Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,056 members • 26,262 posts

All posts for April 2021

Continue Lupron after continuing PSA rise?

We meet with my spouses oncologist on Tuesday. Bill has been on lupron solid for 6 years now. He has had Provenge, Xtandi, Dosetaxel, Cabazitaxel and all...

We meet with my spouses oncologist on Tuesday. Bill has been on lupron solid for...

NWLiving

•3 years ago

14 Replies

Latest Axumin scan after 6 Taxotere sessions to rechallenge the PCa after I had 15 in 2015

Hey gang, just heard from the Kaiser MO and the two 1 cm iliac lymph nodes have resolved. The left to 7mm with minimal uptake and the right is normal💙✌️ Plan...

Hey gang, just heard from the Kaiser MO and the two 1 cm iliac lymph nodes have ...

dockam

•3 years ago

17 Replies

Any benefit to RP given likely extracapsular extension

My 70 year old father is currently on ADT since March after gleason 9 diagnosis, awaiting IMRT likely starting in June (details in profile). His MRI tests...

My 70 year old father is currently on ADT since March after gleason 9 diagnosis,...

mooman80

•3 years ago

19 Replies

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Who did you see after Dr. Amato passed away?

For patients of Dr. Amato (Houston, TX), have you found a replacement and if so can you share here if you have been able to find anyone as good or close to him...

For patients of Dr. Amato (Houston, TX), have you found a replacement and if so ...

Cmdrdata

•3 years ago

4 Replies

improved catheter

I have been having great difficulty urinating and most recently it has become scary. I live in the middle of nowhere, a trip to a competent hospital is 2 hours...

I have been having great difficulty urinating and most recently it has become sc...

spencoid2

•3 years ago

12 Replies

Has anyone done Radio Frequency Thermal Ablation of the nostril?

My nostrils started blocking and congested at nights for the past two months. The side I will be sleeping on, will be the nostril that will be blocked and...

My nostrils started blocking and congested at nights for the past two months. T...

kcareer

•3 years ago

13 Replies

Phase 3

Hi all... Much love to you. I've taken so much advice from you. So much love. It helps, it truly does. Brian's 2nd oral medication Xtandi stopped...

Hi all... Much love to you. I've taken so much advice from you. So much love....

Brbnbrn

•3 years ago

13 Replies

TRIMIX, ED PILLS, ETC

Has anyone said screw all this ED crap and strapped on a dildo?

spkinva

•3 years ago

26 Replies

Whole pelvic salvage radiation after positive lymph nodes have been found - clinical trial

I updated this article to mention that a major Phase 3 randomized clinical trial (INNOVATE) in 141 locations will determine whether intensifying the hormonal...

I updated this article to mention that a major Phase 3 randomized clinical tria...

Tall_Allen

•3 years ago

34 Replies

How's It Going With Darolutamide?

I've been taking it for three weeks; no results yet, no side effects. I notice that on Posts from a year ago, two people were taking it, or were about to....

I've been taking it for three weeks; no results yet, no side effects. I notice...

yeatz

•3 years ago

3 Replies

Hello Everybody!

Hey there! 62yo male. Breast cancer in 2008. Right breast mastectomy, chemo and radiation. I thought I was all done with cancer however cancer wasn't done with...

Hey there! 62yo male. Breast cancer in 2008. Right breast mastectomy, chemo and ...

3Chordsandthetruth

•3 years ago

20 Replies

Is a call from your oncologist on Sunday morning ever good news??

Two months in a row now, as results come in, I have received a call from my oncologist on Sunday. PSA up another 33%- Alk/phos highest in 4 years--A steady...

Two months in a row now, as results come in, I have received a call from my onco...

Shooter1

•3 years ago

27 Replies

What to do when in remission?

PSA now at >0.1 and T > 10 after seven months after four trips to University of Heidelberg and no ADT besides Dutasteride and Finasteride what can be done to...

PSA now at >0.1 and T > 10 after seven months after four trips to University of ...

lewicki

•3 years ago

57 Replies

Newbie. Good day to all!

Live from Austin,Texas, and some days I even feel alive. Others, not so much. New to this forum. I mostly listen. I give no advice unless it‘s asked for....

Live from Austin,Texas, and some days I even feel alive. Others, not so much. Ne...

Fastingguy

•3 years ago

12 Replies

Is ACV good for prostate cancer ?

Sorry I am new to this site and cannot find if this subject was talked about before Alan

Sorry I am new to this site and cannot find if this subject was talked about bef...

Raminagrobis

•3 years ago

2 Replies

HIGH AST/ALT

Husbands ALT/AST has gone high again after 2 years on Zytiga , 3.5 years on ADT and Prednisone , PSA is great 0.1 . Blood draw again on Tuesday and if it is...

Husbands ALT/AST has gone high again after 2 years on Zytiga , 3.5 years on ADT...

Hatecancer1

•3 years ago

7 Replies

Update and a question

Hi again team! Loving this group! Have a question- after speaking to another oncologist (will still get a more formal 2nd opinion at MD Anderson)- he suggested...

Hi again team! Loving this group! Have a question- after speaking to another onc...

acuphealing

•3 years ago

6 Replies

Break after only 12 months of Eligard.

Three months after my radical prostatectomy, I had a PSA of 0.22 and three months later, 0.21. My oncologist then started me on an 18-month Eligard treatment....

