Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,076 members • 27,704 posts

All posts for February 2022

Catheter discovery

I have been having intermittent urinary difficulty due to radiation cyctitis and as a result of an ER malpractice. I never know if I will be able to pee will...

I have been having intermittent urinary difficulty due to radiation cyctitis and...

spencoid2

•3 years ago

8 Replies

Non - metastatic (per PSMA-PET ) but high risk due to PSA 61 . Am I hastening CRPC with ADT and Zytiga

Patrick wrote today that when we start ADT the “ clock starts ticking .” I’ve been reading stuff for 14 years so I trust his opinions . Now I also have respect...

Patrick wrote today that when we start ADT the “ clock starts ticking .” I’ve be...

PBnative

•3 years ago

59 Replies

Your views please

How long do you think before stage 4 becomes a manageable chronic disease giving near normal life expectancy using a suite of drugs

How long do you think before stage 4 becomes a manageable chronic disease giving...

Farn

•3 years ago

47 Replies

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Clinical trials with Zytiga

Ok I am not good at research but gave it a shot. Are there any clinical trials ongoing or completed using less than 1,000 mg of Zytiga. as the maximum daily.

Ok I am not good at research but gave it a shot. Are there any clinical trials o...

Parscore

•3 years ago

15 Replies

Supplement for libido enhancement

I have been off of Lupron for about 1 year. I find my libido is still weak and was hoping someone could offer some advice on a supplement that may help me in...

I have been off of Lupron for about 1 year. I find my libido is still weak and ...

Wags4300

•3 years ago

21 Replies

Can't get email

No longer getting email notifications,, anyone else having problems

Joecarver

•3 years ago

1 Reply

For those of you who had radiation, how did you manage nausea if you had it?

My brother is in his 4th week of radiation and since day 2 has been extremely nauseous all of the time, he had the beads implanted in his prostate and is doing...

My brother is in his 4th week of radiation and since day 2 has been extremely na...

Radtech40

•3 years ago

15 Replies

Don't have inmail

Sorry to ask but my e mails have stopped again.

Joecarver

•3 years ago

3 Replies

Suggested MDs for Second Opinions? BCR (recurrence) after primary surgery and adjuvant radiation and ADT w/Zytiga

Hi all, just a brief update and a polite ask for referrals on second opinions for my situation. Here's the short story. I am bio-chemical recurrent (BCR)...

Hi all, just a brief update and a polite ask for referrals on second opinions f...

PGDuan

•3 years ago

10 Replies

how many are on Zytiga and Prednisone ONLY ?

I know some of you have said that you are on Zytiga (Abiriterone) only . Since it is intended to block the AR pathway (Androgen Receptors) it seems like it is...

I know some of you have said that you are on Zytiga (Abiriterone) only . Since ...

Scout4answers

•3 years ago

24 Replies

Colonoscopy and APC - Any issues?

My last colonoscopy was more than 10 years ago. My gastro doc wants me to get one now. My question is whether the procedure will cause any negative effects on...

My last colonoscopy was more than 10 years ago. My gastro doc wants me to get on...

JazzMan42

•3 years ago

14 Replies

Brain metastases

Hi there, asking for your help for my father.Cancer gave us a lot of time keeping my father to not to worry about it (3 years and a half on Zytiga). However,...

Hi there, asking for your help for my father.Cancer gave us a lot of time keepin...

Noel91

•3 years ago

25 Replies

Melatonin suppresses the metastatic potential of osteoblastic prostate cancers by inhibiting integrin α 2 β 1 expression

New study below [1]. "Advanced prostate cancer often develops into bone metastasis, which is characterized by aberrant bone formation with chronic pain and...

New study below [1]. "Advanced prostate cancer often develops into bone metastas...

pjoshea13

•3 years ago

93 Replies

Next step. Some advise please

History: 53 years old now. PCa, gleason 4+3. T2N1MO (1 lymphatic node of 28). Prostatectomy (Da Vinci) in february 2017. Recurrence in December 2019 (psa:0.21...

History: 53 years old now. PCa, gleason 4+3. T2N1MO (1 lymphatic node of 28). Pr...

anpun

•3 years ago

15 Replies

My father is no more

Just wanted to update my father for whom I joined this portal was diagnosed with stage 4 Prostate cancer in 2017 June and went for testical removal followed by...

Just wanted to update my father for whom I joined this portal was diagnosed with...

Kshiprakapoor

•3 years ago

76 Replies

Biden’s quest to lower drug prices should start with the prostate medication Xtandi

My insurance covers all but ~$40. But that's because the Rx Companies want the MO to keep subscribing these meds....

My insurance covers all but ~$40. But that's because the Rx Companies want the M...

de-luke

•3 years ago

5 Replies

PSA results Lupron + Zytiga working beautifully

PSA 6/8/21 - 21.40 took antibiotic (Cipro) for 30 days 7/13/21 - 12.10 9/2/21 started Lupron 11/5/21 - 1.34 11/9/21 started Zytiga 12/15/21 - 0.25 1/13/22 -...

PSA 6/8/21 - 21.40 took antibiotic (Cipro) for 30 days 7/13/21 - 12.10 9/2/21 st...

Scout4answers

•3 years ago

52 Replies

Lupron...Again

Diagnosed fall 2019.... PSA of 12.....Prostate removal Dec. 2019 PSA 2.5 Post surgery , Started lupron 3 weeks after surgery PSA dropped to.17 My Gleason score...

Diagnosed fall 2019.... PSA of 12.....Prostate removal Dec. 2019 PSA 2.5 Post su...

