Update: I've been watching my PSA since... - Advanced Prostate...

Advanced Prostate Cancer

22,373 members28,135 posts

Update

SCreader profile image
5 Replies

I've been watching my PSA since 12/1 RP, while contemplating the next move. A recent PSA result was .173. A Pylarify PSMA PET/CT showed a "small metabolically active left presacral LN .7 x .9 cm max SUV 3.1

My RO is recommending 6 months of Orgovyx concurrent with pelvic RT beginning at the same time and asap.

My concerns other than PCa are SEs of bladder issues, urinary incontinence and bowel issues.

Your suggested treatment thoughts please? SOC? How to mitigate SEs? What to ask the RO before or during simulation? RO hasn't provided Gy. What info is prudent to know before I start - Gy? # of treatments? Plan or image of what is going to be radiated?

Written by
SCreader profile image
SCreader
To view profiles and participate in discussions please or .
Read more about...
5 Replies

You will most likely get pelvic fossa with lymph nodes.

Asking about gy was counterproductive in my case, as I was getting VMAT EBRT, and the response was at which position and angle!!!

You say you've had RP? They will work around the bladder and neck. Again depending on the type of EBRT

Today was day 1 of 33 for me, same situation, RP done 4 years ago, now a hot lymph node.

Tall_Allen profile image
Tall_Allen

Here are questions to ask:

prostatecancer.news/2017/12...

Justfor_ profile image
Justfor_

Been there, doing this:

healthunlocked.com/prostate...

jmarsh profile image
jmarsh

Similar to my story. Started Lupron and Abiraterone + prednisone for 4 weeks. Then, i received 33 whole pelvic radiation treatments. I will continue on the drug therapy for at least a total 24 months. I completed radiation 8 months ago. So far, PSA is undetectable. Radiation wasnt that difficult for me but everyone is different. I definitely had more urinary urgency and a little bit of bowel upset, but neither were unmanageable for me. Both returned to normal within a couple weeks after treatment.

Did you not have incontinence after RP? Did you overcome it?

You'll overcome RT, just stay healthy and active!!

Not what you're looking for?

You may also like...

UPDATE AFTER IMRT

Haven't posted in a while, but here's a quick update (My Bio has the full details from diagnosis to...
GMan-62 profile image

Bioquimical recurrence after PRP, rescue radiation and now?

Hello I'm new in this forum. I’m 53 years old. I’m from Spain. PCa gleason 4+3. T2N1MO (1 lymphatic...
anpun profile image

Update on restaging cancer

Took a little time to process MO appt. last Tuesday...no good news. MO very concerned about...
Shamrock46 profile image

Post-SRT/ADT PSA Monitoring

Greetings. I had a radical prostatectomy in 2011 that ultimately failed, with biochemical...

Starting Third Month of Orgovyx--Update

Blood test after two months shows PSA of 1.45, down from 16.5--over a 90% drop. So, the medication...
mababa profile image

Moderation team

Bethishere profile image
BethishereAdministrator
Number6 profile image
Number6Administrator
Darryl profile image
DarrylPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.