Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,447 members • 26,867 posts

All posts for May 2023

The battle is over

Good morning, A week ago my brother aka Savkid passed away. He fought valiantly this cancer for just over 2 years since diagnosis. I am ever grateful that we...

Good morning, A week ago my brother aka Savkid passed away. He fought valiantly...

Hidden

•1 year ago

74 Replies

PC invasive to bladder

Hi,It’s long time since my last post even though I still visit the forum daily. Few week ago my dad took CT scan and the result said the prostate cancer cells...

Hi,It’s long time since my last post even though I still visit the forum daily. ...

Hidden

•1 year ago

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understanding pathology reports

Early on with my cancer diagnosis I had a needle core biopsy of my left hip confirming metastatic carcinoma, favoring prostate as primary . The...

Early on with my cancer diagnosis I had a needle core biopsy of my left hip co...

yardsailor

•1 year ago

2 Replies

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11 months of vacatión and going strong, I think

Hello my fellow brothers. In 11 months of vacatión, my PSA has risen from point one to point seven. Still below one. My testosterone is still a little below...

Hello my fellow brothers. In 11 months of vacatión, my PSA has risen from point ...

CountryJoe

•1 year ago

11 Replies

BM before EBRT

Ok, were all grown ups here, so lets save the jokes for a bit. How do you all guarantee you "clear" out in the AM. My appts are 11.45 AM, so first thing in...

Ok, were all grown ups here, so lets save the jokes for a bit. How do you all g...

Hidden

•1 year ago

15 Replies

Need help explaining my new psma scan please.

This is my new psma scan report. Would you please when you have a chance, share your thoughts about it. Is it a bad report? I am not on any treatments for...

This is my new psma scan report. Would you please when you have a chance, sha...

Ahk1

•1 year ago

23 Replies

AXONICS

Anyone have story on how Axonics has improved their symptoms of strictural pains, leakage, sphincter control, frequency, incomplete emptying, etc..? Thank......

Anyone have story on how Axonics has improved their symptoms of strictural pains...

jraiv1963

•1 year ago

2 Replies

Guantanamo-like torture

That’s how my husband described the MRI he had done yesterday. I’m sure this won’t be his last so, I thought I’d check with the hive mind here to see if anyone...

That’s how my husband described the MRI he had done yesterday. I’m sure this won...

Hidden

•1 year ago

107 Replies

Referrals??

As you may know from my previous posts, I've been considering the estradiol patch, as the side effects of 4 years of ADT are mounting. (Spinal Fracture,...

As you may know from my previous posts, I've been considering the estradiol patc...

Hidden

•1 year ago

21 Replies

Need advice- MO recommending radiation. From the wording in the PSMA scan it sounds like a shot in the dark.

Husband on Erleada since Jan 2022. PSA started rising in Jan.,, again in March (almost doubling in 3 mo). PSMA scan stated “Two foci suspicious for tumor...

Husband on Erleada since Jan 2022. PSA started rising in Jan.,, again in March ...

Jabbs4

•1 year ago

21 Replies

OS effect of patients who don't/can't take a PCa medicine?

I've been on this community for months and not seen anywhere that a lot of patients are irregular medicine takers, and some can't take a medicine due to SE's...

I've been on this community for months and not seen anywhere that a lot of patie...

Derf4223

•1 year ago

33 Replies

ATM and Parp Inhibitor Lynparza

Has anyone had experience with Lynparza and ATM mutation?

DiverDownCA

•1 year ago

6 Replies

Update

I've been watching my PSA since 12/1 RP, while contemplating the next move. A recent PSA result was .173. A Pylarify PSMA PET/CT showed a "small...

I've been watching my PSA since 12/1 RP, while contemplating the next move. A...

SCreader

•1 year ago

5 Replies

Unusual Case

My dad has been called “an anomaly” and today, his doctor said he is shocked regarding my dad’s progression. His doc is reaching out to a friend at Duke but I...

My dad has been called “an anomaly” and today, his doctor said he is shocked reg...

antisocialsocialwrkr

•1 year ago

22 Replies

UPDATE: on Not the News I wanted to Hear

Well I was given my third Pluvicto treatment today.... and when I brought up my rising PSA to two different PA's, I got the same answer... Don't be so...

Well I was given my third Pluvicto treatment today.... and when I brought up my ...

TheWizardofWesley

•1 year ago

10 Replies

Learned a new word today!!!

Multileaf Collimator!! Got my first VMAT dose today!! Took longer to pull my pants down. 5 minutes to position me so the lasers hit my tattoos, less than...

Multileaf Collimator!! Got my first VMAT dose today!! Took longer to pull my...

Hidden

•1 year ago

19 Replies

Hey y'all - I'm doing a PCa 5k in Joliet Illinois in June with an HU APC caregiver

I want to place the names of men taken by d*mn PCa on a back bib, similar to the one in the pic. You may post here or msg me privately Mahalo nui loa 🤙 Rest...

I want to place the names of men taken by d*mn PCa on a back bib, similar to the...

dockam

•1 year ago

28 Replies

Xtandi vs. Biktarby advice needed.

After Zytiga-prednisone-lupron failed, mostly by overwhelming SE from the first two. I received my second Lupron injection last week even though there's a...

After Zytiga-prednisone-lupron failed, mostly by overwhelming SE from the first ...

Blueribbon63

•1 year ago

1 Reply

A pioneering Australian study could help the men most at risk of their cancer spreading and make existing therapies more effective.