Alex52

•3 years ago

25 Replies

Castration Resistant Stage 4 Advanced Prostate Cancer Therapy Update - Starting EBRT and Xofigo Today

Abiraterone failed after about 6 months. My PSA is back up to 190 and I have a bunch of painful metastases on my ribs, spine and pelvis. I will be going to the...

Abiraterone failed after about 6 months. My PSA is back up to 190 and I have a b...

diamondrn

•3 years ago

16 Replies

Moving along

I have now had 4 straight increases in PSA during the past year, but it is still only 0.52. My latest bone scan shows increased activity in the lower spine and...

I have now had 4 straight increases in PSA during the past year, but it is still...

Dastardly

•3 years ago

13 Replies

Is Nubeqa a suitable substitute for Zytiga?

My PSA has been gradually going up from a low of 0.3 in November to 1.0 currently. My MO wants to start me on Nubeqa in addition to my Orgovyx regimen. He...

My PSA has been gradually going up from a low of 0.3 in November to 1.0 currentl...

Pianodude

•3 years ago

36 Replies

Blood from the umbilical cord of a woman has cured HIV, along with stem cell implant from a first line relative as a bridge. Cancer next!

In August of that year, she received cord blood from a donor with the mutation that blocks H.I.V.’s entry into cells. But it can take about six weeks for cord...

In August of that year, she received cord blood from a donor with the mutation t...

Spyder54

•3 years ago

2 Replies

Has anyone heard of clinical trial NCt05125016

We had visit with oncologist,not good at all. His scrotum has been swollen think it is lympadema from the cancer. PSA over 288!! Alp ok. Doctor said only...

We had visit with oncologist,not good at all. His scrotum has been swollen thin...

Judymin

•3 years ago

6 Replies

Water Retention after #11 and last infusion of Docitaxel ( a rechallenge after the initial in 2018 )on Dec 31 2021

Hi Everyone, Any idea what to do about the water retention in feet, stomach above navel and a lot thick mucous like saliva. Meeting onco tomorrow 17 February...

Hi Everyone, Any idea what to do about the water retention in feet, stomach abov...

Haniff

•3 years ago

23 Replies

Unfortunate News precipitated by rare side effect of Docetaxl

Hi, I am writing here on behalf of my father, @Dokalam2017 who was very active on this forum. He was diagnosed with Stage 4 Prostate cancer in June 2020 and...

Hi, I am writing here on behalf of my father, @Dokalam2017 who was very active o...

doklam2017

•3 years ago

74 Replies

Darolutamide

My husband's Stanford MO would like him to take Darolutamide since it doesn't cross the blood brain barrier thus producing less cognitive side effects. The...

My husband's Stanford MO would like him to take Darolutamide since it doesn't cr...

kick-prostate-cancer

•3 years ago

14 Replies

Another victory for "triplet"therapy for newly diagnosed metastatic men.

Last year, the PEACE1 trial showed that the combination of abiraterone+docetaxel+ADT, all started at the same time, increased survival by over 1 ½ years in men...

Last year, the PEACE1 trial showed that the combination of abiraterone+docetaxel...

Tall_Allen

•3 years ago

72 Replies

Estradiol just won't go down

None of my docs understand how my estradiol remains highly elevated (above 100), My T is next to zero, I am lean, DHT in the normal range, taking 3 mg of...

None of my docs understand how my estradiol remains highly elevated (above 100),...

Arthur479

•3 years ago

11 Replies

Our friend LYN-PARZA

My husband started Lynparza mid January 2022 with a PSA of 238. His PSA is now 73. We hope to remain friends with Lynparza as long as possible. Side...

My husband started Lynparza mid January 2022 with a PSA of 238. His PSA is now...

NotAlwaysSunshine

•3 years ago

11 Replies

Test monthly or three months? Different PSA results from different labs?

Two issues here that might be of interest or help to some, to tackle in the same post. I have always realized there may be variations from lab to lab, but...

Two issues here that might be of interest or help to some, to tackle in the same...

noahware

•3 years ago

39 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for February 2022

Catheter discovery

Non - metastatic (per PSMA-PET ) but high risk due to PSA 61 . Am I hastening CRPC with ADT and Zytiga

Your views please

Clinical trials with Zytiga

Supplement for libido enhancement

Can't get email

For those of you who had radiation, how did you manage nausea if you had it?

Don't have inmail

Suggested MDs for Second Opinions? BCR (recurrence) after primary surgery and adjuvant radiation and ADT w/Zytiga

how many are on Zytiga and Prednisone ONLY ?

Colonoscopy and APC - Any issues?

Brain metastases

Melatonin suppresses the metastatic potential of osteoblastic prostate cancers by inhibiting integrin α 2 β 1 expression

Next step. Some advise please

My father is no more

Biden’s quest to lower drug prices should start with the prostate medication Xtandi

PSA results Lupron + Zytiga working beautifully

Lupron...Again

Castration Resistant Stage 4 Advanced Prostate Cancer Therapy Update - Starting EBRT and Xofigo Today

Moving along

Is Nubeqa a suitable substitute for Zytiga?

Blood from the umbilical cord of a woman has cured HIV, along with stem cell implant from a first line relative as a bridge. Cancer next!

Has anyone heard of clinical trial NCt05125016

Water Retention after #11 and last infusion of Docitaxel ( a rechallenge after the initial in 2018 )on Dec 31 2021

Unfortunate News precipitated by rare side effect of Docetaxl

Darolutamide

Another victory for "triplet"therapy for newly diagnosed metastatic men.

Estradiol just won't go down

Our friend LYN-PARZA

Test monthly or three months? Different PSA results from different labs?

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