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Uva Ursi
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Depressed and anxious
Hi I am new to the Anxiety support and I really hope someone reads this message who can help me I don't know how to cope with my anxiety panic and crying at the moment. I don't normally talk about my personal life but I have a daughter in law who since meeting my son 6 years ago has made my life miserable
Hi I am new to the Anxiety support and I really hope someone reads this message who can help me I don't know how to cope with my anxiety panic and crying at the moment. I don't normally talk about my personal life but I have a daughter in law who since meeting my son 6 years ago has made my life miserable
Twill
in
Anxiety Support
7 years ago
Slight electrical cramp that goes on-off in my left arm
I am newly PBC diagnosed and I am on Urso for my 3rd week. I am noticing like this slight electrical cramp on-off in my left arm and generally cramps and tiredness in my arms and legs, mainly in the morning. I also feel these small electrical cramps in my body but I associate them with the bloating because
I am newly PBC diagnosed and I am on Urso for my 3rd week. I am noticing like this slight electrical cramp on-off in my left arm and generally cramps and tiredness in my arms and legs, mainly in the morning. I also feel these small electrical cramps in my body but I associate them with the bloating because
ritarobainapbc
in
PBC Foundation
7 years ago
Just need to vent
I'm just finding all this out in the last few months its very scary but I'm trying to keep it together. I have PBC stage lV Cirrhosis I just had an upper endoscopy I have Esophageal Varices Grade 1. I'm having another Ultra Sound on May 22nd. I went from a little stomach pain to all my joints hurting
I'm just finding all this out in the last few months its very scary but I'm trying to keep it together. I have PBC stage lV Cirrhosis I just had an upper endoscopy I have Esophageal Varices Grade 1. I'm having another Ultra Sound on May 22nd. I went from a little stomach pain to all my joints hurting
Hidden
in
PBC Foundation
7 years ago
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Increased salivatory glands
Anyone with increased salivatory glands when usint Urso - or can they be caused by PBC?
Anyone with increased salivatory glands when usint Urso - or can they be caused by PBC?
saarima
in
PBC Foundation
7 years ago
Ocaliva just came across this please read if you struggle with urso like me π
I have just come across this site https://ocaliva.com/ if you find it hard to take urso like me, this is another medication you can take for pbc π€π² I didn't think there was any other medication, please have a look, if likevme you struggle taking urso xxx hope this helps! ππͺπ»
I have just come across this site https://ocaliva.com/ if you find it hard to take urso like me, this is another medication you can take for pbc π€π² I didn't think there was any other medication, please have a look, if likevme you struggle taking urso xxx hope this helps! ππͺπ»
Shazzamattaz
in
British Liver Trust
7 years ago
AMA and ANA question
Hi, I was diagnosed in February and started on URSO. Just a quick question, do you normally have your ANA and AMA levels retested after initial diagnosis? If so, do they tend to stay the same or decrease, and by how much? Thanks, Kiki
Hi, I was diagnosed in February and started on URSO. Just a quick question, do you normally have your ANA and AMA levels retested after initial diagnosis? If so, do they tend to stay the same or decrease, and by how much? Thanks, Kiki
youaremysunshine
in
PBC Foundation
7 years ago
Milk thistle question
Hi, I was diagnosed in Dec 2012 after I had a liver biopsy, since then I'm suffering from extreme fatigue, I'm not working at the moment either, I have to admit I couldn't take the urso medicine it smells & tastes disgusting so for 3 years I didn't take this, I'm now on tablets, I had a ultrasound scan
Hi, I was diagnosed in Dec 2012 after I had a liver biopsy, since then I'm suffering from extreme fatigue, I'm not working at the moment either, I have to admit I couldn't take the urso medicine it smells & tastes disgusting so for 3 years I didn't take this, I'm now on tablets, I had a ultrasound scan
Shazzamattaz
in
British Liver Trust
7 years ago
Green lipped muscle powder
Hi everyone I just wondered if anyone knew about green lipped muscle powder? And if there were any contradictions taking it with PBC? I have heard it helps with joint pain. I also have fibromyalgia, so suffer badly. I was diagnosed with PBC 10 years ago and take 2,000 mg of Urso daily. Thank you
Hi everyone I just wondered if anyone knew about green lipped muscle powder? And if there were any contradictions taking it with PBC? I have heard it helps with joint pain. I also have fibromyalgia, so suffer badly. I was diagnosed with PBC 10 years ago and take 2,000 mg of Urso daily. Thank you
Lozzy30
in
PBC Foundation
7 years ago
Bezafibrate
I have been on Urso for about 6 months but my levels have been up and down. I started on bezafibrate about 4 weeks ago and my ALP has gone from 686 to 377 ! Is anyone else on this , I still have the terrible itch x
I have been on Urso for about 6 months but my levels have been up and down. I started on bezafibrate about 4 weeks ago and my ALP has gone from 686 to 377 ! Is anyone else on this , I still have the terrible itch x
Melwoods
in
PBC Foundation
7 years ago
Pbc progressing ?
