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Update April 5, 2024
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
MsHope
in
Advanced Prostate Cancer
20 days ago
Updating my husband's journey, hoping it helps others - any words of encouragement are welcome, but please only positive comments
The first part is in my profile. It makes me feel vulnerable to share, but we have benefited enormously from reading others' stories, so I'm sharing. UPDATE: 8/18/21 PSA =0.45 9/6/21 last dose Orgovyx 9/7/21 First Eligard 3 month shot 9/17/21 PSA =0.78 10/18/21 PSA =1.28 Nov not tested 12
The first part is in my profile. It makes me feel vulnerable to share, but we have benefited enormously from reading others' stories, so I'm sharing. UPDATE: 8/18/21 PSA =0.45 9/6/21 last dose Orgovyx 9/7/21 First Eligard 3 month shot 9/17/21 PSA =0.78 10/18/21 PSA =1.28 Nov not tested 12
SuppWife
in
Advanced Prostate Cancer
2 months ago
Wednesday Words
The words this week I want to define are
alkaline phosphatase.
Alkaline phosphatase (ALP)
is an enzyme that is released by the bile ducts cells ( among other organs). The release of ALP is a marker of stress or injury. So the more injury or stress to the bile duct cells, the higher
The words this week I want to define are
alkaline phosphatase.
Alkaline phosphatase (ALP)
is an enzyme that is released by the bile ducts cells ( among other organs). The release of ALP is a marker of stress or injury. So the more injury or stress to the bile duct cells, the higher
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
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Alkaline phosphatase is 161
Pbc, they put me on ocaliva earlier this year along with urso, apparently I'm not responding to either, ..my
alkaline
phosphatase
fluctuates from the 120s to 161 every
test
, is there anything I can do food wise or herbal to lower this? I hate pills lol
Pbc, they put me on ocaliva earlier this year along with urso, apparently I'm not responding to either, ..my
alkaline
phosphatase
fluctuates from the 120s to 161 every
test
, is there anything I can do food wise or herbal to lower this? I hate pills lol
Dunks72
in
PBC Foundation
11 months ago
degarelix v/s eligard "lupron"
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
yardsailor
in
Advanced Prostate Cancer
7 months ago
hyperthyroidism and side effects
I'm 8 weeks in now and my levels have come down. What's the minimum carbizamole we can take to stop relapse, I don't want to go hypo. I'm on 10mg at the moment but have 250 alkaline phosphatase reading which can indicate liver damage. What happens if the meds cause liver damage, I so want to stop
I'm 8 weeks in now and my levels have come down. What's the minimum carbizamole we can take to stop relapse, I don't want to go hypo. I'm on 10mg at the moment but have 250 alkaline phosphatase reading which can indicate liver damage. What happens if the meds cause liver damage, I so want to stop
Zoe12
in
Thyroid UK
8 months ago
Supplements and self-care
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
StayinAlive8
in
Advanced Prostate Cancer
8 months ago
Confused
I had a liver biopsy, my score is F3 S2 (NASH) I was told I don’t have cirrhosis yet. However, I have been getting spider veins on my legs and feel pain on my veins on the back of my legs up to my thighs. They are not bulging and the pain lasts for a couple of days and then it’s gone. I have
I had a liver biopsy, my score is F3 S2 (NASH) I was told I don’t have cirrhosis yet. However, I have been getting spider veins on my legs and feel pain on my veins on the back of my legs up to my thighs. They are not bulging and the pain lasts for a couple of days and then it’s gone. I have
Roxanne9
in
Living with Fatty Liver and NASH
8 months ago
FDA approves niraparib and abiraterone acetate plus prednisone for BRCA-mutated metastatic castration-resistant prostate cancer - 08/11/2023
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
cujoe
in
Fight Prostate Cancer
8 months ago
Exciting!
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Would like some suggestions for a B complex product with low dose B12 and folate please
Homocysteine Nutrients
https://www.seekinghealth.com/products/homocysteine-nutrients I really like the sound of this product but I’m concerned about the B vitamins that are missing, namely B3 and B1. It also doesn’t have inositol, choline or biotin, although I don’t know how important they
Homocysteine Nutrients
https://www.seekinghealth.com/products/homocysteine-nutrients I really like the sound of this product but I’m concerned about the B vitamins that are missing, namely B3 and B1. It also doesn’t have inositol, choline or biotin, although I don’t know how important they
Noelnoel
in
Thyroid UK
23 days ago
Is an Alkaline Phosphate level of 71 (UK) good?
