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Lupus SLE - Dry Mouth
Hi there, I’ve SLE which has been very well managed on hydroxychloroquine and Methotrexate. However, this past four months I’ve had a VERY stressful time. Constant minimal sleep, no appetite and weight loss. Now on anti depressants too. I’m now suffering from a dry mouth in that I can’t get through
Hi there, I’ve SLE which has been very well managed on hydroxychloroquine and Methotrexate. However, this past four months I’ve had a VERY stressful time. Constant minimal sleep, no appetite and weight loss. Now on anti depressants too. I’m now suffering from a dry mouth in that I can’t get through
Sin123
in
LUPUS UK
4 years ago
Eyes burning, bloodshot, blurred eye sight.
I woke up with a shock late last night, with incredibly painful eyes. They appeared very bloodshot and were watering copiously. I was unable to open the worst eye properly and my vision seemed distorted and blurred. I poured eyedrops ( for dry eyes) into them and did an eyebath. Eventually it settled
I woke up with a shock late last night, with incredibly painful eyes. They appeared very bloodshot and were watering copiously. I was unable to open the worst eye properly and my vision seemed distorted and blurred. I poured eyedrops ( for dry eyes) into them and did an eyebath. Eventually it settled
SheffieldJane
in
PMRGCAuk
4 years ago
slight smarting both eyes
Developed slight smarting in both my eyes over the last few weeks. My vision is not impaired . The condition is intermittant and does not seriously me but is worrying. Its what I imagine eye strain to be but for no reason. Could it be the chemistry if the tears I wonder. Can this be checked , perhaps
Developed slight smarting in both my eyes over the last few weeks. My vision is not impaired . The condition is intermittant and does not seriously me but is worrying. Its what I imagine eye strain to be but for no reason. Could it be the chemistry if the tears I wonder. Can this be checked , perhaps
Darkin
in
Pain Concern
4 years ago
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Cataracts or AMD ?
Hi everyone. I am new to this site. I have high myopia which has been stable for many years since I had retinal detachment surgery in both eyes at 30 years old. I am now 56 and for the past couple of years I have struggled seeing in low light. Opticians say my vision is good for someone so myopic and
Hi everyone. I am new to this site. I have high myopia which has been stable for many years since I had retinal detachment surgery in both eyes at 30 years old. I am now 56 and for the past couple of years I have struggled seeing in low light. Opticians say my vision is good for someone so myopic and
Hidden
in
Macular Society
4 years ago
Hanging on
cannot sleep mind is racing floaters in eyes have got worse , im walking on egg shells i dont know if i can carry on im having bad thoughts all day every day , and the pain is crippling me , i am drained 😔
cannot sleep mind is racing floaters in eyes have got worse , im walking on egg shells i dont know if i can carry on im having bad thoughts all day every day , and the pain is crippling me , i am drained 😔
paul078
in
Mental Health Support
4 years ago
Diagnosis difficulties
Hi I'm in the UK.. Struggling to get diagnosed... Ibs, dry eye, dry mouth, fatigue, breathless... Mother ra, brother lupus, Aunty sjogren's.. No antibodies.. But gp states not auto immune as all blood tests show fit and well. What can I do next?? Any guidance much appreciated
Hi I'm in the UK.. Struggling to get diagnosed... Ibs, dry eye, dry mouth, fatigue, breathless... Mother ra, brother lupus, Aunty sjogren's.. No antibodies.. But gp states not auto immune as all blood tests show fit and well. What can I do next?? Any guidance much appreciated
ladyjedi
in
The Australian Sjögren's Syndrome Association
4 years ago
Mycosis Fungoides
Hi. I haven’t posted in a while but wanted anyone’s opinion on being tested for mycosis Fungoides and if anyone had CLL plus this disease. It’s a cutaneous T cell lymphoma. I’ve had a rash that was there two years ago and and it goes away and comes back in different areas. No scaling, itchiness
Hi. I haven’t posted in a while but wanted anyone’s opinion on being tested for mycosis Fungoides and if anyone had CLL plus this disease. It’s a cutaneous T cell lymphoma. I’ve had a rash that was there two years ago and and it goes away and comes back in different areas. No scaling, itchiness
Madison1995
in
CLL Support
4 years ago
Fist Pump - The little successes!
