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Uva Ursi
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Nothing's helping
I tried taking my Urso and prednisone this morning with breakfast Than the azathioprine with lunch. I have a call in with my dr. The nauseous and puking doesn't stop even with the anti nauseous pill that disolves under my tongue. I'm sick this isn't working for me
I tried taking my Urso and prednisone this morning with breakfast Than the azathioprine with lunch. I have a call in with my dr. The nauseous and puking doesn't stop even with the anti nauseous pill that disolves under my tongue. I'm sick this isn't working for me
Hidden
in
PBC Foundation
7 years ago
Appetite
Only been on urso a week but I don't seem to have much appetite, anyone else find this?
Only been on urso a week but I don't seem to have much appetite, anyone else find this?
Quilter1
in
PBC Foundation
7 years ago
Differences in prescription
Hi. I'm sure I read on here somewhere that the different brands of URSO had different mixes/blends in them. I was originally put in ursofalk and have got past the side effects part. But when getting my next prescription found that it's a generic one. I'm thinking it probably doesn't make much difference
Hi. I'm sure I read on here somewhere that the different brands of URSO had different mixes/blends in them. I was originally put in ursofalk and have got past the side effects part. But when getting my next prescription found that it's a generic one. I'm thinking it probably doesn't make much difference
Angel_b
in
PBC Foundation
7 years ago
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Adderall or Ritalin for brain fog/mood stabilizer and fatigue
Has anyone been put on Adderall or Ritalin for these side effects? My nurse wants put me on Prozac. I know that I am struggling with this just as all of are on here. It is a lot to consume and juggle your everyday life. I don't feel I am manic depressive I know that I am emotional about having PBC. After
Has anyone been put on Adderall or Ritalin for these side effects? My nurse wants put me on Prozac. I know that I am struggling with this just as all of are on here. It is a lot to consume and juggle your everyday life. I don't feel I am manic depressive I know that I am emotional about having PBC. After
cfsummerford72
in
PBC Foundation
7 years ago
very dry raised brown spots
Hi Guys, I would like to know if any of you good people have had a lot of brown spots on your skin mine are mostly on my legs and arms and look terrible and I recently started getting very dry eyes so bad my eyelids cracked and were so sore and swollen I canceled my vacation to Mexico, appriactedI am
Hi Guys, I would like to know if any of you good people have had a lot of brown spots on your skin mine are mostly on my legs and arms and look terrible and I recently started getting very dry eyes so bad my eyelids cracked and were so sore and swollen I canceled my vacation to Mexico, appriactedI am
susanashworth
in
PBC Foundation
7 years ago
Urso, weight gain & mineral supplements
Hi, I've been taking 500mg of urso a day since Dec & my weight has gone up by 10lbs! Is this a normal side affect? And please tell me it will settle back down!! Also, I've been getting lots of aches & pains in my muscles & especially my feet. I read that taking magnesium tablets can help but was wondering
Hi, I've been taking 500mg of urso a day since Dec & my weight has gone up by 10lbs! Is this a normal side affect? And please tell me it will settle back down!! Also, I've been getting lots of aches & pains in my muscles & especially my feet. I read that taking magnesium tablets can help but was wondering
Melani1
in
PBC Foundation
7 years ago
Side Effects from Urso
I has anyone had side effects from Urso I have had Acid reflex and Back pain for some months now Run out of Urso and had to wait 5 days for more in this time my Back pain eased and Acid Reflux improved may be a coincidence i am seeing my Consultant next week M
I has anyone had side effects from Urso I have had Acid reflex and Back pain for some months now Run out of Urso and had to wait 5 days for more in this time my Back pain eased and Acid Reflux improved may be a coincidence i am seeing my Consultant next week M
Roccadave
in
PBC Foundation
7 years ago
Spider angiomas
Hi - male, aged 41 had pbc around 6 years. I have recently noticed what appear to be small broken blood vessels on the skin over my ribs. Having researched this I suspect they may be spider angiomas however most of them (there are about 10-15 and very faint) are just a single line and not the spider
Hi - male, aged 41 had pbc around 6 years. I have recently noticed what appear to be small broken blood vessels on the skin over my ribs. Having researched this I suspect they may be spider angiomas however most of them (there are about 10-15 and very faint) are just a single line and not the spider
Aussie05
in
PBC Foundation
7 years ago
Just diagnosed with pbc
Hello all. I am 46 and female. I was just diagnosed with pbc. My ama level is 2.3. My biopsy shows inflammation in liver but no scarring yet so... (early stage). My alkaline phosphatate is 350. My alt is 126 and my ast is 117. I had a positive Ana also but low titer. My doctor thinks I may also have
Hello all. I am 46 and female. I was just diagnosed with pbc. My ama level is 2.3. My biopsy shows inflammation in liver but no scarring yet so... (early stage). My alkaline phosphatate is 350. My alt is 126 and my ast is 117. I had a positive Ana also but low titer. My doctor thinks I may also have
Vera70
in
PBC Foundation
7 years ago
Fenofibrate?
Hi- it's been a while since I've posted but hoping you can help. I have to see my consultant in 2 weeks and want to be prepared. He has twice put me on fenofibrate( I came off the 1st time shortly after starting with my gp's approval) because my lft readings remain high. This would suggest urso not
Hi- it's been a while since I've posted but hoping you can help. I have to see my consultant in 2 weeks and want to be prepared. He has twice put me on fenofibrate( I came off the 1st time shortly after starting with my gp's approval) because my lft readings remain high. This would suggest urso not
Jo53
in
PBC Foundation
7 years ago
Urso, side effect jawl pain?