Is an Alkaline Phosphate level of 71 (UK) good? Was put on steroids to deal with newly diagnosed PMR and they fell by 20 units in 2 weeks!
Is an Alkaline Phosphate level of 71 (UK) good? Was put on steroids to deal with newly diagnosed PMR and they fell by 20 units in 2 weeks!
Gioielli5
in
PBC Foundation
1 month ago
Mrs d
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
coronavirus19
in
PBC Foundation
1 month ago
Confused
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
MsHope
in
Advanced Prostate Cancer
24 days ago
Low phosphate again
Hi everyone, I'll try and keep this as short as I can!So I keep having episodes of upper back & chest pain. Then get random feelings like my heart stops, then it beats super fast then slows again. This happens multiple times in a row which I then go to a&e to get checked out. Every time it comes back
Hi everyone, I'll try and keep this as short as I can!So I keep having episodes of upper back & chest pain. Then get random feelings like my heart stops, then it beats super fast then slows again. This happens multiple times in a row which I then go to a&e to get checked out. Every time it comes back
PoTs_lass
in
British Heart Foundation
2 months ago
Medication
I have been prescribed codine phosphate for the pain, but it makes me drowsy is there anything else I could have that doesn't I am asthmatic, feel like not getting any help from my doctor and the hospital discharged me, but i am struggling please
I have been prescribed codine phosphate for the pain, but it makes me drowsy is there anything else I could have that doesn't I am asthmatic, feel like not getting any help from my doctor and the hospital discharged me, but i am struggling please
Sallyram
in
Endometriosis UK
3 months ago
Recommended Tracking App - Easy to use, tracks what I need to monitor for CKD
After searching for a long time and almost giving up, I finally found an app that does everything that I need. Yeah! It tracks my diet and helps me monitor my intake of Sodium, Potassium, Phosphate, Protein and Water, which is important for patients with CKD . At the same time it tracks calories
After searching for a long time and almost giving up, I finally found an app that does everything that I need. Yeah! It tracks my diet and helps me monitor my intake of Sodium, Potassium, Phosphate, Protein and Water, which is important for patients with CKD . At the same time it tracks calories
2023CKD
in
Kidney Disease
3 months ago
Comprehensive CKD and healthy Diet app
If you are aware of any reputable comprehensive apps to help track food intake for CKD patients. I would love a recommendation. Kidney diet tracking is complicated and it would be invaluable to have a toolset for those of us trying to implement dietary changes that are comprehensive. By comprehensive
If you are aware of any reputable comprehensive apps to help track food intake for CKD patients. I would love a recommendation. Kidney diet tracking is complicated and it would be invaluable to have a toolset for those of us trying to implement dietary changes that are comprehensive. By comprehensive
2023CKD
in
Kidney Disease
3 months ago
Flare
Thursday, my husband had his follow-up appointment with Oncologist. I was very alarmed at some of his blood test results. His PSA went up to 1600. Doctor said other blood work was to be expected. I researched surged in PSA and found this, The PSA flare is a well-known phenomenon. The post chemotherapy
Thursday, my husband had his follow-up appointment with Oncologist. I was very alarmed at some of his blood test results. His PSA went up to 1600. Doctor said other blood work was to be expected. I researched surged in PSA and found this, The PSA flare is a well-known phenomenon. The post chemotherapy
MsHope
in
Advanced Prostate Cancer
3 months ago
phosphate
Good Evening, a little question. I was reading an article about white and whole grain bread. I believe with CKD it is advised to eat white bread due to lower phosphates. The article said that this is not always the case, as although whole grain has more phosphates we only absorb 20-50% of the phosphates
Good Evening, a little question. I was reading an article about white and whole grain bread. I believe with CKD it is advised to eat white bread due to lower phosphates. The article said that this is not always the case, as although whole grain has more phosphates we only absorb 20-50% of the phosphates
Miss-guineapig
in
Kidney Disease
4 months ago
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