Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,953 members • 935 posts

All posts for May 2018

Anyone else with other painful conditions?

I was diagnosed with EDS Hypermobility a few years ago. I have a partial subluxation in my neck, lordosis and generally wobbly joints. Only problem is, I've...

I was diagnosed with EDS Hypermobility a few years ago. I have a partial subluxa...

lily82

•6 years ago

4 Replies

Help to find a nottingham rheumatologist with EDS interest

Hi there ,Im 24 and have been looking for a EDS specialist rheumatologist in Nottingham so that the type of my EDS can be fully determined . I was wondering if...

Hi there ,Im 24 and have been looking for a EDS specialist rheumatologist in Not...

Daniellak

•6 years ago

2 Replies

Hello, new and advice needed pls!

Hi everyone, I’m new to this forum. I’ve been having all sorts of widespread pain problems and getting nowhere with GP, they have me pegged as a hypochondriac....

Hi everyone, I’m new to this forum. I’ve been having all sorts of widespread pai...

Beckybexx

•6 years ago

4 Replies

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Child with HEDS

My 13 year old daughter has EDS, very hypermobile, suffers from headaches, aches and pains, partial joint dislocations, food allergies, low blood...

My 13 year old daughter has EDS, very hypermobile, suffers from headaches, aches...

bex68

•6 years ago

7 Replies

Gastroscopy

I have hEDS and I had a Gastroscopy 2 days ago. They took biopsies and since the procedure I haven’t been able to eat or drink anything without doubling up...

I have hEDS and I had a Gastroscopy 2 days ago. They took biopsies and since the...

Hidden

•6 years ago

3 Replies

Is it EDS?

My 11 year old daughter has an autoimmune bleeding disorder, ASD, dyslexia and visual stress. She has also been suffering from various joint and muscle pains...

My 11 year old daughter has an autoimmune bleeding disorder, ASD, dyslexia and v...

grasshopper2000

•6 years ago

3 Replies

Hypermobile pelvis caused Scheuermanns kyphosis and lordosis!

Hi everyone, Has anyone experienced this? I only have a few mild hypermobile joints. Have suffered back pain and loads of other symptoms for 9 years now....

Hi everyone, Has anyone experienced this? I only have a few mild hypermobile jo...

Annalouk

•6 years ago

3 Replies

Hello

Hi newbie here! My 15 yr old daughter was diagnosed with hEDS earlier this year....still finding our way in these uncertain times and hoping things start to...

Hi newbie here! My 15 yr old daughter was diagnosed with hEDS earlier this year....

Samc71

•6 years ago

3 Replies

I can’t walk I’m in agony! Please help?

Hi I did a bit more walking over the bank holiday than I’m used too and now I can’t walk! I literally can’t put any weight on my left foot it’s agony. I...

Hi I did a bit more walking over the bank holiday than I’m used too and now I c...

rosserk

•6 years ago

19 Replies

HSD newbie

Hi, After a long series of various doctors who each had a say in what I was dealing with and a loooot of pain, i was diagnosed in February with HSD. I don't...

Hi, After a long series of various doctors who each had a say in what I was deal...

justiio

•6 years ago

20 Replies

What info to take to doctors?

Im arranging to go to the doctor soon with as much info about EDS as i can. Are there any documents etc that you would advise I print off to show the doctor?...

Im arranging to go to the doctor soon with as much info about EDS as i can. Are ...

Kanmi

•6 years ago

15 Replies

EDS now has lots of huge online communities, so why are drs and nurses still not spotting and understanding it?

I am on 3 Facebook forums for EDS sufferers (I like EDS UK best), plus Inspire.com and here. I am amazed at how it has grown in the last four years. But still,...

I am on 3 Facebook forums for EDS sufferers (I like EDS UK best), plus Inspire.c...

Jay66

•6 years ago

3 Replies

Sciatic and Sacroiliac Pain

Does anyone have any helpful hints for Sciatic Nerve and Sacroiliac pain??? I use heat which helps a great deal but isn't always easy to do, like if you happen...

Does anyone have any helpful hints for Sciatic Nerve and Sacroiliac pain??? I us...

Ladyuponthelake

•6 years ago

8 Replies

Newly diagnosed with hypermobility

Hi im new to the group and was diagnosed with hypermobility this week. I am being tested for inflammation. I get horrible pain in my hips, knees, ankle, wrists...

Hi im new to the group and was diagnosed with hypermobility this week. I am bein...

Kanmi

•6 years ago

8 Replies

Another Rheumatologist Dissapointment

I've been waiting for months to finally see a local Rheumatologist. I've been to Dr Alan Hakim in London and should have had my notes under normal...

I've been waiting for months to finally see a local Rheumatologist. I've been to...

Ladyuponthelake

•6 years ago

28 Replies

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Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

All posts for May 2018

Anyone else with other painful conditions?

Help to find a nottingham rheumatologist with EDS interest

Hello, new and advice needed pls!

Child with HEDS

Gastroscopy

Is it EDS?

Hypermobile pelvis caused Scheuermanns kyphosis and lordosis!

Hello

I can’t walk I’m in agony! Please help?

HSD newbie

What info to take to doctors?

EDS now has lots of huge online communities, so why are drs and nurses still not spotting and understanding it?

Sciatic and Sacroiliac Pain

Newly diagnosed with hypermobility

Another Rheumatologist Dissapointment

Search posts

Latest poll

What other conditions have you been diagnosed with in addition to EDS?

Topics

Archive