Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,952 members • 935 posts

All posts for March 2017

Possible ignorant question - joint concern

Hi everyone, I've tried looking for an answer but can't figure it out... I'm going to a rheumatologist soon for a hopeful diagnosis of ME. Ever since I can...

Hi everyone, I've tried looking for an answer but can't figure it out... I'm go...

•7 years ago

Doctors!!!!!!!!!!

I think doctors should have to have a yearly compassion class because somewhere along the way they loose it. Saw a new dr yesterday and he ask me was I a...

I think doctors should have to have a yearly compassion class because somewhere ...

•7 years ago

Painsomnia affecting every day life

So I have EDS, POTS, gastroparesis and many other related illnesses. In 2009 I was in a car accident and this triggered my chronic pain and ultimately got me...

So I have EDS, POTS, gastroparesis and many other related illnesses. In 2009 I w...

•7 years ago

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Amitryptaline

I have nerve damage from an operation on my Ulna bone. At the time I was put on the above medication to stop some of the pain and help me to sleep at night....

I have nerve damage from an operation on my Ulna bone. At the time I was put on ...

•7 years ago

New diagnostic criteria

Links from here: ehlers-danlos.com/wp-content/uploads/2017-EDS-Classification_March_2017.pdf For us in UK I would imagine it makes very little difference. For...

Links from here: ehlers-danlos.com/wp-content/uploads/2017-EDS-Classification_Ma...

•7 years ago

Done.com

My pain medication does not work anymore and now it has become not taking it to manage pain, but taking it to keep from getting sick. Who knew?

My pain medication does not work anymore and now it has become not taking it to ...

•7 years ago

Linked to EDS?

Hi everyone! Just wondering if any of you might know what's going on! Wednesday night my upper arms felt like they were on fire. They were red but not...

Hi everyone! Just wondering if any of you might know what's going on! Wednesday...

•7 years ago

Where To Go In London?

Hi all - I have Sjogren's and connective tissue disease, but over the past year I have been in excruciating pain and been to the GP and physio, and from what...

Hi all - I have Sjogren's and connective tissue disease, but over the past year ...

•7 years ago

Give it up

Well, just discharged from local hosp with my 10th bowel obstruction. After reading my records post discharge, my urine showed 5 plus blood, white blood cells,...

Well, just discharged from local hosp with my 10th bowel obstruction. After read...

•7 years ago

The same doc😜

Went to ER a week and a half ago for a pain in lower right abdomen. Felt like kidney stone. Got to ER and laid there hour and a half in pain. Doc came in and...

Went to ER a week and a half ago for a pain in lower right abdomen. Felt like ki...

•7 years ago

best chair for eds

i have gone through so many sofas and chairs and spent a fortune. still not comfortable . have chronic pain. can anyone recommend a good chair or sofa that...

i have gone through so many sofas and chairs and spent a fortune. still not comf...

•7 years ago

Rheumatologist appointment grandaughter

Hi My granddaughter has had her appointment with the rheumatologist, said she has super mobility in her feet ,ankles and hands and has recommended boots for...

Hi My granddaughter has had her appointment with the rheumatologist, said she h...

•7 years ago

Soft tissue formation...or not in this case

Hi all. I have a question for you and would appreciate your thoughts... The thing is I have had three joint replacements in my CMC joint of my thumb (where...

Hi all. I have a question for you and would appreciate your thoughts... The thin...

•7 years ago

Cranial Instability?

Hi, I have EDS Hypermobility type. Does anyone suffer with Cranio Cervical Instability? How did you get it diagnosed and what symptoms do you have? I have...

Hi, I have EDS Hypermobility type. Does anyone suffer with Cranio Cervical Insta...

•7 years ago

Just a little prick

First accupunture treatment yesterday. I almost fell asleep on the table. It was like someone let the tension wire loose!!!!! Ahhhhhh

First accupunture treatment yesterday. I almost fell asleep on the table. It was...

•7 years ago

Really!!!!!!

I just want to rant for a moment and no offense to my male Edsers out there, but they will give a pill that has serious side affects for LPS (limp penis...

I just want to rant for a moment and no offense to my male Edsers out there, but...

•7 years ago

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