Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,275 members•27,978 posts

All posts for August 2023

how fit can one be on ADT and abiraterone?

I have been on Lupron and abiraterone for less than two months and I have gone from doing 50 consecutive push ips to 10. I am slim on KETO diet but am...

I have been on Lupron and abiraterone for less than two months and I have gone f...

Nowhereman9

•1 year ago

51 Replies

Update post follow up PSMA PET/CT

Just updated my profile to include recent events. In brief, in March 2023 I had a PSMA PET/CT which Dr. Kwon at Mayo clinic somehow got my insurance to pay...

Just updated my profile to include recent events. In brief, in March 2023 I ha...

slpdvmmd

•1 year ago

13 Replies

QOL for ED

Urologists chop us up and leave us impotent and tell us to take pills then walk away. Know what happens when Urologists take Viagra? They get taller.

Urologists chop us up and leave us impotent and tell us to take pills then walk ...

Cancer2x

•1 year ago

22 Replies

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Why Prostate Cancer Kills Black and African American men at a higher rate than White men

https://youtu.be/7SHtjs4EgXU

Darryl

Partner•1 year ago

26 Replies

1st Lupron shot - when do side effects kick in?

I'm bracing myself for the side effects, haha. Wife is going away for a few days and she said when she returns she expects to see me in the kitchen, baking...

I'm bracing myself for the side effects, haha. Wife is going away for a few days...

Hidden

•1 year ago

24 Replies

Screening

How did you discover your psa level that lead to treatment? I was 46, in the best shape of my life (just completed a 3,613 mile bike ride), 6' 2" @ 214# and...

How did you discover your psa level that lead to treatment? I was 46, in the be...

Cyclingrealtor

•1 year ago

27 Replies

Ritilin XR

I've read some good things on this forum from guys using Ritilin to combat fatigue. Most all seem to doing 5mg in morning and 5mg in afternoon as it lasts...

I've read some good things on this forum from guys using Ritilin to combat fatig...

Huzzah1

•1 year ago

7 Replies

jaw discomfort

stage 4 PC bone Mets in pelvis diagnosed at 68yrs old ,now 75 yrs old . Started with firmagon every 28 days and exgiva. After about 2yrs got dead jaw syndrome...

stage 4 PC bone Mets in pelvis diagnosed at 68yrs old ,now 75 yrs old . Started ...

Dannyboy48

•1 year ago

16 Replies

Does triplet Therapy still work if you've failed Enza?

As most posters know the UK doesn't allow for other 'mides' once you've failed Xtandi (as I have done) But I am considering buying Abi from India to add to my...

As most posters know the UK doesn't allow for other 'mides' once you've failed X...

CrocodileShoes

•1 year ago

5 Replies

Continue on Eclipse Trial or not?

After my 3rd LU 177I&T injection my PSA had become nondetectable, and the nuclear bone scans could did not shiw any tumors. Originally had three tumors for...

After my 3rd LU 177I&T injection my PSA had become nondetectable, and the nuc...

SViking

•1 year ago

20 Replies

Into the 4th year, updates and next step

•Aug 2019 Initial diagnosed 4 mets in pelvis area, lymph node involvement. Gleason score 5+5, somatic BRCA 2. Microsatellite stable, TMB 10. Started...

•Aug 2019 Initial diagnosed 4 mets in pelvis area, lymph node involvement. Gl...

Juliane314

•1 year ago

2 Replies

Need help in understanding PSA level recurrence after treatment.

In May 2023 I completed what the doctor hope would be a curative treatment of 38 sessions of radiotherapy accompanied by 2.25 years on Lupron + Zytiga. During...

In May 2023 I completed what the doctor hope would be a curative treatment of 38...

Mascouche

•1 year ago

7 Replies

water fasting benefits short-lived

consult your doctor(s) before trying unusual “treatments” https://www.medscape.com/viewarticle/995473?src=mbl_msp_iphone&ref=text

consult your doctor(s) before trying unusual “treatments” https://www.medscape...

ron_bucher

•1 year ago

4 Replies

Erleada side effects

Would like to hear from those with personal experience that have added Erleada to ADT ( Lupron, Firmagon, Orgovyx). What additional side effects did you...

Would like to hear from those with personal experience that have added Erleada t...

wilcoxsaw

•1 year ago

25 Replies

QOL … how about a fun lighthearted uplifting post about “ manziers “ …

manziers …. Love ‘em ….hate them. Don’t use one , never thought about it ? Most of men here have big man boobs, some of us giant boobs … some have had them...

manziers …. Love ‘em ….hate them. Don’t use one , never thought about it ? Most...

Kaliber

•1 year ago

90 Replies

PSMA Pylarify Test

Finally getting a PSMA Pylarify test after a PSA rise from 0.64 to 0.90 in 11 weeks. Should be interesting. No symptoms from the cancer so far. At the...

Finally getting a PSMA Pylarify test after a PSA rise from 0.64 to 0.90 in 11 we...

Cancer2x

•1 year ago

17 Replies

Intermittent ADT

Hi all,I am wondering what are your views on intermittent ADT? PSMA Pet scan has revealed one met in my ribs...it was treated with SBRT. I was given a 3...