Hi everyone hope your all well. I was diagnosed with pbc two and half years ago after a period of severe fatigue . After initial shock I started on urso responded well . Stopped smoking ate a healthy diet etc I lost weight and continued working 40+ hours a week and quite honestly felt quite well apart
Hi everyone hope your all well. I was diagnosed with pbc two and half years ago after a period of severe fatigue . After initial shock I started on urso responded well . Stopped smoking ate a healthy diet etc I lost weight and continued working 40+ hours a week and quite honestly felt quite well apart
tessiecat
in
PBC Foundation
7 years ago
Ocaliva cost??
Where are you from? I'm currently taking URSO (started in early January) and while it's making my numbers better...300s down from 900s it's still not where doctor wants it. He has me taking it 3 more months to see if it keeps dropping. If not he says we'll start Ocaliva at that point. He said sometimes
Where are you from? I'm currently taking URSO (started in early January) and while it's making my numbers better...300s down from 900s it's still not where doctor wants it. He has me taking it 3 more months to see if it keeps dropping. If not he says we'll start Ocaliva at that point. He said sometimes
marty102
in
PBC Foundation
7 years ago
LDN a strong anti-inflammatory??
Hello, (this photo, because it made me smile! Hopefully it will you too. π) I read recently that LDN was a strong anti- inflammatory. I've been off LDN now for a week and a half, I had originally started it back in Jan. on the 16th. I stopped it 8 days ago to see if it was actually causing my swollen
Hello, (this photo, because it made me smile! Hopefully it will you too. π) I read recently that LDN was a strong anti- inflammatory. I've been off LDN now for a week and a half, I had originally started it back in Jan. on the 16th. I stopped it 8 days ago to see if it was actually causing my swollen
Ktltel
in
LDN Research Trust
7 years ago
Don't know what to do.
The two thing I'm really fed up with is tiredness and memory loss. I'm 58 and to be quite honest I'm frightened to death of what is to come. I've been diagnosed two or three yrs ago now and it just doesn't seem to get any better I'm on Urso, but now my knees and hip hurt having Gynelogical problems
The two thing I'm really fed up with is tiredness and memory loss. I'm 58 and to be quite honest I'm frightened to death of what is to come. I've been diagnosed two or three yrs ago now and it just doesn't seem to get any better I'm on Urso, but now my knees and hip hurt having Gynelogical problems
Leighton56
in
PBC Foundation
7 years ago
Bloods
Hi . Was diagnosed with pbc 3 years ago, bloods at the time were very high but after taking urso they have got better over the past couple years, but when I have my lfts done they often fluctuate and it worries me , is it diet I hardly ever drink alcohol, does this happen to anyone else ? Many thanks
Hi . Was diagnosed with pbc 3 years ago, bloods at the time were very high but after taking urso they have got better over the past couple years, but when I have my lfts done they often fluctuate and it worries me , is it diet I hardly ever drink alcohol, does this happen to anyone else ? Many thanks
Ginnymax
in
PBC Foundation
7 years ago
Blood results
Hi all , I've had pbc know for 3 years. At first Lfts were very high but have been a lot better since talking urso , but my blood tests fluctuate and this worries me , does anyone know why they do this ? Can it be diet ? I hardly drink alcohol one or two glasses of wine a year ! Or is this common in
Hi all , I've had pbc know for 3 years. At first Lfts were very high but have been a lot better since talking urso , but my blood tests fluctuate and this worries me , does anyone know why they do this ? Can it be diet ? I hardly drink alcohol one or two glasses of wine a year ! Or is this common in
Ginnymax
in
British Liver Trust
7 years ago
Got my Rheumatologist results...
