Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,056 members • 26,262 posts

All posts for March 2021

Appetite

After taking Lynparza for a few months my appetite is gone and I've lost 56 pounds. Sometimes I can't even stand to smell or look at food. Docs gave me meds to...

After taking Lynparza for a few months my appetite is gone and I've lost 56 poun...

pcfred

•3 years ago

25 Replies

Question for those in similar situation

My friend just got diagnosed with T4 prostate cancer psa 910. Bone scans and CT show it has spread everywhere, bones, lymph nodes, back, hip, lungs. Anyone...

My friend just got diagnosed with T4 prostate cancer psa 910. Bone scans and CT ...

LVRob129

•3 years ago

20 Replies

Psa

Should your psa be zero on lupron and Zytiga or is .22 for a few months in row ok - my psa after lupron the first time went to less than .01

Should your psa be zero on lupron and Zytiga or is .22 for a few months in row o...

Chris52981

•3 years ago

7 Replies

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Xtandi not working but Dr says stay on it?????

Xtandi worked well for about 15 months but stopped --- DR ( MO ) now put me on monthly injections of lupron. Makes no sense to me and doing both has me really...

Xtandi worked well for about 15 months but stopped --- DR ( MO ) now put me on m...

ken12491

•3 years ago

37 Replies

The risks of Bipolar Androgen Therapy (BAT)

It worries me that some patients seem to be looking a BAT through rose-colored glasses, and pressuring their doctors to do it off-trial. I've been following...

It worries me that some patients seem to be looking a BAT through rose-colored g...

Tall_Allen

•3 years ago

126 Replies

Does anyone know if orgovyx can be stopped and Firmagon be restarted seamlessly?

My husband’s doctor has suggested he switch from Firmagon to orgovyx. He was due for a Firmagon dose yesterday. PSA is at 0.12. We are not sure what the copay...

My husband’s doctor has suggested he switch from Firmagon to orgovyx. He was due...

SuppWife

•3 years ago

17 Replies

BiTE Clinical Trial

Hello! My husband will be entering this clinical trial, in the arm testing the dosing of a combination of AMG-160 and AMG-404, two targeted immunotherapies....

Hello! My husband will be entering this clinical trial, in the arm testing the d...

Indigo33

•3 years ago

20 Replies

Has anyone ever had a change in the effect of Prednisone before?

It seems to be no longer making me into an eating machine. Since I've had cancer for 3 1/2 years I've been very fortunate enough to almost zero effects from...

It seems to be no longer making me into an eating machine. Since I've had can...

FinalBossMatt

•3 years ago

6 Replies

Cancer Research

A study published in @SciReports finds that cancer patients experiencing different levels of fatigue can have distinct gut microbiome compositions....

A study published in @SciReports finds that cancer patients experiencing differe...

Rahul_Patel

•3 years ago

3 Replies

Your covid prevention tip?

Good day, just wondering what you are doing to prevent yourself from catching the virus? Of course mask and social distancing is a given, but what supplements...

Good day, just wondering what you are doing to prevent yourself from catching th...

harleyharhar

•3 years ago

18 Replies

Is olive oil bad if under androgen deprivation treatment?

Good day to all, my father is under zoladex and we just had spaghetti that has a generous amount of pure olive oil, not the extra virgin one, so it just made...

Good day to all, my father is under zoladex and we just had spaghetti that has a...

harleyharhar

•3 years ago

16 Replies

Should I be concerned my doctor thinks Snuffy is with the VA not Virginia and Dr. Dattoli does radiation at the VA in Sarasota

James Cancer Center

westerville

•3 years ago

23 Replies

Scans

Does a PSMA GA68 Pet-CT scan accomplish everything traditional Bone and CT scans do or do the bone and CT scans provide info you don’t get from the PSMA scan?...

Does a PSMA GA68 Pet-CT scan accomplish everything traditional Bone and CT scans...

6357axbz

•3 years ago

40 Replies

The final end of the battle.

After 26 months my husband passed on March 8. He was first diagnosed in Jan. 2019 with Gleason score of 9(5+4) and PSA 15. It had already metastasized to the...

After 26 months my husband passed on March 8. He was first diagnosed in Jan. 20...

oilcan4

•3 years ago

93 Replies

Chelation therapy

Has anyone heard of or had chelation IV therapy for prostate cancer? Not in lieu of SOC but as supplemental? Schwah

Has anyone heard of or had chelation IV therapy for prostate cancer? Not in li...

Schwah

•3 years ago

11 Replies

BAT - Reversing the effects of ADT in men with metastatic CRPC.

New study below [1]. "Bipolar androgen therapy (BAT) is the cyclic administration of high dose testosterone as a novel treatment for metastatic castration...

New study below [1]. "Bipolar androgen therapy (BAT) is the cyclic administratio...

pjoshea13

•3 years ago

48 Replies

Radiofrequency ablation provided rapid and durable pain relief for patients with cancer and bone metastases

possible for Pca? "Researchers enrolled 218 cancer patients at 15 sites, who presented with breast, lung and kidney cancers and lytic metastasis. The 59...

possible for Pca? "Researchers enrolled 218 cancer patients at 15 sites, who p...

snoraste

•3 years ago

1 Reply

What next? Abiraterone->Docetaxel->Cabazitaxel-> ?

We r from India, New joinee to this group, looking for suggestions from great worriers or experts as per their exp/knowledge. 1.what could be the other options...

