Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,442 members • 26,861 posts

All posts for November 2019

I rang the bell!

Finished the Radiation Therapy! I've made friends with all the girls (and guys, but they weren't so interested in selfies) in the department - we've had lots...

Finished the Radiation Therapy! I've made friends with all the girls (and guys,...

GranPaSmurf

•5 years ago

14 Replies

Incredible loss of strength on limited ADT

This is my second post, I ask for your opinions. In 2013 I was going to do radiation for a Gleason 9, so I went on Zoladex it was for 3 months. My GP talk me...

This is my second post, I ask for your opinions. In 2013 I was going to do radia...

Canuck53

•5 years ago

26 Replies

Decision time for Multiple Myeloma

I have been fighting PC for 23 years and six months ago I was told I had MM. Had treatments for MM and was told that I had an excellent response was a perfect...

I have been fighting PC for 23 years and six months ago I was told I had MM. Had...

mcp1941

•5 years ago

7 Replies

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One more weapon in making to fight pca

https://www.fiercebiotech.com/research/could-immuno-oncology-combo-treat-metastatic-prostate-cancer

https://www.fiercebiotech.com/research/could-immuno-oncology-combo-treat-metasta...

Nirman

•5 years ago

2 Replies

PSA rising to 0.7 after 12 months undetectable NADIR

diagnosed Sep 2017 at the age of 70, PSA 187, biopsy 12 cor all 4 + 4 = 8, stage 4 metastatic located in lungs, t1-4, L-4 and 5. started firmagon, casodex and...

diagnosed Sep 2017 at the age of 70, PSA 187, biopsy 12 cor all 4 + 4 = 8, stag...

jelpop

•5 years ago

17 Replies

New Lu177 trials in Australia

I looked through the slides of Prof. Hofman which he presented at the APCCC 2019 conference in Basel. In Australia they are starting a lot of interesting...

I looked through the slides of Prof. Hofman which he presented at the APCCC 2019...

GP24

•5 years ago

13 Replies

When people don't take your disease seriously

I had someone recently tell me "I'm so glad you got through this!" I really didn't know what to say. I am not "getting through this" and sometimes that's...

I had someone recently tell me "I'm so glad you got through this!" I really didn...

Hidden

•5 years ago

161 Replies

Monotherapy to gain extra survival.

I am wondering about studies where you only take one drug at a time to stretch out survival. In no order but for example Xtandi till it stops then ADT till it...

I am wondering about studies where you only take one drug at a time to stretch o...

Canuck53

•5 years ago

35 Replies

Very Early On This Road...Is there Something I Should Be Aware of?

So I was diagnosed over the summer with PCa at age 52. After several years of steady rises I was 5.5 and a biopsy found it. Gleason 8 (4+4) in four of 12...

So I was diagnosed over the summer with PCa at age 52. After several years of st...

Hidden

•5 years ago

32 Replies

My Dad is Here with Me Now..Seeking Advice for Pain and Zytiga? Please help, need some insight...

Hello all, my Dad is here in Florida with me right now. The Dr. he saw at Cleveland Clinic advised Docetaxel and then Xofigo after that. He advised to...

Hello all, my Dad is here in Florida with me right now. The Dr. he saw at Cleve...

missh2

•5 years ago

4 Replies

A short update

Quick update as we realised this week that it's 5 years since a pretty shocking diagnosis. Life is still great, my husband continues on Xtandi, 18 months now...

Quick update as we realised this week that it's 5 years since a pretty shocking ...

LB100

•5 years ago

9 Replies

Prostate cancer while black

African American men shared insights and experience for Prostate Cancer While Black Get your free copy of Prostate Cancer While Black by clicking here...

African American men shared insights and experience for Prostate Cancer While Bl...

Darryl

Partner•5 years ago

Be the first to reply

Insurance question

How does everyone handle insurance with this disease? I know my costs will be about $160,000 annually with the medications I am on. I am three years out to...

How does everyone handle insurance with this disease? I know my costs will be a...

IndyGolfer

•5 years ago

75 Replies

Message for j-o-h-n

Hi j-o-h-n, How do you feel, I hope good and good humor does not leave you. I have had a very strange dream lately: I heard the phone ringing, picked up the...

Hi j-o-h-n, How do you feel, I hope good and good humor does not leave you. I h...

donits

•5 years ago

6 Replies

Lutamides

I have reached the point after radiation therapy and Lupron therapy over the past 4 years where PSA has started its inevitable increase. The increase is...

I have reached the point after radiation therapy and Lupron therapy over the pas...

Twoofus

•5 years ago

16 Replies

5 Days Till RALRP

Hello All, I am 5 days away from getting rid of my sick prostate. Had to have a last minute transesophageal echocardiogram so my cardiologist could provide...

Hello All, I am 5 days away from getting rid of my sick prostate. Had to have a ...

Fox2018

•5 years ago

12 Replies

After chemo?

Ok it’s been 1 month after my last chemo treatment. (docetaxel) I have the following side effects: weak arms, core, and legs, hard time breathing, tired,...

Ok it’s been 1 month after my last chemo treatment. (docetaxel) I have the follo...