Hello friends, Wish it was good news. But, it is what it is... I've been diagnosed with SERONEGATIVE RA. Anyone else out there have this? The treatment is the same as it is for Seropositive RA. I'm on prednisone right now and as we are expecting storms tonight, my joints hurt even though I'm on
Hello friends, Wish it was good news. But, it is what it is... I've been diagnosed with SERONEGATIVE RA. Anyone else out there have this? The treatment is the same as it is for Seropositive RA. I'm on prednisone right now and as we are expecting storms tonight, my joints hurt even though I'm on
Ktltel
in
PBC Foundation
7 years ago
Pain on both sides
I have had pain in both my sides for over two years now, was diagnosed 2 weeks ago and on URSO for two weeks...it does not go away and gets worse when I'm standing ( specifically at work standing 6-12hr shifts). What can I take for this? Also, I find if I over do it...work wise or around the house
I have had pain in both my sides for over two years now, was diagnosed 2 weeks ago and on URSO for two weeks...it does not go away and gets worse when I'm standing ( specifically at work standing 6-12hr shifts). What can I take for this? Also, I find if I over do it...work wise or around the house
tonia66
in
PBC Foundation
7 years ago
PBC confirmed
So been to the hospital now, thanks for the tip about taking a book, it was needed, PBC diagnosis confirmed and put me straight on ursodeoxycholic acid. Doing more bloods and going for MRI and dexoscan follow up appointment in a couple of months to see how I am getting on. I read that a side effect
So been to the hospital now, thanks for the tip about taking a book, it was needed, PBC diagnosis confirmed and put me straight on ursodeoxycholic acid. Doing more bloods and going for MRI and dexoscan follow up appointment in a couple of months to see how I am getting on. I read that a side effect
RoxyP
in
PBC Foundation
7 years ago
Steroid versus immunosuppressant
I was diagnosed with PBC around 2006. And put on URSO, about 4 years ago my specialist thought that I had AIH overlap and put me on prednisone a liver biopsy was not conclusive and after a couple of years he recommended Immunosuppressant which made me really ill and took 5 weeks before I felt better
I was diagnosed with PBC around 2006. And put on URSO, about 4 years ago my specialist thought that I had AIH overlap and put me on prednisone a liver biopsy was not conclusive and after a couple of years he recommended Immunosuppressant which made me really ill and took 5 weeks before I felt better
Biddyb
in
PBC Foundation
7 years ago
Why my doctor won't give me Urso?
Hello, all, I am AMA M2 positive. LFTs high normal. GGT negative. ANA negative. I do have some symptoms: indigestion, constipation, muscle/joint pains, itchy hands. I also have dilated bile duct from MRCP scan. (gallbladder is removed due to small stones) It is said that starting Urso early can slow
Hello, all, I am AMA M2 positive. LFTs high normal. GGT negative. ANA negative. I do have some symptoms: indigestion, constipation, muscle/joint pains, itchy hands. I also have dilated bile duct from MRCP scan. (gallbladder is removed due to small stones) It is said that starting Urso early can slow
JaneIng
in
PBC Foundation
7 years ago
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