Not much detail but promising research....

Scout4answers

•1 year ago

6 Replies

FDA ODAC -Lynparza (olaparib), PARP inhibitor, is only for metastatic castration-resistant PC patients whose tumors have a BRCA mutation.

The FDA Oncologic Drugs Advisory Committee agreed with the agency’s forcefully stated view that Lynparza (olaparib), a PARP inhibitor, should be given only to...

The FDA Oncologic Drugs Advisory Committee agreed with the agency’s forcefully s...

JRPnSD

•1 year ago

2 Replies

Radiation Treatment for Gleason 8 with Rectal Lymph Node

Looking for recommendations and advice....newly diagnosed . I am 67 PSA at annual physical March 1st was 26 then rose to 32 two weeks later with second test....

Looking for recommendations and advice....newly diagnosed . I am 67 PSA at annu...

MustangGuy

•1 year ago

13 Replies

Relay for Life Bakersfield

Hey y'all, one of the AIS Radiation Techs told me about the American Cancer Society Relay on Saturday, I said sure. Didn't know that she had a melanoma removed...

Hey y'all, one of the AIS Radiation Techs told me about the American Cancer Soci...

dockam

•1 year ago

4 Replies

Dead Man Running

Edit:It’s been spoken for, but you can get a copy on Amazon. Book by Kevin Webber about his running obsession and doing marathons daily for several days in...

Edit:It’s been spoken for, but you can get a copy on Amazon. Book by Kevin We...

gsun

•1 year ago

26 Replies

Update On Pluvicto Treatments

So I started on Pluvicto on Feb 13th this year. My PSA at the time was 305. I also started Xtandi a couple of days later. Still getting Lupron shot every...

So I started on Pluvicto on Feb 13th this year. My PSA at the time was 305. I a...

bglendi53

•1 year ago

6 Replies

Stinging/burning near tip of penis when urinating. Also, small brown sediment in urine.

---This has happened for about a week. Because of rising PSA value, will see a new oncologist next week. Radiation therapy 14 years ago, PSA rising...

---This has happened for about a week. Because of rising PSA value, will see a ...

MProust

•1 year ago

6 Replies

Zometa Tips???

After 12 years of surgery, EBRT, ADT1 and ADT2, chemo, SBRT, and completing 6 doses of Pluvicto my PSA is down to 0.10. Other than dealing with persistent...

After 12 years of surgery, EBRT, ADT1 and ADT2, chemo, SBRT, and completing 6 do...

Pwjpp55

•1 year ago

7 Replies

Bill Bixby's Battle with Prostate Cancer

Bill Bixby, an actor known for his "Incredible Hulk" films and many other achievements, died of prostate cancer November 21,1993, having learned that he had...

Bill Bixby, an actor known for his "Incredible Hulk" films and many other achiev...

NecessarilySo

•1 year ago

4 Replies

Cannabidiol and Cannabis Sativa as a potential treatment in vitro prostate cancer cells silenced with RBBp6 and PC3 xenograft

I have been using CBD since before diagnosis. Thought this might be of interest ------------ Mol Biol Rep . 2023 May;50(5):4039-4047. doi:...

I have been using CBD since before diagnosis. Thought this might be of interest...

NewPotatoCaboose

•1 year ago

2 Replies

Gleason Score 5+5

My gleason score is 5+5 =10. I watched Dr.Scholtz's talk who mentioned 5+5 case is rare and I happened to be one of them. My problems are like a full truck and...

My gleason score is 5+5 =10. I watched Dr.Scholtz's talk who mentioned 5+5 case ...

Formosan

•1 year ago

26 Replies

Xtandi (enzalutamide) +ADT slows metastases in recurrent men

We recently saw that ADT+Erleada (apalutamide) slows progression compared to ADT alone....

We recently saw that ADT+Erleada (apalutamide) slows progression compared to ADT...

Tall_Allen

•1 year ago

29 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for May 2023

The battle is over

PC invasive to bladder

understanding pathology reports

11 months of vacatión and going strong, I think

BM before EBRT

Need help explaining my new psma scan please.

AXONICS

Guantanamo-like torture

Referrals??

Need advice- MO recommending radiation. From the wording in the PSMA scan it sounds like a shot in the dark.

OS effect of patients who don't/can't take a PCa medicine?

ATM and Parp Inhibitor Lynparza

Update

Unusual Case

UPDATE: on Not the News I wanted to Hear

Learned a new word today!!!

Hey y'all - I'm doing a PCa 5k in Joliet Illinois in June with an HU APC caregiver

Xtandi vs. Biktarby advice needed.

A pioneering Australian study could help the men most at risk of their cancer spreading and make existing therapies more effective.

FDA ODAC -Lynparza (olaparib), PARP inhibitor, is only for metastatic castration-resistant PC patients whose tumors have a BRCA mutation.

Radiation Treatment for Gleason 8 with Rectal Lymph Node

Relay for Life Bakersfield

Dead Man Running

Update On Pluvicto Treatments

Stinging/burning near tip of penis when urinating. Also, small brown sediment in urine.

Zometa Tips???

Bill Bixby's Battle with Prostate Cancer

Cannabidiol and Cannabis Sativa as a potential treatment in vitro prostate cancer cells silenced with RBBp6 and PC3 xenograft

Gleason Score 5+5

Xtandi (enzalutamide) +ADT slows metastases in recurrent men

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