After 22 years on pharma meds’ my thyroid is no... - Thyroid UK

Thyroid UK

137,936 members161,765 posts

After 22 years on pharma meds’ my thyroid is not right. Now chemist has given a new brand. Could this upset my system too?

Whitenightingale profile image

Diagnosed 2001 with hypothyroidism

Normal brand above photo. Below is one I have never taken.

My tests results 11th Jan 2023.

T4 12.7. Range. (12-22)

TSH 32 range (0.27 -4.2)

I am fed up with them puttin me up and down. Often resulting in me being very unwell. Now they give a different brand but this may affect me again. I just want a natural solution.

Anyone else taking that Aristo brand please?

Written by
Whitenightingale profile image
Whitenightingale
To view profiles and participate in discussions please or .
Read more about...
9 Replies
SlowDragon profile image
SlowDragonAdministrator

No one should be dosed by TSH

Which brand of levothyroxine were you on before

Many people find different brands are NOT interchangeable

You can request GP specify brand on prescription

Many members are having trouble getting constant unchanging brand levothyroxine

Most easily available (and often most easily tolerated) are Mercury Pharma or Accord

Mercury Pharma make 25mcg, 50mcg and 100mcg tablets 

Mercury Pharma also boxed as Eltroxin. Both often listed by company name on pharmacy database - Advanz 

Accord only make 50mcg and 100mcg tablets 

Accord is also boxed as Almus via Boots, and Northstar 50mcg and 100mcg via Lloyds ....but Accord  doesn’t make 25mcg tablets

beware 25mcg Northstar is Teva

Northstar levothyroxine being phased out this month (Feb 2023)

 Many patients do NOT get on well with Teva brand of Levothyroxine. Teva is lactose free.

Teva contains mannitol as a filler instead of lactose, which seems to be possible cause of problems. Mannitol seems to upset many people, it changes gut biome 

Teva is the only brand that makes 75mcg tablet. 

So if avoiding Teva for 75mcg dose ask for 25mcg to add to 50mcg or just extra 50mcg tablets to cut in half

But for some people (usually if lactose intolerant, Teva is by far the best option)

Aristo (currently 100mcg only) is lactose free and mannitol free. Often difficult to locate

Wockhardt is very well tolerated, but only available in 25mcg tablets. Some people remain on Wockhardt, taking their daily dose as a number of tablets 

 

List of different brands available in U.K.

thyroiduk.org/if-you-are-hy...

Posts that mention Teva

healthunlocked.com/search/p...

Teva poll

healthunlocked.com/thyroidu...

Once you find a brand that suits you, best to make sure to only get that one at each prescription.

Watch out for brand change when dose is increased or at repeat prescription.

Government guidelines for GP in support of patients if you find it difficult/impossible to change brands 

gov.uk/drug-safety-update/l...

If a patient reports persistent symptoms when switching between different levothyroxine tablet formulations, consider consistently prescribing a specific product known to be well tolerated by the patient. 

academic.oup.com/jcem/artic...

Physicians should: 1) alert patients that preparations may be switched at the pharmacy; 2) encourage patients to ask to remain on the same preparation at every pharmacy refill; and 3) make sure patients understand the need to have their TSH retested and the potential for dosing readjusted every time their LT4 preparation is switched (18).

Whitenightingale profile image
Whitenightingale in reply to SlowDragon

I have been on TV for many years I’ve been on 70 5MG for about a year on my last three tests. I was no TSH but they kept me on the 75 until now he has decided to put me up to 100 and given me the Astro. That’s why I was asking about Astro when they had messed up my Dosage but I’m not looking at how I was feeling et cetera and just left me on the 75 and now nearly a year later they put me back to 100 and I was asking the question whether having a different brand was also going to interfere with how I was feeling and would I know if if I was still ill whether it was that particular brand

SlowDragon profile image
SlowDragonAdministrator in reply to Whitenightingale

Trial and error what’s causing issues

That’s why generally it best to only change one thing at a time

Change dose or brand

But sometimes it can’t be helped

Bloods should be retested 6-8 weeks after dose or brand change in levothyroxine

SlowDragon profile image
SlowDragonAdministrator

presumably you are on 100mcg as that’s the only dose tablet Aristo make

Request GP test vitamin D, folate, ferritin, B12

Do you have autoimmune thyroid disease, also called Hashimoto’s, usually diagnosed by high thyroid antibodies?

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

 

For full Thyroid evaluation you need TSH, FT4 and FT3 tested 

Also both TPO and TG thyroid antibodies tested at least once 

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies 

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. 

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis 

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended on here that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test 

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65 

(But Doesn’t include thyroid antibodies) 

monitormyhealth.org.uk/full...

10% off code here 

thyroiduk.org/getting-a-dia...

Only do private testing early Monday or Tuesday morning. 

Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

Whitenightingale profile image
Whitenightingale in reply to SlowDragon

Oh my blood test so normally about 11 o’clock in the morning they don’t normally do any early ones but maybe next time I’ll have to request that. I do take quite a lot of supplements and in general I am pretty good now I’m back on the 100 I am feeling a bit more upbeat and proactive. But still feeling Cold

SlowDragon profile image
SlowDragonAdministrator in reply to Whitenightingale

Highest TSH is 9am

Don’t take levothyroxine before test

helvella profile image
helvellaAdministratorThyroid UK

Many have received Aristo!

Aristo is a relatively recent (March 2020) addition to the levothyroxine products available in the UK.