GoEZ

•5 years ago

17 Replies

Benign prostatic hyperplasia and Rezum treatment of the medium lobe

I have Benign prostatic hyperplasia and the biggest problem is the enlarged medium lobe...unrelated to the prostate cancer as evident by cystoscopy results....

I have Benign prostatic hyperplasia and the biggest problem is the enlarged medi...

Parscore

•5 years ago

2 Replies

LU 177 and ACT 225 - Trip to Germany looking likely

Looking for the latest updates on LU 177, ACT 225, and anything else I should consider. After reviewing numerous posts on this topic, I am leaning toward Dr....

Looking for the latest updates on LU 177, ACT 225, and anything else I should co...

WhiteStrat

•5 years ago

46 Replies

A full tumor biopsy. lesion on L3 vert.

Ok I would be very interested to know if anybody has had this procedure done. I will describe what I was told would happen . Fast the night before. Arrive one...

Ok I would be very interested to know if anybody has had this procedure done. I ...

Costarica1961

•5 years ago

35 Replies

Provenge Cost

Was working with Dr. to qualify for Provenge, was told to praise the last month or so had doubled from $93,000-$180,000. In my situation believe my insurance...

Was working with Dr. to qualify for Provenge, was told to praise the last month ...

Bigpike

•5 years ago

8 Replies

Zometa and Medicare

Would anyone know if Medicare Parts A and or B covers Zometa infusions? I don't have Medicare C or D or any supplemental Medicare plans, just parts A&B. Thanks...

Would anyone know if Medicare Parts A and or B covers Zometa infusions? I don't ...

Hidden

•5 years ago

9 Replies

4Kscore test

-Patrick https://www.360dx.com/reimbursement-news/opko-4kscore-prostate-cancer-test-receives-lcd Opko 4Kscore Prostate Cancer Test Receives LCD Nov 14, 2019 |...

-Patrick https://www.360dx.com/reimbursement-news/opko-4kscore-prostate-cancer-t...

pjoshea13

•5 years ago

3 Replies

Pentamidine. Another candidate for repurposing?

New cell/mouse study below. [1] "Pentamidine is an antimicrobial medication used to treat African trypanosomiasis, leishmaniasis, babesiosis, and to prevent...

New cell/mouse study below. [1] "Pentamidine is an antimicrobial medication use...

pjoshea13

•5 years ago

9 Replies

Pre-treatment fibrinogen & bone metastatic burden in new cases.

New study below. [1] Fibrinogen circulates at normal levels for use in the event that a blood clot is required. In that case, thrombin will convert fibrinogen...

New study below. [1] Fibrinogen circulates at normal levels for use in the event...

pjoshea13

•5 years ago

16 Replies

Advanced prostate cancer

Hi im currently on Cabazitaxel haveing previosely been on docetaxel and im finding my psa keeps riseing and is now at 350 but for the last 2 years where my...

Hi im currently on Cabazitaxel haveing previosely been on docetaxel and im findi...

barlavington

•5 years ago

1 Reply

Subcorneal pustular dermatosis

I have been on Lupron for nearly a year and have experienced its known side effects plus a variety of “skin conditions. Recently, with the help of Google, my...

I have been on Lupron for nearly a year and have experienced its known side effe...

Frigataflyer

•5 years ago

4 Replies

How to take Zytiga and Prednisone.

Hello. Just starting Zytiga and unfortunately, the Cancer clinic isn't open till Monday. The Prednisone says to take on a full stomach. The Zytiga says empty...

Hello. Just starting Zytiga and unfortunately, the Cancer clinic isn't open til...

dpowellnt

•5 years ago

12 Replies

Lump in Throat

Has anyone had an experience with what feels like a lump or swelling in the back of the throat? It hurts to swallow, but otherwise is not painful. It's not a...

Has anyone had an experience with what feels like a lump or swelling in the back...

DrWrite

•5 years ago

Be the first to reply

Standard genetic testing panel for PCa?

Hi all, today we got the disappointing news that the docetaxel did not work for my dad (who turns 87 next month). He had one full dose, and didn’t weather it...

Hi all, today we got the disappointing news that the docetaxel did not work for ...

Sea5

•5 years ago

9 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for November 2019

I rang the bell!

Incredible loss of strength on limited ADT

Decision time for Multiple Myeloma

One more weapon in making to fight pca

PSA rising to 0.7 after 12 months undetectable NADIR

New Lu177 trials in Australia

When people don't take your disease seriously

Monotherapy to gain extra survival.

Very Early On This Road...Is there Something I Should Be Aware of?

My Dad is Here with Me Now..Seeking Advice for Pain and Zytiga? Please help, need some insight...

A short update

Prostate cancer while black

Insurance question

Message for j-o-h-n

Lutamides

5 Days Till RALRP

After chemo?

Benign prostatic hyperplasia and Rezum treatment of the medium lobe

LU 177 and ACT 225 - Trip to Germany looking likely

A full tumor biopsy. lesion on L3 vert.

Provenge Cost

Zometa and Medicare

4Kscore test

Pentamidine. Another candidate for repurposing?

Pre-treatment fibrinogen & bone metastatic burden in new cases.

Advanced prostate cancer

Subcorneal pustular dermatosis

How to take Zytiga and Prednisone.

Lump in Throat

Standard genetic testing panel for PCa?

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