We r from India, New joinee to this group, looking for suggestions from great wo...

pka21

•3 years ago

6 Replies

Does Genomic Testing Help Black Men?

Does Genomic Testing Help Black Men? https://youtu.be/bFfxW8LE9lw

Darryl

Partner•3 years ago

1 Reply

Where have you gone Joe testosterone?

In November of 2019 my testosterone level was 409 even after a robotic prostatectomy 4 months earlier. Then I began a year of ADT therapy that included 37...

In November of 2019 my testosterone level was 409 even after a robotic prostatec...

Rockybullwinkle

•3 years ago

30 Replies

Novartis says Lu-PSMA-617 therapy improves Prostate Cancer Survival

https://www.thetelegram.com/news/world/novartis-radioligand-therapy-improves-prostate-cancer-survival-566974/

https://www.thetelegram.com/news/world/novartis-radioligand-therapy-improves-pro...

dexy1234

•3 years ago

2 Replies

News after (+-) 6 months of end of Chemo

Good morning, everyone. I come back to talk about my father. Yesterday he had another appointment with an oncologist at the public hospital where he does the...

Good morning, everyone. I come back to talk about my father. Yesterday he had an...

JNunes

•3 years ago

13 Replies

What’s ideal dose of dexamethesone when we are doing steroid switch

What’s ideal does of dexamethesone when we are doing steroid switch after abiraterone stopped working right no taking dexamethesone 0.5 after steroid switch...

What’s ideal does of dexamethesone when we are doing steroid switch after abirat...

Nirman

•3 years ago

15 Replies

News From Me

Hi everyone, I know I am really quiet here. I haven't read any posts recently as I have been very busy creating the programme "Living with loss", a 6-months...

Hi everyone, I know I am really quiet here. I haven't read any posts recently a...

MelaniePaul

•3 years ago

11 Replies

NEWS RELEASE 22-MAR-2021Prostate cancer uses metabolic switch to thrive after hormone therapy

https://www.eurekalert.org/pub_releases/2021-03/dumc-pcu031821.php

Ramp7

•3 years ago

4 Replies

Brachytherapy

Brachytherapy Considering permanent seed implants. It's recommended that baby's and pregnant women not be close to the patient to be safe, until the radiation...

Brachytherapy Considering permanent seed implants. It's recommended that baby's...

middlejoel

•3 years ago

17 Replies

Followup MRI post PSMA scan, tumor near bladder neck?

Last month PSMA scan reported "intense uptake left/posterior aspect of bladder in surgical bed", MRI ordered by RO reported yesterday "0.8 cm nodule in the...

Last month PSMA scan reported "intense uptake left/posterior aspect of bladder i...

jjpeabody

•3 years ago

21 Replies

COVID-19, FEMA - funeral expenses.

If you know of anyone who had a family member pass away from COVID-19, FEMA will provide up to $7,000.00 to reimburse funeral expenses for deaths that occurred...

If you know of anyone who had a family member pass away from COVID-19, FEMA will...

j-o-h-n

•3 years ago

20 Replies

After 2 years and 8 month vacation PSA back up 0.3 what now?

Here we go again. My husband was diagnosed Nov 2010. In all this years the treatments were Prostatectomy, 37 radiations to prostate bed, Adt, Zytiga, 6 rounds...

Here we go again. My husband was diagnosed Nov 2010. In all this years the treat...

Chiquis

•3 years ago

16 Replies

Higher AST and ALT levels, from Covid vaccine nanoparticles or from Orgovyx ADT pills, or both

I got results of my AST and ALT this week and they were higher than they have ever been, on the high end of normal- 36 and 34, but they are usually in the mid...

I got results of my AST and ALT this week and they were higher than they have ev...

GeorgeGlass

•3 years ago

17 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for March 2021

Appetite

Question for those in similar situation

Psa

Xtandi not working but Dr says stay on it?????

The risks of Bipolar Androgen Therapy (BAT)

Does anyone know if orgovyx can be stopped and Firmagon be restarted seamlessly?

BiTE Clinical Trial

Has anyone ever had a change in the effect of Prednisone before?

Cancer Research

Your covid prevention tip?

Is olive oil bad if under androgen deprivation treatment?

Should I be concerned my doctor thinks Snuffy is with the VA not Virginia and Dr. Dattoli does radiation at the VA in Sarasota

Scans

The final end of the battle.

Chelation therapy

BAT - Reversing the effects of ADT in men with metastatic CRPC.

Radiofrequency ablation provided rapid and durable pain relief for patients with cancer and bone metastases

What next? Abiraterone->Docetaxel->Cabazitaxel-> ?

Does Genomic Testing Help Black Men?

Where have you gone Joe testosterone?

Novartis says Lu-PSMA-617 therapy improves Prostate Cancer Survival

News after (+-) 6 months of end of Chemo

What’s ideal dose of dexamethesone when we are doing steroid switch

News From Me

NEWS RELEASE 22-MAR-2021Prostate cancer uses metabolic switch to thrive after hormone therapy

Brachytherapy

Followup MRI post PSMA scan, tumor near bladder neck?

COVID-19, FEMA - funeral expenses.

After 2 years and 8 month vacation PSA back up 0.3 what now?

Higher AST and ALT levels, from Covid vaccine nanoparticles or from Orgovyx ADT pills, or both

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