Medical oncologist and radiology oncologist

[Lokicliff]

Good morning fellow travelers.

We are returning to Phoenix Mayo next month for his 3 month visit post RARP. Expecting that husband may be given a treatment plan that includes ADT and radiation, maybe chemo. Gleason 9, bladder neck and seminal vesicular invasion , N1. My question- if you are receiving your treatment at Phoenix Mayo- whom do you have, and would you recommend your medical oncologist and the radiologist oncologist? We live 5 hours away in southern NM, but will continue travel to get him the best.

thank you

[Tall_Allen]

Consider this clinical trial:

classic.clinicaltrials.gov/...

[Lokicliff in reply to Tall_Allen]

Thank you. Will print off and take with us to the appointment.

[Magnus1964]

I don't know anything about your background how old you are., But would avoid rad6as long as possible, particularly if you husband is younger. The long term side effects are not pleasant.

[Lokicliff in reply to Magnus1964]

Hello, he is 66. Thin, works like a horse on our homestead, and has no other health issues except some osteoarthritis. .

Thank you.

[Magnus1964 in reply to Lokicliff]

He is still fairly young. Avoid radiation as long as possible. The long term side effects are difficult to dead with.

[Hidden]

We see Dr. Bryce at Phoenix Mayo . Highly recommend him . We like all of the radiation oncologist we have seen during my Pluvicto treatments. Best of luck, Tom.

[Lokicliff in reply to Hidden]

Thank you! We are so grateful he was able to get into Mayo. Had extensive back surgery at the Rochester site years ago that no one else would touch, and has had excellent results.

[tallpall]

Dr. Bryce & Dr. Vargas

[DesertDaisy]

My husband's MO is Dr. Alan Bryce. We like him. He has seen Dr. Wong, an RO there, but the advice was not to radiate.

[Lokicliff in reply to DesertDaisy]

If I may ask? What was the rationale for no radiation?

[DesertDaisy]

My husband had one positive lymph node determined after RP. Was given a 6 month Lupron injection right after the RP. PSA remained undetectable until about 5 months ago.

I copied my post from 2 years ago after our meeting with the RO. If I remember correctly, my husband still had not totally healed from the RP and was still experiencing some incontinence. The incontinence did finally resolved.

This is what he told us: We met with the radiologist oncologist at Mayo/Phx this week. He advised that radiation isn't necessary at this point. As a reminder, there was 1 positive lymph node found as a result of the Apr 2021 RP. 11 lymph nodes were removed.

He said he has no way of knowing where the positive lymph node was located and doesn't think it would be beneficial to radiate a larger area than necessary.

His advice is as follows: If and when Dwight's PSA gets up to .2 or .3 (currently undetectable) to see him before receiving another Lupron injection. He said he would most likely want a PSMA pet scan at that point before proceeding to salvage radiation, but there is no reason to scan now, especially while he is still healing from the RP, and to wait for the effects of the Lupron to wear off.

What happened was, my husband's PSA went from undetectable to 6.8 in 3 months.

[j-o-h-n]

We need more info in your bio section...............Helps us and You...Thank you........

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 08/22/2023 4:03 PM DST