Hi I have untreated hypothyroidism/hashimoto's, I was diagnosed about a year ago, but had symptoms - particularly 'hyper' ones for many years prior.
I have been tested for Celiac and was negative, however since being on this forum, I have discovered the painful rash on my scalp that was attributed to shingles by various Doctors (I had this for years) could well be due to Dermetitis Herpetiformis.
So I am now gluten free, and my scalp is fine, also the joint pain I experienced for years has gone, but both come back when I consumed gluten again in preparation for my Celiac blood test.
I have just finished a telephone appointment with my GP.
He says I still shouldn't start Levothyroxine yet, until my TSH has a value of around 10 (and T4 also 10).
I explained my symptoms are numerous - tingling/hair loss/fatigue/cold/weakness/tinnitus/puffy eyes and many more.
I did say about my antibodies being high - so I have autoimmune thyroiditis, but he didn't answer.
Regarding vitamins, I have been taking vitamin D 2000 a day since August/September, and a D3 with K2 spray twice a week.
B12 I have stopped due to it being high on my last couple of tests (I thought I might have pernicious anaemia due to other family members having it, but a GP blood test ruled that out).
I did buy some Thorne B Complex supplements, but am not using them due to their containing B12.
I have been taking Ferrous Fumurate for months, due to my low Ferritin levels (not GP advised).
Also I increased the 'iron rich' foods in my diet.
When I told my GP this earlier, he just said my Ferritin levels are fine. So I'm not sure what to do there?
One good thing, I am finally being referred for a gastroscopy, due to 2 GPs thinking I may have gastritis.
Could you please look at my new Thriva blood test results, any feedback is appreciated.
I think you should ask GP to justify why you have to wait until TSH is 10. You have TSH over range, bottom of range FT4 and positive antibodies so obviously autoimmune caused hypothyroidism. I'm pretty sure NICE guidelines don't say wait for TSH and FT4 to get to ten. That's out of date nonsence which will benefit nobody, least of all you.
I don't understand why they are so reluctant to start me on Thyroxine, I have argued my case, but it hasn't helped.
The GP did say I am due their TSH blood test in February, so we will look again. To be honest I'm not sure what more I can say to them.
I explained my symptoms
I said my cholesterol is high - possibly not helped by my hypothyroidism, and all he said was he would increase my statins prescription (I'm barely taking them, but I didn't tell him that).
ditto blood pressure
I pointed out my high antibodies - which he didn't respond to.
Technically you need a second test with TSH over 5 - 6-8 weeks later
You should be started on levothyroxine
Standard starter dose of levothyroxine is 50mcg and dose is increased slowly upwards in 25mcg steps over coming months until TSH is around or under one and Ft4 and Ft3 at least 50% through range
Meanwhile increasing vitamin D dose
Are you currently taking any magnesium too
GP will often only prescribe to bring vitamin D levels to 50nmol.
Some areas will prescribe to bring levels to 75nmol or even 80nmol
If you have an underactive thyroid (hypothyroidism), treatment may be delayed until this problem is treated. This is because having an underactive thyroid can lead to an increased cholesterol level, and treating hypothyroidism may cause your cholesterol level to decrease, without the need for statins. Statins are also more likely to cause muscle damage in people with an underactive thyroid.
I am sorry to bring this to your attention but once again you erroneously misinterpret the NHS advice on statins and hypothyroidism. There are many who need statins who nust not be put off by this misleading statement of yours. From personal experience I am in fact opting to take statins as my cholesterol levels are deteriorating despite near-optimal thyroid levels. In fact the more my thyroid levels improved, the worse my cholesterol levels became. Let's hope that no-one else whose conditions require statins is put off by your constant misquoting. People who purport to be knowledgeable and who give advice to others should at least make sure this advice is accurate. Words are everything.
slow dragon didn't write "patients with hypothyroidism should not be prescribed statins".. she wrote "hypothyroid patients should not..."
in your case your hypothyroidism has been treated .. therefore you are no longer hypothyroid ... and in that case it may be necessary to try statins, since rectifying the hypothyroidism has not resolved your cholesterol issue .
But in patients who are hypothyroid, the NHS accept that the hypothyroidism should be addressed first.
In this instance, the OP has untreated hypothyroidism . and so to prescribe increasing doses of statins rather than first treat the hypothyroidism seems daft .... and not in line with current NHS guidance for the treatment of sub clinical hypothyroidism ( which states that if there are TPOab and TSH over range twice , and symptoms ,then Levo may be considered . So repeating TSH in 3 months with a view to staring levo to see if that improved cholesterol would surely be more appropriate here than prescribing (more) statins... especially to a patient who has said in an earlier reply below that she was already feeling muscle pain when taking them.
If you suffer from constipation Calm vitality magnesium powder is cheap and easy to use. Best start on low dose and increase until get desired effect. Too much can cause diarrhoea
All magnesium best afternoon or evening
Alternatively Thorne magnesium- mix of malate and citrate doesn’t affect bowels. Capsules. Can tip out into cup of water
I wish my GP had started me on thyroxine when my TSH was 5.
He didn’t even tell me, and back then we didn’t have patient access and I didn’t know to ask.
By the time my TSH was 10, my FT4 was u dear range and I felt dreadful. I had been feeling awful for over 3 years but was ignored.
I also know now that many of my debilitating migraines probably wouldn’t have happened if I had better thyroid levels.
I hope you are able to follow the great advice/links here and speak to another GP maybe about getting some thyroxine.
I haven’t read all the replies, but if you get the next blood test done before 9am on an empty stomach with having just water it is likely that your TSH will be higher and FT4/FT3 lower.
My TSH of 10 was from a blood test taken at 2.30pm after a cup of tea, breakfast, and lunch - just to give me the energy to get there.
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