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Vitamin B12
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feeling desperate.
Ok so I am hopefully going to be starting injecting every other day soon (possibly end of this week), but can’t just yet and I don’t know how to cope. I ain’t sleeping, I am peeing loads and have terrible bladder pain. Dr Klein says this does happen to some people. But I have also started seeing things
Ok so I am hopefully going to be starting injecting every other day soon (possibly end of this week), but can’t just yet and I don’t know how to cope. I ain’t sleeping, I am peeing loads and have terrible bladder pain. Dr Klein says this does happen to some people. But I have also started seeing things
Gobbozoid
in
Pernicious Anaemia Society
3 months ago
Updated Results
Latest Medichecks 30.10.23 CRP HS
1.100
mg/L (Range: < 3) Ferritin
143.00
ug/L (Range: 30 - 650) Folate - Serum
14.7
nmol/L (Range: 8.83 - 60.8)
Vitamin
B12
- Active
>150
pmol/L (Range: 37.5 - 188) Change of ref range 23.10.22 Vitamin D
104.0
nmol/L (Range: 50 -
Latest Medichecks 30.10.23 CRP HS
1.100
mg/L (Range: < 3) Ferritin
143.00
ug/L (Range: 30 - 650) Folate - Serum
14.7
nmol/L (Range: 8.83 - 60.8)
Vitamin
B12
- Active
>150
pmol/L (Range: 37.5 - 188) Change of ref range 23.10.22 Vitamin D
104.0
nmol/L (Range: 50 -
Albaangel
in
Thyroid UK
10 months ago
Case Report of PA with SACD in Japan
[i]"Seventy-Three-Year-Old Man with Pernicious Anemia Complicated by [/i][i]Subacute Combined Spinal Cord Degeneration and Cognitive Impairment"[/i] https://www.ndmc.ac.jp/wp-content/uploads/2024/04/49-1_021-026.pdf His serum B12 was 88 and MCV was elevated for quite some time - his case really shouldn't
[i]"Seventy-Three-Year-Old Man with Pernicious Anemia Complicated by [/i][i]Subacute Combined Spinal Cord Degeneration and Cognitive Impairment"[/i] https://www.ndmc.ac.jp/wp-content/uploads/2024/04/49-1_021-026.pdf His serum B12 was 88 and MCV was elevated for quite some time - his case really shouldn't
Technoid
in
Pernicious Anaemia Society
3 months ago
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trying to get B12 SI schedule right for me
hi all Just trying to get my SI schedule right to feel my best. I live in the USA so tx protocol is once a month B12 injection. This doesn’t work for me. I need it much more often. It does seem I feel best when I’m injected by the nurse. I order my own supplies to SI at home in between nurse injections
hi all Just trying to get my SI schedule right to feel my best. I live in the USA so tx protocol is once a month B12 injection. This doesn’t work for me. I need it much more often. It does seem I feel best when I’m injected by the nurse. I order my own supplies to SI at home in between nurse injections
Schpsych2414
in
Pernicious Anaemia Society
3 months ago
Supplies
Hello. I found the helpful post with b12 supplies and have ordered panpharma b12. I hope I've got it right! I used the code so should be ok I'm just very anxious and over thinking everything 🙃 I cant find the info where to get the needles etc from. I plan to do SC and I'm very confused with it all!
Hello. I found the helpful post with b12 supplies and have ordered panpharma b12. I hope I've got it right! I used the code so should be ok I'm just very anxious and over thinking everything 🙃 I cant find the info where to get the needles etc from. I plan to do SC and I'm very confused with it all!
RedOne1
in
Pernicious Anaemia Society
3 months ago
Dr agrees to test B12 but not blood test...