As always, experiences and opinions vary. What I've done is compile a list of posts which mention Aristo. Some are positive; some are negative. Some simply mention Aristo in passing. This is NOT a definitive, complete list. I just add more posts when I notice them.

Note: Aristo have confirmed they will in February 2023 be launching new dosages and a branded version (Venacamil) which is identical to the generic version. That should make it easier for a GP to prescribe.

Aristo levothyroxine?

healthunlocked.com/thyroidu...

No thyroid - pressure on throat

healthunlocked.com/thyroidu...

How do I get Aristo tablets?

healthunlocked.com/thyroidu...

Take forever to recover from illness

healthunlocked.com/thyroidu...

Aristo Levothyroxine

healthunlocked.com/thyroidu...

I’ve found another brand which doesn’t work for me anyone else had Aristo?

healthunlocked.com/thyroidu...

Eltroxin?

healthunlocked.com/thyroidu...

Hi everyone 👋🏻

healthunlocked.com/thyroidu...

Aristo

healthunlocked.com/thyroidu...

Sense-check, Hashi Swings, and inability to lose weight

healthunlocked.com/thyroidu...

Advice on latest thyroid blood test

healthunlocked.com/thyroidu...

Interim test of FT3 and FT4 check in..

healthunlocked.com/thyroidu.....

Advice on T4 to T3 conversion

healthunlocked.com/thyroidu...

Can a change of thyroid brands give you cold toes?

healthunlocked.com/thyroidu...

Thyroxine brands

healthunlocked.com/thyroidu...

Aristo

healthunlocked.com/thyroidu...

Not sure what to do next after latest thyroid results

healthunlocked.com/thyroidu...

Aristo levothyroxine

healthunlocked.com/thyroidu...

What are people experiences with the Aristo brand of levothyroxine? My doctors states ‘ no teva’ on my prescriptions but not had these.

healthunlocked.com/thyroidu....

New look Tablets

healthunlocked.com/thyroidu...

Lactose free is this important

healthunlocked.com/thyroidu...

Vitamin Test Results advice for GP call

healthunlocked.com/thyroidu...

My new iron and thyroid results, help please

healthunlocked.com/thyroidu...

Advice on further blood results

healthunlocked.com/thyroidu...

Help with results and what I should do next.

healthunlocked.com/thyroidu....

What does anyone make of these latest results?

healthunlocked.com/thyroidu...

Dose increase advice

healthunlocked.com/thyroidu...

Levo brands

healthunlocked.com/thyroidu...

Over range t4 but still feel hypo. What to try next?

healthunlocked.com/thyroidu...

Thyroid

healthunlocked.com/thyroidu...

Success! Folate supplement has finally increased my T4 to T3 conversion!

healthunlocked.com/thyroidu...

ARISTO LEVOTHYROXIN

healthunlocked.com/thyroidu...

Aristo Levothyroxine

healthunlocked.com/thyroidu...

availability of Aristo brand?

healthunlocked.com/thyroidu...

Levothyroxine Astro

healthunlocked.com/thyroidu...

Availability Levothyroxine Brands

healthunlocked.com/thyroidu...

Help with bloods please including iron levels.

healthunlocked.com/thyroidu....

Advice on blood results and suggested vitamin supplements

healthunlocked.com/thyroidu...

Levothyroxine (Sweating at night)

healthunlocked.com/thyroidu...

Northstar and aristo levothyroxine

healthunlocked.com/thyroidu...

Brand change

healthunlocked.com/thyroidu...

Recent results help

healthunlocked.com/thyroidu...

Aristo

healthunlocked.com/thyroidu...

Different brands

healthunlocked.com/thyroidu...

Aristo levo

healthunlocked.com/thyroidu...

Aristo levothyroxine

healthunlocked.com/thyroidu...

Aristo Levothyroxine Tablets - Splitting

healthunlocked.com/thyroidu...

Stomach issues on Aristo Levothyroxine

healthunlocked.com/thyroidu...

Hashimoto’s Questions

healthunlocked.com/thyroidu...

Aristo- aching joints and brain fog

healthunlocked.com/thyroidu...

aristo pharma

healthunlocked.com/thyroidu...

Aristo levothyroxine availability issues?

healthunlocked.com/thyroidu...

Jaydee1507 profile image
Jaydee1507Administrator

If you're not happy with the way your GP is treating your thyroid you need to start standing up for yourself, take them evidence of what you want to do and stand your ground. It's really of no consequence to them if what they tell you to do makes you ill and witha TSH of 32 you can't be feeling good at the moment. Become your own advocate and things should improve.

thank you. I will. I am doing all I can to keep myself in the best condition as possible.

You may also like...

Has anyone experienced becoming sensitive to thyroid meds after years

totally stopped my meds for 3 weeks, my tsh jumped to 11 range 0.40 - 4.00 and t4 dropped to 10...

Infertility and thyroid? My beautiful friend has been trying to conceive for a number of years she could she have thyroid problems too?

Her thyroid blood test results are; Free T4 13.4 (12-22) TSH 1.94 (0.3 - 4.2) Unfortunately the...

Levo - consistent supply of a favoured brand

to 50 Levo. The tablets they gave me were a different brand so I had to go back to GP and ask them...

Thyroid blood results received today

comment/advise me on my results I received earlier? Just recently changed my levothyroxine brand...

Hashimotos/Bloating and IBS/Low FODMAP diet

Levo brand from the Teva to another brand, with no difference so far. (about 3 weeks of a different...