Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,949 members • 935 posts

All posts for February 2019

Genetic Medicine Referral

Hello All. I recently had an appointment at a gynaecologist who told me it is not common for women who have never had children to have a prolapse. He...

Hello All. I recently had an appointment at a gynaecologist who told me it is n...

Details

•5 years ago

7 Replies

Struggling to cope

It is likely that I have had fibromyalgia and elhers danlos syndrome since 12 years old. My stomach and face balloon up every time I eat or drink, my weight...

It is likely that I have had fibromyalgia and elhers danlos syndrome since 12 ye...

Bassetranger22

•5 years ago

1 Reply

Hypermobile EDS??

Does anyone here have hyper mobile EDS and sleep with eyes partially open, have blue scerla in their eyes, and/or irritated vessels in the whites of their eye?...

Does anyone here have hyper mobile EDS and sleep with eyes partially open, have ...

Apaigemarko

•5 years ago

3 Replies

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Surgery

Had surgery on my foot I had a the same surgery on my left foot painful been on oxycodone since surgery

Had surgery on my foot I had a the same surgery on my left foot painful been on ...

Lene-Alice

•5 years ago

2 Replies

First timer

Hi, First time I've done a post of my own but I've been tempted plenty of times to beg support or advice! I'm 40 spent my childhood often at the hospital with...

Hi, First time I've done a post of my own but I've been tempted plenty of times ...

L1lgem

•5 years ago

3 Replies

Referral from rheumatologist for suspected ehlers danlos syndrome. With lupus like symptoms. Advice please.

I have been back to my rheumatologist due to lupus like symptoms. An endocrinologist and dermatologist suspect lupus or somet similar autoimmune disease. This...

I have been back to my rheumatologist due to lupus like symptoms. An endocrinolo...

Hidden

•5 years ago

18 Replies

My wife has eds type3 but it's wrecked both our lives

This evil horrible disease has finally played it's part on our marriage, in the way of causing, stress, upset dont know which way to turn when things get hard...

This evil horrible disease has finally played it's part on our marriage, in the ...

Christaylor4076

•5 years ago

2 Replies

Afraid of vEDs

Hi all, I’m looking for some insight or opinion from those who have been through this. I am 23 years old and am currently looking into genetic testing after...

Hi all, I’m looking for some insight or opinion from those who have been through...

Apaigemarko

•5 years ago

16 Replies

Wife has hms +eds type 2 when was the last time you both spent time as a husband and wife like walking hand in hand down street??

Hi I'm 42 and my wife is also 42 and she has this horrible condition, Last year she had knee surgery to make dislocation less which was I think a great...

Hi I'm 42 and my wife is also 42 and she has this horrible condition, Last year ...

Christaylor4076

•5 years ago

3 Replies

Tethered cord

Tethered cord symptoms? I have heds and doctors think I have a tethered cord has anyone had this and how did the surgery go?

Tethered cord symptoms? I have heds and doctors think I have a tethered cord ha...

Jmeds3

•5 years ago

1 Reply

EDS lower back pain/ muscle twitching

Hi. Does anyone have muscle twitching with small fiber neuropathy? Also, does anyone suffer from the l5-S1 joint or SI joint on lower back? I struggle walking...

Hi. Does anyone have muscle twitching with small fiber neuropathy? Also, does an...

KAGarcia

•5 years ago

9 Replies

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Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

All posts for February 2019

Genetic Medicine Referral

Struggling to cope

Hypermobile EDS??

Surgery

First timer

Referral from rheumatologist for suspected ehlers danlos syndrome. With lupus like symptoms. Advice please.

My wife has eds type3 but it's wrecked both our lives

Afraid of vEDs

Wife has hms +eds type 2 when was the last time you both spent time as a husband and wife like walking hand in hand down street??

Tethered cord

EDS lower back pain/ muscle twitching

Search posts

Latest poll

What other conditions have you been diagnosed with in addition to EDS?

Topics

Archive