Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,078 members • 27,706 posts

All posts for April 2024

Waiting for me to die

Just wondering if anyone else has experienced this. Sometimes i get the feeling that friends and family members are waiting for me to die. I was diagnosed...

Just wondering if anyone else has experienced this. Sometimes i get the feeling ...

rogerandme

•6 months ago

44 Replies

Aquablation with APC

Hi there - does anyone here have experience with an aquablation procedure to improve urinary symptoms? My father is considering it. He has been on doublet...

Hi there - does anyone here have experience with an aquablation procedure to imp...

nyc_son

•6 months ago

3 Replies

Diethystilbestrol

My husband had to stop Pluvicto after 3 treatments due to low hemoglobin and rising PSA.He has now been prescribed 1 mg Diethystilbestrol daily. Is anyone else...

My husband had to stop Pluvicto after 3 treatments due to low hemoglobin and ris...

Katladytoo

•6 months ago

5 Replies

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xtandi beginning to fail?

Seven months ago my PSA was 0.06. Three months ago PSA at my URO’s office was 0.11. I asked him if xtandi was beginning to fail me, he would not give me a...

Seven months ago my PSA was 0.06. Three months ago PSA at my URO’s office was 0...

Echotango51

•6 months ago

7 Replies

Alendronic Acid

Been on A A for just over a year for improving bone met, now recently found that effects of acid and build up are giving me gas and stomach reactions that...

Been on A A for just over a year for improving bone met, now recently found that...

Chrisbaird

•6 months ago

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Looking for advice for my newly diagnosed dad

Hello, I was wondering if you can offer some thoughts on my dad’s situation. He was diagnosed with prostate cancer in February after a week in hospital with...

Hello, I was wondering if you can offer some thoughts on my dad’s situation. He...

Springsunshi

•6 months ago

8 Replies

New insight into combating drug-resistant prostate cancer

https://www.sciencedaily.com/releases/2024/04/240410112742.htm?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter Is there a currently available way...

https://www.sciencedaily.com/releases/2024/04/240410112742.htm?utm_medium=email&...

GeorgeGlass

•6 months ago

2 Replies

What does it mean?

I'm slightly embarrassed to be asking strangers on the internet, but I'm a little frustrated by the lack of information given by the doctors. My dad (63) just...

I'm slightly embarrassed to be asking strangers on the internet, but I'm a littl...

TerribleAtInternet

•6 months ago

4 Replies

What questions should we ask re brachytherapy boost?

Hello, we are trying to get an appointment with a radiation oncologist to ask about brachytherapy boost as a potential alternative to RALP. What questions...

Hello, we are trying to get an appointment with a radiation oncologist to ask ab...

EvFC

•6 months ago

6 Replies

PSA, total

Hello. I know this forum is about advanced prostate cancer. I’m really hoping I’m not there yet. I had a RP June 2023 I just got the results from my forth PSA...

Hello. I know this forum is about advanced prostate cancer. I’m really hoping I’...

Elkguide

•6 months ago

14 Replies

Pain post SBRT

I'm 59 w/ aPC (4+5) and 7 mets - all bone mets. Started on ADT (Firmagon and Nubeqa) in October 2023. Completed 6 cycles of docetaxel 4 wks ago. Started...

I'm 59 w/ aPC (4+5) and 7 mets - all bone mets. Started on ADT (Firmagon and N...

Eggdoc

•6 months ago

5 Replies

Too Many Black Men Dying From Prostate Cancer

No matter what you think about OJ Simpson, you all must agree that too many Black men are dying from prostate cancer. Prostate cancer kills Black men at over...

No matter what you think about OJ Simpson, you all must agree that too many Blac...

Darryl

Partner•6 months ago

4 Replies

Rising ALP and declining PSA

Hello. I am on Xtandi as last ditch effort after Zytiga and Pluvicto eventually failed. After starting I have declining PSA but dramatically rising ALP. Any...

Hello. I am on Xtandi as last ditch effort after Zytiga and Pluvicto eventually...

jersy

•6 months ago

10 Replies

Says RP Better than RT - What to Make of It

https://www.renalandurologynews.com/reports/prostate-cancer-mortality-risk-lower-with-surgery-vs-radiation-for-node-positive-disease/?utm_source=eloqua&utm_medi

https://www.renalandurologynews.com/reports/prostate-cancer-mortality-risk-lower...

ADTMan

•6 months ago

21 Replies

looking for next steps for my young husband

Out of desperation I am writing this -we are looking for nothing short of a miracle. My husband was diagnosed in 2021 at age 45 with Stage 4 Prostate Cancer....

Out of desperation I am writing this -we are looking for nothing short of a mira...

shaunaliz15

•6 months ago

29 Replies

so my fellow shipmates i'll tell you me C story

back in 2021 I had this feeling of dread when my boat was getting hauled out. Will I be sailing next season ?I had spent the summer sailing around...

back in 2021 I had this feeling of dread when my boat was getting haul...

yardsailor

•6 months ago

14 Replies

PSA after one month on lupron

I am 63 with high risk PCa. I was diagnosed with PSA of 30 and Gleason 9 in December. Biopsy and MRI showed all 12 cores malignant with "likelihood of...

