My latest blood test results.Any advice would be greatly appreciated.
Feeling unwell.
Aches and pains. Blurry eyes. Brain fog. Weight gain. Fatigue. Poor sleep. Low mood. No motivation. High blood pressure.
My consultant reduced my T3 from 10mg to 5mg daily because my TSH was too low. No change to my levo dosage 5ml liquid daily. Also when i was on 10mg T3 i did experience a racy heart beat at night when in bed. Last year i was diagnosed with AF with a leaky heart valve.
Component
Latest Ref Rng
7/3/2023
Free T4
10.5 - 21.0 pmol/L
14.4
Free T3
3.5 - 6.5 pmol/L
4.1
TSH
0.35 - 5.50 mU/L
2.74
Component
Latest Ref Rng
7/3/2023
Albumin
35 - 50 g/L
38
Calcium
2.08 - 2.65 mmol/L
2.16
Adjusted Calcium
2.20 - 2.60 mmol/L
2.24
Phosphate
0.80 - 1.50 mmol/L
1.16
Alkaline Phosphatase
30 - 130 U/L
97
25OH Vitamin D3
nmol/l
66.8
25OH Vitamin D2
nmol/l
<5
Parathyroid Hormone (pmol/l)
1.95 - 8.49 pmol/l
5.83
Component
Latest Ref Rng
7/3/2023
CRP
0 - 9 mg/L
<4
Ferritin
10.0 - 291.0 ug/L
50.5
Serum Iron
9.0 - 30.4 umol/L
12.6
Transferrin
2.50 - 3.80 g/L
2.60
% Saturation
16 - 50 %
21
Vitamin B12
211.0 - 911.0 ng/L
364.0
FOLATE
>4.12 ug/L
8.29
Component
Latest Ref Rng
7/3/2023
THYROGLOBULIN
ug/l
<0.2
ANTI-THYROGLOBULIN ANTIBODIES
<1.4 kU/l
<1.4
HBA1C (IFCC) MMOL/MOL
mmol/mol
36
Written by
Odinil
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Your TSH is now above 2, on anything with T3 to be optimally replaced I would expect that to be below range or suppressed. An Endo reliant on TSH will not get you well.
Free T4 (fT4) 14.4 pmol/L (10.5 - 21) 37.1%
Free T3 (fT3) 4.1 pmol/L (3.5 - 6.5) 20.0%
Free numbers should both be around 60-70% of their range. Yours are both too low.
Vitamin D should be around 100. Buy one that includes vit K2 to help it go to your bones. Some are available in oil or you can take it with an oily meal for better absorption. Use this calculator to work out how much to take to get your level to 100. wildatlantichealth.com/vita...
Ferritin should be around 90 - 100 for best use of thyroid hormone. Suggest increasing iron rich foods in diet and eating them often. Chicken livers, pate, red meat etc
Both your B12 & folate are too low. Are you vegan or vegetarian? Do you have symptoms of low B12? pernicious-anaemia-society....
Im in a catch 22 situation with my nhs consultant. My gp has agreed to prescribing T3 if my consultant continues to monitor me on it. If i go against what my consultant advises she may say she can longer have me as her patient and i lose having my T3 prescribed by my gp.
Whenever i have asked my gp if my vitamin blood tests are ok they say yes and so does my consultant.
They are no help whatsoever.
I really need to see someone who can sort me out. Would that be a dietician or a nutritionist? Who specialises in vitamins?
Im not vegetarian i eat chicken and fish but not red meat . I dont eat burgers sausages or bacon.
When my TSH was 0.07 thats when my consultant reduced my T3 to 5mg from 10mg daily it was ok at first but after about two months i started getting pains in my fingers hands wrists now i ache pretty much everywhere brain fog and vision came back.
I am so tempted to go back on 10mg T3 but like i said im up against losing getting it prescribed by my gp if im not monitored. Do i need to increase my levo dosage too?
Im not very good at working out vitamins and dosages i need.
Is there a vitamin for Ferritin?
What is a good vitamin for Folate?
Im at the stage where i cant work out anything for myself anymore.
Im grieving the loss of my mum and helping dad with his recovery for oesophagus cancer.
Yes looking at the symptoms i can relate to many of them.
Whenever i have asked my gp if my vitamin blood tests are ok they say yes and so does my consultant.
This is very common. They have no training in nutrition so this is where patient groups like this come in. I wouldn't even go to a nutritionist. The one I saw put me on a multivitamin which is not recommended. You can get all the vitamin advice you need here anyway. I'll tell you what to buy in a moment to make it easier for you.
►You do need to increase both Levo & T3 but that would only be one at a time. See if Endo will increase Levo by 25mcgs.
►Ferritin is better raised by diet as you risk iron overload. If you really don't eat red meat then you could buy an iron supplement. A member recommended this, take with vit c/orange juice for better absorption and 4 hours away from thyroid hormone. threearrowsnutra.com/en-uk/...
