

6 Replies

Reply to are we the first in the family

I'm the first and my daughter also has it. We have type 3. So we use lots of ace bandages and knee braces.

I'm the first and my daughter also has it. We have type 3. So we use lots of ace...

KittenMam

•5 years ago

1 Reply

Any advice please

Hi there I’ve been diagnosed with hyper mobility EDS for the past 10 years roughly and it seems to be getting worse maybe the older I get? I am suffering with...

Hi there I’ve been diagnosed with hyper mobility EDS for the past 10 years rough...

Trd29

•5 years ago

26 Replies

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Talking to others with similar problems does nothing to improve services and access.

After several miserable years of harassment by Social Services to "go out in the community" etc., and no understanding at all from GP surgery or social worker...

After several miserable years of harassment by Social Services to "go out in the...

budgiefriend

•5 years ago

2 Replies

Post Your Top 5 Relief Managing Hacks for EDS/HSD

I was thinking whilst at work today that it might be a good idea for all of us with Hypermobile conditions, to post our own Top 5 methods of pain relief and...

I was thinking whilst at work today that it might be a good idea for all of us w...

MontgomeryJ

•5 years ago

9 Replies

Do family members have the same condition or are you the first in your family?

Hi does anyone with HEDS diagnosis have another family member with the same thing ? Thank you

Hi does anyone with HEDS diagnosis have another family member with the same thin...

Danlos166

•5 years ago

9 Replies

Blue badge & bus pass

My son has hEDS and POTS, since going to OT he was recommended to apply for blue badge (for my car) and buss pass, has anyone had any problems getting these ?

My son has hEDS and POTS, since going to OT he was recommended to apply for blue...

Anne2018

•5 years ago

3 Replies

Thumb pain after accident

On Tuesday I hurt my thumb. Partner threw a cushion at me play fighting and it caught my thumb, pushing it back with force. Immediate pain and limited movement...

On Tuesday I hurt my thumb. Partner threw a cushion at me play fighting and it c...

Gracey86

•5 years ago

5 Replies

EDS and cold weather

Hello! I’m new and wanted to ask about your experiences with EDS and cold weather, as well as sacroiliac joint dysfunction. I’m looking to chat about symptoms...

Hello! I’m new and wanted to ask about your experiences with EDS and cold weathe...

carleton

•5 years ago

1 Reply

EDS Dentist Recommendations (London..Herts..)

Hello, I have been having gum problems which could be EDS related or something else connected with Hypermobility disorders. Just wanted to ask if anyone could...

Hello, I have been having gum problems which could be EDS related or something e...

MontgomeryJ

•5 years ago

6 Replies

Seeking a Diagnosis (Cont...)

Hello, I have recently become aware that I might have EDS after seeing several consultants and connecting the dots. For example, no arthritis blood markers. I...

Hello, I have recently become aware that I might have EDS after seeing several c...

MontgomeryJ

•5 years ago

6 Replies

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Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

All posts for December 2018

Vascular EDS gene testing in UK

Reply to are we the first in the family

Any advice please

Talking to others with similar problems does nothing to improve services and access.

Post Your Top 5 Relief Managing Hacks for EDS/HSD

Do family members have the same condition or are you the first in your family?

Blue badge & bus pass

Thumb pain after accident

EDS and cold weather

EDS Dentist Recommendations (London..Herts..)

Seeking a Diagnosis (Cont...)

Search posts

Latest poll

What other conditions have you been diagnosed with in addition to EDS?

Topics

Archive