Is a call from your oncologist on Sun... - Advanced Prostate...

Advanced Prostate Cancer

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Is a call from your oncologist on Sunday morning ever good news??

Shooter1 profile image
27 Replies

Two months in a row now, as results come in, I have received a call from my oncologist on Sunday. PSA up another 33%- Alk/phos highest in 4 years--A steady climb for both for the last 4 months. Another blood test next month and meeting face to face to discuss where we go from here. Wish me luck.

Best wishes to all my brothers here.

Doug

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Shooter1 profile image
Shooter1
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27 Replies
noirhole profile image
noirhole

Well at least he is touching base directly and has more time to discuss options and not rushed as on the week day. I usually see a PA when everything is going well and then I see an appointment with the doc and think Oh Sh*t! But last week it was good. Hope you find a treatment that you respond to well. Good luck and happy spring.

Lika-g profile image
Lika-g

Are you still on two Xtandi pills?

Shooter1 profile image
Shooter1 in reply toLika-g

Yes, until something better comes along.. Next scans may show something to address.

MrCatMan profile image
MrCatMan in reply toShooter1

Hoping for a turn. I’m on 4 Xtandi at 40 mg. Just started after chemo. $$$$ insurance pays but it’s scary to me.

EdBar profile image
EdBar in reply toShooter1

Any thoughts on bumping up Xtandi dose to see if there is any effect? I’m was on 2, had been for a couple of years until recently when PSA became detectable again. I bumped it up to 3 to see if it helps, MO said to leave at 2 but I’m doing a little experiment on myself. My last PSA after being on 3 for about 3 weeks was stable actually slightly lower, we’ll see what the next test brings in a week or so after almost 2 months at 3 pills. I’ve been on Xtandi for almost 6 years now, started at 4 and reduced to 2 a couple years ago.

Ed

I wouldn't answer, F all that.

Dam ! call me on a Monday with that news. I’m sorry Doug . Thats hard to hear my friend. It’s not like you haven’t already suffered enough . May God have mercy on us all ! 🙏

Shooter1 profile image
Shooter1 in reply to

Great visit this Monday. Hope for face time latter this summer. Still upbeat and have 6 more years on my 10 yr plan.Doug.

in reply toShooter1

Tell St. Peter , I can’t go, I owe my soul to the company store..

Lettuce231 profile image
Lettuce231

We definitely do wish you luck, it's not the sort of news any of us would want to hear.

Keep fighting !

Haniff profile image
Haniff

Sending Lady Luck to you and all my best wishes 👌

Stay strong 💪 you can handle this 👍

Haniff

2dee profile image
2dee

Keep kickin, scratchin and clawing. Don't ever give in to the bastard.2Dee

Bodysculpture profile image
Bodysculpture

Wishing you all the best Shooter Stay positive

Two-oceans profile image
Two-oceans

Don't give in to the beast. We all need to fight the best we can. Good luck!

OldFart81 profile image
OldFart81

And to you, Doug. Be well. Be safe.

Magnus1964 profile image
Magnus1964

Good luck. I just wanted to let you know I got a call from my uro on a Saturday night. I was in a restaurant with friends. There I was running for the door cell phone in hand.

spouse21 profile image
spouse21

Sorry about the phone call timing, Shooter, and the possible bad news that came with it. You've already had so much treatment, dang it. Keep us in the loop about what's next.

j-o-h-n profile image
j-o-h-n

Doctor was bored and didn't have anything to do.... so he called you.... Take it easy and humor him by taking his call.....

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 04/26/2021 7:52 PM DST

Shooter1 profile image
Shooter1 in reply toj-o-h-n

Missed it, but he was on call so I pestered him.

Spyder54 profile image
Spyder54

Best of luck Doug. I have read what you hv endured. Sometimes a little tweak may cause the change for positive you need. Best, Mike K

St Pete, FL

Mikes21 profile image
Mikes21

Wow I feel for you. I just did a ct scan on Saturday and I figure if it was bad I would hear by now. This is 6 months after I had a good ct and 3 months after a good ultrasound so I’m praying my meet up with the oncologist this Thursday is good and they draw my psa.

Mikes21 profile image
Mikes21

Stay positive and I’m praying for you too brother🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻👍🏻

Shooter1 profile image
Shooter1 in reply toMikes21

Hey, I can't give up. I still have 6 years to go on my 10 year plan. Wouldn't want to waste the time I'm supposed to enjoy my rebuilt thumb, orchiectomy, left little finger surgical repair and all the new skin on my right arm (skin grafts). +++my new grandson from my dead son. Life is still good!!\

Doug

PS --All prayers welcome,Thanks

Mikes21 profile image
Mikes21

That’s the spirit. Prayers coming your way.🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

dublin1717 profile image
dublin1717

Any update on you shooter..... how are you doing?????

Shooter1 profile image
Shooter1 in reply todublin1717

Well, today I got full report form ctc and cdna testing.. Only 0.48% mutations in my tumor cells and nothing actionable. Not good news, but not bad news either. Axium scan this Thursday and blood tests and meeting with MO on 7th and 8th. Hope to know a lot more then. Stay tuned, I will be posting as I find out. Got steroid injection today in left hand for bone to bone pain in wrist. It helps for 6 weeks to 3 mo.. Can fuse bones, but recovery time is long and I've already had a bone pulled out and a joint built with a tendon "harvested" from my fore arm. Haven't decided if surgery fits into my 5 1/2 year plan. For now life is good.

PS> Last PSA up another 84%. Nice steep curve I've got going there.

dublin1717 profile image
dublin1717

All my best wishes to you shooter. ☘️

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