Three months after my radical prostatectomy, I had a PSA of 0.22 and three month...

Cramlingtonboy

•3 years ago

19 Replies

Any options left?

Hey group, I come asking about options that my family may not be aware of, or that our doctor may not have presented us with. To give everyone a brief...

Hey group, I come asking about options that my family may not be aware of, or th...

lsteacke

•3 years ago

32 Replies

Thinking About “Median Survival” in Clinical Trials.

As many of us do, I spend time looking at various phase 3 trials on prostate cancer. As I’m also sure most do, I focus on the median life expectancy for those...

As many of us do, I spend time looking at various phase 3 trials on prostate can...

Schwah

•3 years ago

36 Replies

Stimulants for ADT fatigue?

Has anyone tried Ritalin (methylphenidate) or some similar stimulant for ADT fatigue? Doing some research last night, I found another bulletin board where...

Has anyone tried Ritalin (methylphenidate) or some similar stimulant for ADT fat...

A0007720

•3 years ago

30 Replies

Firmagon (Degarelix) injections - my nurse's tricks

One fellow here had reported problems at his injection site, due to Firmagon (Degarelix). I have these injections monthly in my stomach area, and I don't have...

One fellow here had reported problems at his injection site, due to Firmagon (De...

A0007720

•3 years ago

16 Replies

Laetrile, Vitamin B-17, Apricot seeds ? Revisit from late 1970’s

Has anyone worked with Laetrile? Vitamin B-17? Apricot seeds? I have just read a book “Alive & Well” by Dr Phillip Binzel. The premise is Laetrile breaks down...

Has anyone worked with Laetrile? Vitamin B-17? Apricot seeds? I have just read a...

Spyder54

•3 years ago

50 Replies

ALP vs Bone Specific ALP

Hi everyone. This is a question based on my previous post; I have now been informed that the NHS will monitor his ALP as standard and that he will be able to...

Hi everyone. This is a question based on my previous post; I have now been infor...

Hillwalker87

•3 years ago

9 Replies

PSA going down--Orchiectomy surgery?

Hello, My PSA started out at 82.2 and after my first injection of Firmagon, a month later my PSA went to 5.45--Which I am rejoicing and happy about. I am a...

Hello, My PSA started out at 82.2 and after my first injection of Firmagon, a mo...

JD-guy

•3 years ago

21 Replies

Lymph’s nodes relapse

Good morning I am writing on behalf of a friend who doesn’t speak English to get some advice. My friend has been diagnosed 4 years ago with agressive localisée...

Good morning I am writing on behalf of a friend who doesn’t speak English to get...

Johnko

•3 years ago

3 Replies

Melatonin RCTs

I looked at RCTs on clinicaltrials.gov and melatonin supplementation appears to result in slight, but to me significant, sleep improvements. Latency decreases...

I looked at RCTs on clinicaltrials.gov and melatonin supplementation appears to ...

Hidden

•3 years ago

15 Replies

Need Help Interpreting Results

Hello all, My husband (GL 9, several bone mets-diagnosed 8/19-Casodex, Eligard, Zytiga/prednisone, plus radiation) had a bone scan today, along with routine...

Hello all, My husband (GL 9, several bone mets-diagnosed 8/19-Casodex, Eligard, ...

Dett

•3 years ago

12 Replies

Emodin, an extract from rhubarb. One I've not come across in relation to PCa before

Emodin: Its role in prostate cancer‑associated inflammation (Review) Authors: Yanjie Tu Zhonghua Wu Bo Tan Aidong Yang Zhaoqin Fang View Affiliations Published...

Emodin: Its role in prostate cancer‑associated inflammation (Review) Authors: Ya...

Graham49

•3 years ago

2 Replies

Reducing zytiga dose

Hi, my full story is in my profile, but a recap: 10 years ago, prostate removed; then radiation; then Lupron. Recent events: Became ADT resistant, mets in...

Hi, my full story is in my profile, but a recap: 10 years ago, prostate removed;...

CharlieBC

•3 years ago

22 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for April 2021

Continue Lupron after continuing PSA rise?

Latest Axumin scan after 6 Taxotere sessions to rechallenge the PCa after I had 15 in 2015

Any benefit to RP given likely extracapsular extension

Who did you see after Dr. Amato passed away?

improved catheter

Has anyone done Radio Frequency Thermal Ablation of the nostril?

Phase 3

TRIMIX, ED PILLS, ETC

Whole pelvic salvage radiation after positive lymph nodes have been found - clinical trial

How's It Going With Darolutamide?

Hello Everybody!

Is a call from your oncologist on Sunday morning ever good news??

What to do when in remission?

Newbie. Good day to all!

Is ACV good for prostate cancer ?

HIGH AST/ALT

Update and a question

Break after only 12 months of Eligard.

Any options left?

Thinking About “Median Survival” in Clinical Trials.

Stimulants for ADT fatigue?

Firmagon (Degarelix) injections - my nurse's tricks

Laetrile, Vitamin B-17, Apricot seeds ? Revisit from late 1970’s

ALP vs Bone Specific ALP

PSA going down--Orchiectomy surgery?

Lymph’s nodes relapse

Melatonin RCTs

Need Help Interpreting Results

Emodin, an extract from rhubarb. One I've not come across in relation to PCa before

Reducing zytiga dose

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