I could probably post all the time, because you all understand the journey. I try not to over post here, but I wanted to share this with you all. I have a private Facebook group page for my Mom's family & friends, so I can keep everyone updated on her health, and ultimately educate them (or try) on
I could probably post all the time, because you all understand the journey. I try not to over post here, but I wanted to share this with you all. I have a private Facebook group page for my Mom's family & friends, so I can keep everyone updated on her health, and ultimately educate them (or try) on
bazooka111
in
PSP Association
4 years ago
Central serous chorioretinopathy and PDT
Hi, I have had CSCR episodes in my left eye for a number of years now. They seem to resolve but keep returning,, at least once a year. I had a flare up a few weeks ago and my consultant has suggested Photodynamic Therapy for this Friday. I agreed but now I worry it may end up doing more bad than good
Hi, I have had CSCR episodes in my left eye for a number of years now. They seem to resolve but keep returning,, at least once a year. I had a flare up a few weeks ago and my consultant has suggested Photodynamic Therapy for this Friday. I agreed but now I worry it may end up doing more bad than good
barbiedog
in
Macular Society
4 years ago
New diagnosis
I was wondering if anyone has heard of blepharitis? I was surprised when I was diagnosed with it. I have never had flaky eye lashes or signs of it. It’s inflammation in the oil glands near the eye lashes. I’m so tired of hear that darn word. “Inflammation”. I have a flare and I’m trying to figure how
I was wondering if anyone has heard of blepharitis? I was surprised when I was diagnosed with it. I have never had flaky eye lashes or signs of it. It’s inflammation in the oil glands near the eye lashes. I’m so tired of hear that darn word. “Inflammation”. I have a flare and I’m trying to figure how
Jennyhadenough
in
PBC Foundation
4 years ago
EMDR
Has anyone tried EMDR?
Has anyone tried EMDR?
bulldog71
in
My OCD Community
4 years ago
PV and Teaching Amidst Covid
Hi All. I am age 54, have PV and also rheumatoid arthritis that may or may not be related to my MPN. I was being treated with Pegasys, and my blood levels were very well controlled. In the last few months though, inflammation led to a diagnosis of rheumatoid arthritis, which then led to may oncologist
Hi All. I am age 54, have PV and also rheumatoid arthritis that may or may not be related to my MPN. I was being treated with Pegasys, and my blood levels were very well controlled. In the last few months though, inflammation led to a diagnosis of rheumatoid arthritis, which then led to may oncologist
clevemic
in
MPN Voice
4 years ago
Pineapple and floaters
Has anyone heard of a recent study in Taiwan looking at the effects on floaters of eating pineapple? I have always had floaters, which got worse after a bout of posterior vitreous detachment and are very annoying even if not dangerous as is my AMD (under control with AREDS2 for the dry eye and injections
Has anyone heard of a recent study in Taiwan looking at the effects on floaters of eating pineapple? I have always had floaters, which got worse after a bout of posterior vitreous detachment and are very annoying even if not dangerous as is my AMD (under control with AREDS2 for the dry eye and injections
ElviraKate
in
Macular Society
4 years ago
Edoxaban and surgery - update
Just thought I would update you all, on the issue I had last week concerning stopping taking edoxaban before a minor operation, as I had a blood clot before being prescribed any anti-coag's 7 years ago, and being"more than your average anxious type" person!! I ended up having a telephone discussion about
Just thought I would update you all, on the issue I had last week concerning stopping taking edoxaban before a minor operation, as I had a blood clot before being prescribed any anti-coag's 7 years ago, and being"more than your average anxious type" person!! I ended up having a telephone discussion about