I am 63 with high risk PCa. I was diagnosed with PSA of 30 and Gleason 9 in Dece...

CavScout

•6 months ago

42 Replies

ADT IS DONE. NEXT?

Lupron and Zytiga will have completed 2 years of each in June. I've read some continue Lupron for 3 years or longer. How do you know how long to take? Monitor...

Lupron and Zytiga will have completed 2 years of each in June. I've read some c...

rfgh20

•6 months ago

29 Replies

Thank you

Last and not least, I would like to thank everyone on this forum for sharing their wisdom, stories of hope and offering emotional support. I'm sure I will...

Last and not least, I would like to thank everyone on this forum for sharing the...

MyDad76

•6 months ago

5 Replies

My hero is gone

It is with broken heart that I come here to inform, that my hero, my dad, passed away yesterday, April 10th. I was able to take care of him till the end and...

It is with broken heart that I come here to inform, that my hero, my dad, passed...

MyDad76

•6 months ago

30 Replies

QoLing on a Prayer - a year later & PSA update

https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is...

https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14t...

dockam

•6 months ago

23 Replies

R223 - PSA 26 Doubled since February

My husband has had 3 treatments of R223, had to postpone 4th treatment because of flu. On Monday had bloods taken in preparation of 4th treatment on 18th...

My husband has had 3 treatments of R223, had to postpone 4th treatment because o...

Janhpr

•6 months ago

15 Replies

Urinary incontinence in mCRPC

I am looking for help for my 81-year-old father who is mCRPC. He was diagnosed at stage 4 about 18 months ago with mets to 8+ bones including the skull....

I am looking for help for my 81-year-old father who is mCRPC. He was diagnosed a...

lgutman

•6 months ago

7 Replies

Eligard and loss of taste

I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido,...

I have been on Eligard since the end of December 2023 and finished 28 IMRT sessi...

7OaksTom

•6 months ago

1 Reply

Had Davinci RP w/ LNR 8 Reoccurrence in Bed, PSA Rising 0.77 CANNOT Do Radiation active Crohn Disease / Colitis, What about Cryotherapy?

Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node...

Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLN...

Shorehousejam

•6 months ago

11 Replies

Health care coverage for CDNs doing trials in the US

Hello, My husband received an invitation for a trial in the US - we live in Canada. The trial involved a new type PSMA scan. We haven’t received the trial...

Hello, My husband received an invitation for a trial in the US - we live in Can...

EvFC

•6 months ago

22 Replies

Anyone on Nubeqa mono therapy with prostate in place?

wondering if there is anyone on this protocol while still having their prostate in place. What are the side effects and PSA profile? Thank you.

wondering if there is anyone on this protocol while still having their prostate ...

Steel67

•6 months ago

7 Replies

News about AOH1996: I don't have a great feeling but at least things are moving

sounds like they are going sideways with these new molecules derived from aoh1996...enhancing something that is in phase 1 only sounds strange, but maybe it is...

sounds like they are going sideways with these new molecules derived from aoh199...

Maxone73

•6 months ago

9 Replies

Constipation is a known issue with the Orgovyx

I've been on Orgovyx (Relugolix) for around 2.5 years now. and find myself getting increasingly constipated. It's the most tenacious SE. My labs are all stable...

I've been on Orgovyx (Relugolix) for around 2.5 years now. and find myself getti...

NewPotatoCaboose

•6 months ago

18 Replies

Round 3 at Sarah Cannon Research

Good morning everyone, Doing the Keytruda in addition to study drug today All is going well Let’s keep killing those cancer cells 😎

Good morning everyone, Doing the Keytruda in addition to study drug today All ...

Pmann

•6 months ago

5 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for April 2024

Waiting for me to die

Aquablation with APC

Diethystilbestrol

xtandi beginning to fail?

Alendronic Acid

Looking for advice for my newly diagnosed dad

New insight into combating drug-resistant prostate cancer

What does it mean?

What questions should we ask re brachytherapy boost?

PSA, total

Pain post SBRT

Too Many Black Men Dying From Prostate Cancer

Rising ALP and declining PSA

Says RP Better than RT - What to Make of It

looking for next steps for my young husband

so my fellow shipmates i'll tell you me C story

PSA after one month on lupron

ADT IS DONE. NEXT?

Thank you

My hero is gone

QoLing on a Prayer - a year later & PSA update

R223 - PSA 26 Doubled since February

Urinary incontinence in mCRPC

Eligard and loss of taste

Had Davinci RP w/ LNR 8 Reoccurrence in Bed, PSA Rising 0.77 CANNOT Do Radiation active Crohn Disease / Colitis, What about Cryotherapy?

Health care coverage for CDNs doing trials in the US

Anyone on Nubeqa mono therapy with prostate in place?

News about AOH1996: I don't have a great feeling but at least things are moving

Constipation is a known issue with the Orgovyx

Round 3 at Sarah Cannon Research

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