I'm a 33 year old woman, French, living in Germany. My dad died 12 years ago of ALD (2 brothers of him also died of (undiagnosed) ALD in their childhood).
A couple of months ago, while googling the disease of my dad to explain it to my boyfriend, I realised that I was for sure a carrier and I would probably develop symptoms at some point. I also found out that there is a high chance (50%) of passing it to my children. That was the best news ever to share with my boyfriend...
Since then, I have been feeling really sad and down. I'm also angry at the doctor who treated my dad in France because he knew me and never told me anything...
I finally met a neurologist specialised in this disease here in Germany 1,5 months ago and he confirmed me what I already knew. He asked me if I was feeling anything yet, I said no.
But for a few days now, I have been experiencing some symptoms which could be linked to AMN. I'm not sure because of my current psychological condition, I may be too paranoid, I don't know... this is why I decided to write you on this forum.
Last week end, I had a cold and every time I sneezed, I would pee a little on me... I had to change underwear and pants twice... this is so embarrassing I have never been pregnant so it can't be the reason... the only thing I'm thinking of is AMN
I have also been feeling some kind of sciatic pain in my left lower limb. Since I haven't done sport for months... same here, I can't think of anything else but AMN (this pain seems common in multiple sclerosis).
What do you think? Are there some women here who could tell me how the onset of AMN happened for them?
Thanks a lot in advance for your answers.