UPDATE: on Not the News I wanted to Hear

[TheWizardofWesley]

Well I was given my third Pluvicto treatment today.... and when I brought up my rising PSA to two different PA's, I got the same answer... Don't be so concerned about your PSA rising a few points between doses. It is very likely that your PSA running around in your blood is rising.. but the Chemical action of LU-177 s to attach to actual Tumor cells (Uptakes) .. that show up in PSMA PET scans... we will give you another scan and then compare your base line scan with the new one.. and see what and if your Uptakes have changed ie: increased or decreased in size and or new ones show up.. Sooo, if tis is true.. I'm worrying for nothing at this point.. My question is.. are they telling me the truth?? or just keeping me on treatment so thy can obtain more data and bill my insurance 40K a shot...??

I guess the Detective in me questions EVERYTHING..? lol

[tango65]

In general treatments are not changed until there is radiographic progression of the cancer.

Your treatments may be controlling the cancer but not necessarily reducing the cancer load, if your PSA keeps going up.

Consider requesting a PSMA PET/CT, five weeks after this treatment.

[TheWizardofWesley in reply to tango65]

I plan on that.. Thank you

[leebeth]

The protocol at Mayo calls for a PSMA scan after every two Pluvicto treatments, so immediately prior to 3 and 5, and 6 weeks after the 6th. I think that is a great approach, and have been surprised to learn it is not protocol everywhere.

It seems overdue in your case; you need to see what is going on.

[TheWizardofWesley]

Yes I agree and will see whom I can contact at Moffitt to make that happen

[j-o-h-n]

Take it easy.... put away your pipe and magnifying glass and don't be TheDickofWesley...

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 05/09/2023 8:27 PM DST

[TheWizardofWesley in reply to j-o-h-n]

That was funny John... 😁 Ya know I'm a retired detective ...

[j-o-h-n]

You're kidding......I never would have guessed....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 05/10/2023 6:24 AM DST

[j-o-h-n]

BTW I'm a retired Dick myself but not a detective.....Just an average Dick.....

I guess the Detective in me questions EVERYTHING..? lol

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 05/10/2023 6:30 AM DST

[garyjp9]

I know of men whose PSA has gone up during Pluvicto treatments and then plummeted. Sometimes it is the death of cancer cells that causes a rise in PSA.

[TheWizardofWesley in reply to garyjp9]

That would be wonderful.. !