Wightbaby
in
Atrial Fibrillation Support
4 years ago
Rheumatology telephone appointment
Haven’t written on here for a while but do pop in and read what’s happening. Had my second rheumatology appointment yesterday over the phone. He said he had come out of retirement to help out for now during lockdown. He went through ‘my story’. He questioned whether the pains I have in the bottom
Haven’t written on here for a while but do pop in and read what’s happening. Had my second rheumatology appointment yesterday over the phone. He said he had come out of retirement to help out for now during lockdown. He went through ‘my story’. He questioned whether the pains I have in the bottom
Spittal9
in
PMRGCAuk
4 years ago
Colistimethate powder for use in a nebuliser
Good afternoon all, on a daily basis I take the above powdered antibiotic (Promixin) through my nebuliser with a saline solution to help with my psudamonas bugs. The other day I noticed I had ran out of saline so I had to used one of my salbutamol solutions to mix it. Will this have been ok? Has anyone
Good afternoon all, on a daily basis I take the above powdered antibiotic (Promixin) through my nebuliser with a saline solution to help with my psudamonas bugs. The other day I noticed I had ran out of saline so I had to used one of my salbutamol solutions to mix it. Will this have been ok? Has anyone
Joseph260268
in
Lung Conditions Community Forum
4 years ago
Wrinkly fingers and pitting edema on fingers.
Wrinkly fingers and pitting edema on fingers. Is this caused by Hashimotos or maybe a sign of undermedicated?
Wrinkly fingers and pitting edema on fingers. Is this caused by Hashimotos or maybe a sign of undermedicated?
Nessynu
in
Thyroid UK
4 years ago
Twisted ankle - am hopping mad!!
Am so annoyed with myself! Finished C25K a couple of weeks ago and been happily consolidating - getting a bit faster each run. Yesterday met a pal for a long (9 mile) ramble in the Dales, fell and twisted my ankle around mile 6. Finished the walk, drove home, now sporting egg size swelling on ankle
Am so annoyed with myself! Finished C25K a couple of weeks ago and been happily consolidating - getting a bit faster each run. Yesterday met a pal for a long (9 mile) ramble in the Dales, fell and twisted my ankle around mile 6. Finished the walk, drove home, now sporting egg size swelling on ankle
Gill2000
Graduate
in
Couch to 5K
4 years ago
I ALREADY HAVE RHEUMATOID ARTHRITIS. BUT I ALSO MIGHT BE A FUTURE SJOGREN’S SYNDROME SUFFERER. ANYONE OUT THERE WITH THE SAME THINGS?
Hi. As i’ve already said. I’ve been on this forum a few times. Not on a regular basis though. So maybe i repeat myself bit. (Sorry!) I’ve just turned 49. (I had a publess birthday last week). I’ve had rheumatoid arthritis & Iritis since i was 21. Glaucoma came on about 9 yrs ago. I’ve had some awful
Hi. As i’ve already said. I’ve been on this forum a few times. Not on a regular basis though. So maybe i repeat myself bit. (Sorry!) I’ve just turned 49. (I had a publess birthday last week). I’ve had rheumatoid arthritis & Iritis since i was 21. Glaucoma came on about 9 yrs ago. I’ve had some awful
Vixen2
in
NRAS
4 years ago
Twitching of legs
Hi All I have been suffering of permanent AF for long time,controlled (not well) with Bisoprolol, Apixaban and Telmisartan and Statins. Recently I noted frequent twitching of my legs. Can it be connected with AF or the medicines or not? Anyone have experienced that? Many thanks.
Hi All I have been suffering of permanent AF for long time,controlled (not well) with Bisoprolol, Apixaban and Telmisartan and Statins. Recently I noted frequent twitching of my legs. Can it be connected with AF or the medicines or not? Anyone have experienced that? Many thanks.
TO383Y
in
AF Association
4 years ago
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