Hi All, on going (20 years) of discussion with GP about exhaustion. He agreed to injections for a while but that stopped during Covid. I've injected myself for a bit. Now he has agreed to do further test (as blood comes back a huge number because I am injecting!). I think the test may be homocysteine
Hi All, on going (20 years) of discussion with GP about exhaustion. He agreed to injections for a while but that stopped during Covid. I've injected myself for a bit. Now he has agreed to do further test (as blood comes back a huge number because I am injecting!). I think the test may be homocysteine
auldreekie
in
Pernicious Anaemia Society
3 months ago
temperature/anxiety and excess urination.
so I’ve just had a second lot of loading doses. All was going well however I got sick towards the end of these last week. Before I got sick all my B12 symptoms were clearing up completely. but now the urination frequency has returned with extreme tiredness, anxiety like I’ve never felt before and crying
so I’ve just had a second lot of loading doses. All was going well however I got sick towards the end of these last week. Before I got sick all my B12 symptoms were clearing up completely. but now the urination frequency has returned with extreme tiredness, anxiety like I’ve never felt before and crying
Gobbozoid
in
Pernicious Anaemia Society
3 months ago
”Placebo effect”
my doctor just told me it’s placebo effect having tiredness, pins and needles, dizziness etc before having my injection at the 12 week point. I’ve never gotten more frustrated and angry at a doctor on the phone in my life. He also said b12 levels don’t drop until after 2 years? How do people get their
my doctor just told me it’s placebo effect having tiredness, pins and needles, dizziness etc before having my injection at the 12 week point. I’ve never gotten more frustrated and angry at a doctor on the phone in my life. He also said b12 levels don’t drop until after 2 years? How do people get their
Ellamae2
in
Pernicious Anaemia Society
3 months ago
Current Trial
Current Trial 1.5 mg hydroxocobalamin/B12 SC injection at 3mg/ml concentration, 1.5mg injection methylcobalamin/B12 at 3mg/ml concentration, 1.5mg injection adenosylcobalamin/B12 at 3mg/ml concentration, 300 mg oral Benforotiamine/B1 and 50 mg oral P-5-P/B6 4-5 times a day and 2000 mg Magnesium L-Threonate
Current Trial 1.5 mg hydroxocobalamin/B12 SC injection at 3mg/ml concentration, 1.5mg injection methylcobalamin/B12 at 3mg/ml concentration, 1.5mg injection adenosylcobalamin/B12 at 3mg/ml concentration, 300 mg oral Benforotiamine/B1 and 50 mg oral P-5-P/B6 4-5 times a day and 2000 mg Magnesium L-Threonate
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
B12 and anxiety
Just posted but forgot to add this.. Since loading doses still having headaches, the pins and needles have stopped but I feel weird I think it's anxiety my whole body feels like it's vibrating best I can describe. Is this normal for the loading doses to cause anxiety?
Just posted but forgot to add this.. Since loading doses still having headaches, the pins and needles have stopped but I feel weird I think it's anxiety my whole body feels like it's vibrating best I can describe. Is this normal for the loading doses to cause anxiety?
gemmacampbell
in
Pernicious Anaemia Society
3 months ago
Suspect thyroid issue
I'm concerned my iron and
b12
are at the low end of the normal range. And my T4 seems borderline to me. Should I be requesting further thyroid tests and will they do them?
I'm concerned my iron and
b12
are at the low end of the normal range. And my T4 seems borderline to me. Should I be requesting further thyroid tests and will they do them?
Loulabelle78
in
Thyroid UK
1 month ago
Thyroid labs
I have usually have hypothyroid. And on levo 75mg and 12 mg of T3. Now i have come back 0.33 TSH ( classed abnormal) I do have symptoms face heart rate, insomnia, exhaustion, skin fkushing. Sun sensitivity. In middle of Range T4 and T3 ( classed as normal) TPO 2,000 And low parathyroid levels
I have usually have hypothyroid. And on levo 75mg and 12 mg of T3. Now i have come back 0.33 TSH ( classed abnormal) I do have symptoms face heart rate, insomnia, exhaustion, skin fkushing. Sun sensitivity. In middle of Range T4 and T3 ( classed as normal) TPO 2,000 And low parathyroid levels
Chaseandcherry
in
Thyroid UK
3 months ago
Neurology Doc advice
saw neurology consultant few days ago re the MRI scan I had after a stroke last year. And when I mentioned how my memory banks were badly affected and also said I was getting 2 monthly injections of B12 he told me that B12 would improve my memory losses so hopefully I can get my Doc to agree to more
saw neurology consultant few days ago re the MRI scan I had after a stroke last year. And when I mentioned how my memory banks were badly affected and also said I was getting 2 monthly injections of B12 he told me that B12 would improve my memory losses so hopefully I can get my Doc to agree to more
Beadbuddy
in
Pernicious Anaemia Society
3 months ago
Symprove for digestive issues?
