PSA now at >0.1 and T > 10 after seven months after four trips to University of Heidelberg and no ADT besides Dutasteride and Finasteride what can be done to keep the demon from awakening? Provenge, Bicalutemide, and supplements. Supplements are hard to choose since there are so many and costly.
Is there such a thing as top of the list for supplements.
For T to stay low is a disappointment and a blessing. I think.
Urologist and ONC suggests going off Dutasteride and Finasteride.
Will discuss doing so next visits.
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lewicki
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As far as ADT I am seeking a vacation. Perhaps a bad idea. Onco says at age 8o off ADT and enjoy the next 10 years. I really need a new one. Urologist even suggested no dutasteride and no finasteride. I still have the gland and only other treatment to it was transurethral hyperthermia in Germany. Gland is very small and no lumps.
I would just take 150 mg of Bicalutamide plus Tamoxifen and observe the PSA value. My doctors told me to stop ADT as well and it did not take long and I got a recurrence.
I would consider Bicalutamide as ADT "light". It has far less side effects than Lupron. Main side effect is breast enlargement and this can be avoided with Tamoxifen.
If you take Bicalutamide, the time to recurrence will be significantly extended. I would estimate the time will be doubled. A nuclear doctor told me, the patients recur in about a year's time or earlier.
I’ve been in remission five years . Still taking adt plus I did the orch .
I was in remission if you want to call it that, (I always called it dormancy, some call it senescence) for about 6 years but never strayed from taking my usual regimen of ADT drugs. In year four of remission I stopped taking Xtandi per my MO due to SE’s and PSA became detectable again so back on it I went at a reduced dose and back to undetectable until recently at the 7 year mark. My docs always gave me the choice of going off ADT for a while but at the same time they said if it were them and it’s working they wouldn’t mess with it. So I stayed on ADT. Your docs may be thinking at your age you’d enjoy a break. If I was 80 I might consider it but I’m much younger. If you decide to go off ADT entirely just have a plan on what your gonna do at what PSA level if it starts to rise. You may also just want to just stay on dutasteride, since the SE’s are very minimal. Good luck and congrats.
No not at all my Doctor said that's when its best for men in our condition. It was totally covered by Medicare and I had very little side effects. Make sure you go to the bathroom before the lukipricia don't think I spelled that rite which is the first part. Leo
Not to be a downer, but I've had 2 ADT holidays...with PSA undetectable one lasting 9 months, the other 11 months. Once the T started rising, so did the PSA. I did everything I could to keep it from coming back (COC Protocol, 2 months high dose Vit C IV therapy, a host of supplements, plant based diet, exercise, daily celery juice and broccoli sprouts, acupuncture, etc) both times it's slowly cone back. I am currently just on ADT and PSA has dropped to .07 after the 3rd Lupron shot. I will most likely continue my same pattern which is 1 year on ADT, 1 year off. On the off year, I detox as much as possible as I think getting the hormones out of my system is paramount to me staying castrate sensitive. Hope you stay undetectable!
Diagnosed Jan 2016. I was 46. Stage 4 Gleason 8-9. Restaged to Gleason 7. Not sure why... but wasn't complaining. Prostate removed (divinchy) then did lymph remove surgery 6 months later. Germany for a 1 month of treatment and then came home and did chemo, ADT and radiation.
I'm glad to hear you are doing well and staying castrate sensitive. I was 55 and diagnosed stage 4, Gleason 9. I am approaching 3 years, still castrate sensitive and doing well.
I think you mean "<" instead of ">". Regardless, drink vegetable juice (low sodium) or tomato juice, or gac juice for lycopenes. Or lycopene pills. Watch your PSA like a hawk.
-I drink V8 low sodium but there are others. A good one is Gac juice. Gac has 100 times the lycopene in tomatoes. Tomato juice is high sodium...bad for hypertension. One type of Gac juice , available on Amazon, (Pharmanex) is blended with pineapple and other juices but I estimate that it has lycopenes equal to that of V8. Lycopenes enter the bloodstream with oil like vitamins. I like to eat a few potato chips with 1/4 ounce four times per day. It enlists or increases T-cells which kill cancer cells and other harmful things like pesticides. It slows aging. I find it causes my prostate cancer pain to go away temporarily , about four to six hours. after consuming. Same with cooked tomato products like juice, sauce, paste, early girl tomatoes grown in my garden. I use v8 juice for spaghetti sauce, mixed with garlic, onion, jalepenos, and ground veggie meat. I avoid red meat. Beyond Meat and Morningstar Farms Grillers Prime patties are my favs. Shrimp coctail sauce, Taco sauce, tomato based barbecue sauce and catsup are good to have on the shelf, I eat catsup daily, mixed with miracle whip for salad dressing or on french fries or fried potatoes.or on Impossible burgers or beyond meat burgers or Grillers Prime. The more the better, to a limit. Also there are lycopene pills. I am testing them. Not conclusive yet but harmless. I put on fried potatoes, in spaghetti sauce. Just open the 50mg pill and sprinkle it with black pepper, tumeric, paprika, etc.
I'm at a psa of 1.0 It went down .1 from 6 weeks ago. I was undetectable for 8 mos last year after radiation to the prostate and radiotherapy to the bone. Psa is creeping up ever so slowly but not in a straight line. I'm about your age, had orch last week so I'm done with lupron. My MO has me scheduled for scans in June and if there are any visible mets, he is recommending provenge.
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