I am new to the site and wanted to get my blood/spot results back before posting.
I have had all the symptoms of being hypothyroid for most of my adult life. Apart from two tests last year, one was hyperthyroid and then a month later hypothyroid, my tests are always "normal". I have a multinodular goitre (biggest nodule 2.5cm). I have had no treatment whatsoever. I have the option of thyroidectomy.
My current GP is, shall we say, unsupportive and I am sure would be happy if I just disappeared. I am in my 50s and the only "history" GP has of me on the computer is for last 7 months that I have been at the practice! I asked why and was told the rest is kept off site in store! Therefore, if he refers me for anything my "medical history" states: hay fever, constipation, back pain!! I have multiple symptoms and GP will not look at them all together!? Example, in addition to most hypo symptoms, for last 7 months I have had swollen lower legs 24/7 - GP tested me for heart failure - normal, therefore it is "just one of those things." Constant "slow bowel movements" for seven months with bloated abdomen - GP tested me for ovarian cancer (ultrasound/CA125) - normal, therefore just one of those things! I had a gastric bypass in 2009, I lost 10 stone, however since December 2015 I have put on 2.5st for NO reason and I cannot get it off - GP reaction...nothing etc etc
Also over the last seven months (time with "new" GP) cholesterol has been rising (now 6.6), so have liver function tests (ALT/gamma GT). GP wants me to see health advisor re my diet! GP obviously does not consider any of these issues to be related to thyroid function as TSH is always normal and does not see them as one group of symptoms related to one cause (hope that makes sense ).
I have seen an endo in March 2016 when I was hyper, she ran another blood test, which showed I was then hypo. She said she did not know "what to do with me." I have had ultrasounds, nuclear isotope scan. She referred my for thyroidectomy (I also thought this may be the only way of actually getting treatment/getting on the treatment bandwagon) but I moved so nothing happened. I have been referred to the general surgeon where I currently live and am waiting for an appt to discuss the thyroidectomy. I have been referred to another endo and have an appt soon but I will not hold my breath. I am back to square one and will no doubt have to go through all the testing/scans again. Meanwhile, I have been feeling worse than my usual "baseline" since Dec 2015!!
Recently, I have depleted most of my savings consulting private doctors and ordering tests (I also have issues with my back). Regarding thyroid, the private doctor said that just by looking at me I am clearly hypo - puffy face/eyes, eyebrows etc Said I have a t4 to t3 conversion problem/thyroid resistance as blood tests had been normal.
I carried out the tests he wanted me to have (ZRT blood spot/saliva) and these are the results (range in brackets):
Cortisol morning 3.4 (3.7-9.5)
Cortisol noon 0.7 (1.2-3.0)
Cortisol evening 0.3 (0.6-1.9)
Cortisol night 0.4 (0.4-1.0)
Estradiol 161 (43-180)
Progesterone <0.1 (<0.1-0.8)
Testosterone 23 (10-45)
DHEAS 27 (40-290)
SHBG 85 (15-120)
Free T4 1.6 (0.7-2.5)
Free T3 2.5 (2.4 - 4.2)
THS 2.0 (0.5-3.00)
TPOab 18 (0-150
Not had a follow up as yet. I have also had tingling in my hands for past two weeks.
I also have mild inflammatory arthritis and for the last seven months have been having severe pain in my lower back related to "issues" going on at L5/S1. Again, I am waiting for NHS to help and have had to consult privately.
Before the above results came back I was gearing up for self-treatment. I order some T3, (uni-pharma 25ug tabs) online and have them sitting on my desk. (Private doctor told me not to start...yet...when I had the consultation). Now the results have come back I am not sure what they mean/what I should do. I have not taken them.
I take calcium, magnesium, selenium, Q10, vit b12, vit D, vit C, zinc, multi-vit, omega-3, HRT, pain meds.
I have little money and "funding" any sort of private treatment long-term is going to be very difficult. The NHS, I am pretty sure, will not be helping me medication wise, at all, apart from whipping out my thyroid altogether (they would then have to treat me with medication!?).
Any advice/ideas/help/interpretation of my results/treatment recommendations etc would be very much appreciated as I really am at the "end of my tether" and have to DO something to try and help myself.