I have read that some people have had help with Symprove. What symptoms would you say it helps with most. I have some IBS like pains, some bloating and nausea and general nerve pain through my abdomen. I have had loads of scans, tests and consults and they all say nothing serious appears to be going
I have read that some people have had help with Symprove. What symptoms would you say it helps with most. I have some IBS like pains, some bloating and nausea and general nerve pain through my abdomen. I have had loads of scans, tests and consults and they all say nothing serious appears to be going
Chickens44
in
Pernicious Anaemia Society
3 months ago
still low energy & weak arm/leg
Hi, I’ve 24 loading doses of 1000mcg B12 through the GP, although many of my symptoms have gone (falling over, rapid heartbeat, breathlessness, double vision, hallucinations) I’m still experiencing very low energy on some days, I’ve gone from working full time and being very active to some days being
Hi, I’ve 24 loading doses of 1000mcg B12 through the GP, although many of my symptoms have gone (falling over, rapid heartbeat, breathlessness, double vision, hallucinations) I’m still experiencing very low energy on some days, I’ve gone from working full time and being very active to some days being
Karenedawson
in
Pernicious Anaemia Society
3 months ago
Please advise re results.
I have a TSH of 0.005 ( 0.27-4.2) T3 of 5.9 ( 3.1-6.8) and T4 of 10.5 ( 12 -22). My pulse is 79. I am losing weight slowly with fasting from dawn till dusk twice a week but I am constipated, have little stamina ( I can only really do one thing a day eg if I go for a swim in the morning I am wiped
I have a TSH of 0.005 ( 0.27-4.2) T3 of 5.9 ( 3.1-6.8) and T4 of 10.5 ( 12 -22). My pulse is 79. I am losing weight slowly with fasting from dawn till dusk twice a week but I am constipated, have little stamina ( I can only really do one thing a day eg if I go for a swim in the morning I am wiped
Hectorsmum2
in
Thyroid UK
3 months ago
How overcome a high B12 test from when I must supplement to function?
Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other autoimmune conditions and I recently learned my mom was being treated for PA when she passed. After suffering so many of the symptoms of PA for
Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other autoimmune conditions and I recently learned my mom was being treated for PA when she passed. After suffering so many of the symptoms of PA for
Pamelayne
in
Pernicious Anaemia Society
3 months ago
Wrong time to reduce SSRIs?
I was on 150mg of sertraline, I cut it down to 125mg earlier this year. A few days ago I cut the dose down to 100mg. I am having a few withdrawal symptoms, nausea, tired, bit shaky, upset tummy, etc. Which I expected. Nothing too bad, but I’m just wondering if I would be better to wait until I have started
I was on 150mg of sertraline, I cut it down to 125mg earlier this year. A few days ago I cut the dose down to 100mg. I am having a few withdrawal symptoms, nausea, tired, bit shaky, upset tummy, etc. Which I expected. Nothing too bad, but I’m just wondering if I would be better to wait until I have started
Chickens44
in
Pernicious Anaemia Society
3 months ago
dark shadows in inside corners of eyes
what could cause these dark shadows in my granny's eyes, it's on both sides, it appears every few months and can last for months sometime. She gets b12 injections but her levels are fine and she had her last injection a week ago. Any thoughts are much appreciated
what could cause these dark shadows in my granny's eyes, it's on both sides, it appears every few months and can last for months sometime. She gets b12 injections but her levels are fine and she had her last injection a week ago. Any thoughts are much appreciated
MissyMe2
in
PMRGCAuk
3 months ago
Imbibe B12 Ampoules ?
hello, seems a strange question. I decided to try some Panpharma ampoules and the stinging is unbearable. Sane needles, tried different spots same awful stinging. Give me pain injecting anytime over this. There is no way I m going to inject even 1 ampoule. So rather than waste them I can either
hello, seems a strange question. I decided to try some Panpharma ampoules and the stinging is unbearable. Sane needles, tried different spots same awful stinging. Give me pain injecting anytime over this. There is no way I m going to inject even 1 ampoule. So rather than waste them I can either
Wheat
in
Pernicious Anaemia Society
3 months ago
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