Hi all,I am wondering what are your views on intermittent ADT? PSMA Pet scan h...

John347

•1 year ago

37 Replies

Supplements and self-care

Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding...

Hi everyone, I am new to this site and to this forum. It has been a wealth of i...

StayinAlive8

•1 year ago

20 Replies

Update

For those who have followed me, my pc has taken a backseat to my Glio tumor. I had SBRT and Eligard for my PC in June after my 2 yr vaca and that seems to be...

For those who have followed me, my pc has taken a backseat to my Glio tumor. I ...

PabloK

•1 year ago

20 Replies

MRI scanning could lead to major cut in prostate cancer deaths, finds UK study

Snippits: “The UK prostate cancer mortality rate is twice as high as in countries like the US or Spain because our levels of testing are much lower than...

Snippits: “The UK prostate cancer mortality rate is twice as high as in countr...

PSAed

•1 year ago

4 Replies

One year in.

Hi all, I’m new to the group, stage 4 met — lymph and bone. Pretty scary stuff. Started with Dox which reduced my PSA from 2200(!) to now around 1200. I’m...

Hi all, I’m new to the group, stage 4 met — lymph and bone. Pretty scary stuff...

Arel8

•1 year ago

15 Replies

Bicalutamide shortage?

I’ve been on Bicalutamide 50 mg monotherapy for four years . When I received my last refill for 90 tablets, I was given only 14 tablets and told their supplier...

I’ve been on Bicalutamide 50 mg monotherapy for four years . When I received my ...

Coastguy

•1 year ago

6 Replies

current state of Immuno therapy , how we got here and where we are going - Peter Attia

https://peterattiamd.com/keithflaherty2/?utm_source=podcast-email&utm_medium=email&utm_campaign=230821-pod-keithflaherty2&utm_content=230821-pod-keithflaherty2-

https://peterattiamd.com/keithflaherty2/?utm_source=podcast-email&utm_medium=ema...

Scout4answers

•1 year ago

8 Replies

Pluvicto side effect burning question

I had my first round of Pluvicto 10 days ago and besides fatigue and constipation, my main issue has been burning pee for over a week. Went to the clinic and...

I had my first round of Pluvicto 10 days ago and besides fatigue and constipatio...

Arthur479

•1 year ago

3 Replies

Pluvicto, Not Helping

I just had round 5 of Pluvicto on August 10th. I don't see where is is helping much, if any, at all. My PSA before entering round 5 is now over 400. I'm so...

I just had round 5 of Pluvicto on August 10th. I don't see where is is helping m...

bglendi53

•1 year ago

3 Replies

Medical oncologist and radiology oncologist

Good morning fellow travelers. We are returning to Phoenix Mayo next month for his 3 month visit post RARP. Expecting that husband may be given a treatment...

Good morning fellow travelers. We are returning to Phoenix Mayo next month for...

Lokicliff

•1 year ago

12 Replies

Triplet Therapy

Hi all...had another meeting with Urologist after he presented my case to the Tumor Board. (50yrs old male, gleason 9, 2 mets) The outcome from that is they...

Hi all...had another meeting with Urologist after he presented my case to the Tu...

Yzinger

•1 year ago

26 Replies

Interesting PSA observation

For my prostate cancer journey, please see my bio. In 06/2023 I was also diagnosed with testicle lymphoma, maybe as a side effect of earlier radiation....

For my prostate cancer journey, please see my bio. In 06/2023 I was also diagnos...

Nusch

•1 year ago

9 Replies

Trouble finding 5mg tadalafil (Cialis)

Is it just my pharmacy, or is there a shortage of 5mg generic tadalafil tablets? I've been taking one daily to aid penile blood supply (mostly to reduce or...

Is it just my pharmacy, or is there a shortage of 5mg generic tadalafil tablets?...

Atdabeach

•1 year ago

10 Replies

Orchiectomy

Anyone in this foum had an actual Orchiectomy?I have been thinking about having this done. I'm 78 and I'm or hormone therapy which in chemical castration...

Anyone in this foum had an actual Orchiectomy?I have been thinking about having ...

woppaginny

•1 year ago

47 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for August 2023

how fit can one be on ADT and abiraterone?

Update post follow up PSMA PET/CT

QOL for ED

Why Prostate Cancer Kills Black and African American men at a higher rate than White men

1st Lupron shot - when do side effects kick in?

Screening

Ritilin XR

jaw discomfort

Does triplet Therapy still work if you've failed Enza?

Continue on Eclipse Trial or not?

Into the 4th year, updates and next step

Need help in understanding PSA level recurrence after treatment.

water fasting benefits short-lived

Erleada side effects

QOL … how about a fun lighthearted uplifting post about “ manziers “ …

PSMA Pylarify Test

Intermittent ADT

Supplements and self-care

Update

MRI scanning could lead to major cut in prostate cancer deaths, finds UK study

One year in.

Bicalutamide shortage?

current state of Immuno therapy , how we got here and where we are going - Peter Attia

Pluvicto side effect burning question

Pluvicto, Not Helping

Medical oncologist and radiology oncologist

Triplet Therapy

Interesting PSA observation

Trouble finding 5mg tadalafil (Cialis)

Orchiectomy

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