►Folate - better to take a good B complex to keep all the B's in balance. This on is good and contains 90 days supply at reasonable cost. amazon.co.uk/Liposomal-Soft...
►Vit D. Use calculator above to work out how much to take to raise to 100-150. This product has been recommended by a member. amazon.co.uk/Strength-Subli...
I'm sorry for your loss. Stress and grief will not be helping your wellbeing. Do try and take some time out and be extra kind to yourself.
Thank you soo much for all the info. I thought about increasing my levo by 25mg without my consultants ok, i tried to speak to her via the cancer nurse i have to through and the reply was she was unable to speak to me until May as she's having to cover ward duties, strikes and bank holidays. All i was asking was for her to take a look at my blood test results, my email giving her a list of my problematic smpytoms and advise. So thats where i am now :(Thanks again x
I'm sorry about your consultants attitude, can only imagine they are very stressed. When you do manage to communicate with them you could point out that you are happy to take responsibility for your suppresed TSH as per NICE guidelines.
The first paragraph in the NICE (NHS) Thyroid Disease, Assessment and Management guidelines says :
nice.org.uk/guidance/ng145
"Your responsibility”
The recommendations in this guideline represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, professionals and practitioners are expected to take this guideline fully into account, alongside the individual needs, preferences and values of their patients or the people using their service. It is not mandatory to apply the recommendations, and the guideline does not override the responsibility to make decisions appropriate to the circumstances of the individual, in consultation with them and their families and carers or guardian. "
These results clearly show undermedication but did you follow the advice given here about timing of thyroid meds before testing? Last dose of Levo should be 24 hours before test and last dose of T3 should be 8-12 hours before test (splitting dose of T3 into 2 or 3, whichever is possible, the day before the test). However, regardless of timing of your meds the TSH is far too high for someone on thyroid hormone replacement, most people are best when it's 1 or below.
My consultant reduced my T3 from 10mg to 5mg daily because my TSH was too low.
One would hope that the medical professional prescribing T3 would know that it tends to lower TSH often to the point of suppression, it's just what it does. If your FT3 wasn't over range there was no need to reduce your dose of T3.
25OH Vitamin D3
nmol/l
66.8
25OH Vitamin D2
nmol/l
<5
So your Total Vit D is around 71nmol/L and the recommended level is 100-150nmol/L according to the Vit D Society, Vit D Council and Grassroots Health, you might want to consider supplementing to improve this level.
Serum iron: 55 to 70% of the range, higher end for men - yours is 16.82% so it's low
Saturation: optimal is 35 to 45%, higher end for men - yours is 21% so it's low
Total Iron Binding Capacity (TIBC) or Transferrin: Low in range indicates lack of capacity for additional iron, High in range indicates body's need for supplemental iron - yours is low suggesting iron supplements not indicated
Ferritin: it's suggested that ferritin be around half way through range, yours is 14.41% through range. However, some experts say that the optimal level for thyroid function is 90-110ug/L. Whichever way you look at it yours is quite low.
Vitamin B12
211.0 - 911.0 ng/L
364.0
According to an extract from the book, "Could it be B12?" by Sally M. Pacholok:
"We believe that the 'normal' serum B12 threshold needs to be raised from 200 pg/ml to at least 450 pg/ml because deficiencies begin to appear in the cerebrospinal fluid below 550".
"For brain and nervous system health and prevention of disease in older adults, serum B12 levels should be maintained near or above 1000 pg/ml."
If you have no signs of B12 deficiency then you could supplement to improve this level. Signs/symptoms of B12 deficiency:
This is quite low. When there is no lower/upper limits of range such as yours then we often suggest that a level reaching double figures is advised, maybe consider aiming for high teens or twenty.
Antibodies are low and don't suggest autoimmune thyroid disease (Hashi's) andHbA1C is good.
PS - it's always easier to read results when each one is displayed in one line, eg
FOLATE: >4.12 ug/L (8.29)
I expect you've done a copy/paste job and then format is always lost and it's difficult to pinpoint details when displayed as yours.
Thank you for your reply.Yes i stop my meds as advised here. My blood tests i have at 8.30am - 9am only because i requested it at that time, before that it was around 11am - 12pm.
I take my liquid levo 5ml in the morning, all in one dose with water straight after together with my T3. My T3 tablets are 20mg. I split it in half and half again. When i was on 10mg daily i took 5mg in the morning and 8 hours later another 5mg. Now only on 5mg i take it in the morning with the levo.
Not sure if i need to increase T3 and levo obviously one at a time.
I must sort my vitamins out asap. I haven't been looking after myself as well as i should. The saga with getting my liquid levo prescribed by gp then the same with the pharmacists to supply it have taken It's toll.
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