Experiences with

Parathyroid hormone (PTH)

Does anyone else have high PTH intact levels? If so, what is your level and what stage CKD are you and what treatment are you taking? What, if anything did you doctor say about it. My PTH has been rising. One article says it is because of CKD and another says it causes CKD.

My last readings were in Dec.22: Calcium 10.2 ( 8.1-10.4 mg/dl) PTH. 74 (16-65 mg/dl) 25-OH-D. 190. (75-250nmol/l) FT3. 4.6. (1.9-5.1.

My RBC is low and my PTH is high. How do I improve on these two with meds and or diet. My nephro and head nurse ( in center) are not very enthusiastic about it. Can anyone help me resolve this issue? Thanks

I do take calcium+vit d3 and cinacalcet for high PTH. What else is required to avoid weak bones and joints? Any advice?

Hello, I’m post transplant 2 years and I currently have a high number for my pth glads. I was put on sensipar,didn’t help much at all and was taken off due to one of the side effects. Can someone recommend anything to help lower or any medication.

I requested my medical records and noted that the PTH sample I had taken was lost so there are no level for that. Is it important that I pursue this? I think it must be as it is one of the tests requested when a patient is diagnosed with osteoporosis.

hi everyone I have requested a blood test with my endo but I noticed the secretary has forgotten to mark calcium and PTH, so I need to get them added what other bloods do you suggest I get checked.

Anyway I told her I had a gastric band and she said I need PTH blood test due to lack of vitamin absorption? Has anyone else had one? many thanks

I got bloods done back in November, doctor asked for them to be done again, came back with pth at 8.3, was told to get them done again in January, came back at 8.9, asked to get them done again in March, don’t know the reason for this as only get to speak to receptionist,does anyone know what this is

Registrar disagreed with the PTH article said i had high PTH due to low vit D and just to start taking them. ALSO TOLD ME TO GET A PET FOR COMPANY AS THAT MIGHT HELP ME.

My Pth lab test showed 76, the normal number is 54. She said my parathyroid was the cause. Something about taking my calcium out of my bones. I don't understand. I have made an appointment with a Urologist.

PTH blood test in range 43.8 (15-65) Hypechoic lesion, exophytic thyroid nodule, reactive bilateral cervical lymph node seen with maintain fatty hilum all had to be googled!

I didn't see the PTH test so assumed they hadn't bothered as the others were normal. However got a phone call from my GP this morning saying PTH elevated, needs retesting in 3 months. Logged in to my online access and my result was 7.8 and the range ends at 6.9.

Hi everyone ❤️ As some on here may know I had full thyroidectomy in May 2019 struggled with thyroid meds but got on T3, then in April 2020 I had 2 over range calciums which the gp reluctantly sent to the endo who requested PTH, calcium, vitamin D both blood tests in june/Aug came back as over range pth

Last time in Nov the endo said he would test my PTH because my adjusted calcium was just under range (not for the first time). Since Dec I have been supplementing VitD+K, Magnesium glycinated and Yarrow B12 complex.

My question is: is there someone that has low PTH and has replaced taking calcium with taking vitamin D? If so, how much vitamin D do you take and how often?

If it’s normal then I have to accept that with PTH normal then watch and wait is correct. all suggestions gratefully received 🌱

Bloods have just come back and my PTH is 9.3 measurement here is 18-88 for normal. Also ESR raised to 14 when its always between 5 and 8 even before diagnosis and steroids. Is there anything I should be asking next week about these figures please.

I have had approximately 6 shots and each time my PTH increases greatly until time for the next shot when it falls below normal levels. These increases in PTH have caused high calcium levels and a condition called caliciphylaxis which can become deadly.

Should I get my PTH checked that it’s now not low?