So a few weeks ago I started my Urso regime. 500mg twice daily. I do see a sliwing of the itch. I think it is causing some constipation . But what is troublesome is I am experiencing stiff jawl. It hurts just under my ear when I try to open my mouth to take a bite of food. Will this pass? Do I need to
So a few weeks ago I started my Urso regime. 500mg twice daily. I do see a sliwing of the itch. I think it is causing some constipation . But what is troublesome is I am experiencing stiff jawl. It hurts just under my ear when I try to open my mouth to take a bite of food. Will this pass? Do I need to
cfsummerford72
in
PBC Foundation
7 years ago
Recently Diagnosed
Hi, Following a liver biopsy, I have now been diagnosed with PBC and have started taking Urso. I've stopped drinking...and already eat a healthy diet. Any advice for staying healthy and doing all I can to manage this condition? I'm also hoping to be starting some sort of fertility treatment but now
Hi, Following a liver biopsy, I have now been diagnosed with PBC and have started taking Urso. I've stopped drinking...and already eat a healthy diet. Any advice for staying healthy and doing all I can to manage this condition? I'm also hoping to be starting some sort of fertility treatment but now
mrsreddave
in
PBC Foundation
7 years ago
Depressed and anxious
Hi I am new to the Anxiety support and I really hope someone reads this message who can help me I don't know how to cope with my anxiety panic and crying at the moment. I don't normally talk about my personal life but I have a daughter in law who since meeting my son 6 years ago has made my life miserable
Hi I am new to the Anxiety support and I really hope someone reads this message who can help me I don't know how to cope with my anxiety panic and crying at the moment. I don't normally talk about my personal life but I have a daughter in law who since meeting my son 6 years ago has made my life miserable
Twill
in
Anxiety Support
7 years ago
Slight electrical cramp that goes on-off in my left arm
I am newly PBC diagnosed and I am on Urso for my 3rd week. I am noticing like this slight electrical cramp on-off in my left arm and generally cramps and tiredness in my arms and legs, mainly in the morning. I also feel these small electrical cramps in my body but I associate them with the bloating because
I am newly PBC diagnosed and I am on Urso for my 3rd week. I am noticing like this slight electrical cramp on-off in my left arm and generally cramps and tiredness in my arms and legs, mainly in the morning. I also feel these small electrical cramps in my body but I associate them with the bloating because
ritarobainapbc
in
PBC Foundation
7 years ago
Just need to vent
I'm just finding all this out in the last few months its very scary but I'm trying to keep it together. I have PBC stage lV Cirrhosis I just had an upper endoscopy I have Esophageal Varices Grade 1. I'm having another Ultra Sound on May 22nd. I went from a little stomach pain to all my joints hurting
I'm just finding all this out in the last few months its very scary but I'm trying to keep it together. I have PBC stage lV Cirrhosis I just had an upper endoscopy I have Esophageal Varices Grade 1. I'm having another Ultra Sound on May 22nd. I went from a little stomach pain to all my joints hurting
Hidden
in
PBC Foundation
7 years ago
Increased salivatory glands
Anyone with increased salivatory glands when usint Urso - or can they be caused by PBC?
Anyone with increased salivatory glands when usint Urso - or can they be caused by PBC?
saarima
in
PBC Foundation
7 years ago
Ocaliva just came across this please read if you struggle with urso like me π
I have just come across this site https://ocaliva.com/ if you find it hard to take urso like me, this is another medication you can take for pbc π€π² I didn't think there was any other medication, please have a look, if likevme you struggle taking urso xxx hope this helps! ππͺπ»
I have just come across this site https://ocaliva.com/ if you find it hard to take urso like me, this is another medication you can take for pbc π€π² I didn't think there was any other medication, please have a look, if likevme you struggle taking urso xxx hope this helps! ππͺπ»
Shazzamattaz
in
British Liver Trust
7 years ago
AMA and ANA question
Hi, I was diagnosed in February and started on URSO. Just a quick question, do you normally have your ANA and AMA levels retested after initial diagnosis? If so, do they tend to stay the same or decrease, and by how much? Thanks, Kiki
Hi, I was diagnosed in February and started on URSO. Just a quick question, do you normally have your ANA and AMA levels retested after initial diagnosis? If so, do they tend to stay the same or decrease, and by how much? Thanks, Kiki
youaremysunshine
in
PBC Foundation
7 years ago
Milk thistle question
Hi, I was diagnosed in Dec 2012 after I had a liver biopsy, since then I'm suffering from extreme fatigue, I'm not working at the moment either, I have to admit I couldn't take the urso medicine it smells & tastes disgusting so for 3 years I didn't take this, I'm now on tablets, I had a ultrasound scan
Hi, I was diagnosed in Dec 2012 after I had a liver biopsy, since then I'm suffering from extreme fatigue, I'm not working at the moment either, I have to admit I couldn't take the urso medicine it smells & tastes disgusting so for 3 years I didn't take this, I'm now on tablets, I had a ultrasound scan
Shazzamattaz
in
British Liver Trust
7 years ago
Green lipped muscle powder
Hi everyone I just wondered if anyone knew about green lipped muscle powder? And if there were any contradictions taking it with PBC? I have heard it helps with joint pain. I also have fibromyalgia, so suffer badly. I was diagnosed with PBC 10 years ago and take 2,000 mg of Urso daily. Thank you
Hi everyone I just wondered if anyone knew about green lipped muscle powder? And if there were any contradictions taking it with PBC? I have heard it helps with joint pain. I also have fibromyalgia, so suffer badly. I was diagnosed with PBC 10 years ago and take 2,000 mg of Urso daily. Thank you
Lozzy30
in
PBC Foundation
7 years ago
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