Where do you get your Urso prescription?

[hells456]

Sorry, another daft question. I started on Urso at the end of December and was given a two month supply, they are running out now and I don't know where to get more. Do I go to my GP for a repeat or should I wait until called in by the consultant to see if they're working? The appointment is due but hasn't been made yet. Does it matter if I can't take them for a bit?

[Oidra]

I`m always given a two month supply. A few days before it runs out I ask the pharmacy attached to the doctors for a repeat prescription. They get the doctor to sanction this and then they dispense and I collect.

If your GP doesn't have a dispensary I would ring the surgery and ask how you get a repeat prescription. Usually Urso is for life unless it doesn`t work for you so don`t run out .

[Hidden]

Hi hells456

I would say your gp and consultant will be in charge of any changes (dosage ).

X

[susanashworth]

Does anyone know if I can buy my Urso without prescription , I lost my job and no longer have medical insurance 🥵

[butterflyEi in reply to susanashworth]

I don't know how the system works in America but I am pretty certain you can buy it over the counter. The PBC Foundation has worked/works with the PBCers who I believe are based in Texas, they may be able to give you some guidance for your region.

[susanashworth in reply to butterflyEi]

Thank you !!

[Huggy7614]

Hi, your gp will do repeat prescriptions for that one. I order mine on line a week before stock runs out and collect from chemists. Andy.

[Annac]

Certainly as Oldra said do not stop taking them. Go back to the Pharmacy where you got your first pfrescription - ask what the procedure is for getting the repeat prescription. The Consultant wants to see how you are doing with the Urso. You will have blood tests to look at your numbers! and then any adjustments will be made. Hopefully the Consultant will have written to your GP. Good luck.

[butterflyEi]

the repeat should now be automatically on the system for you. best to keep the continuity going especially as you are new to the URSO and the doctors will need to see if the URSO brings down your blood test results in the ensuing year.

[Keep-smiling]

I agree with everything everyone above has said - your GP will put your medication on a repeat prescription and you should continue to take it. I get mine monthly as most GP's can only give 1 months supply at a time. You can organise this to be sent to a chemists/pharmacy for you to collect. If you are on other medications it is a good idea to ask for a prepayment form, this makes it cheaper.

Also, if you haven't had an appointment from your consultant, ring the number from your last appointment and chase it up. It is usually every 3 months in the UK to start with, unless your case is very severe. if this doesn't work, call your GP and ask them to chase up the appointment or ask them to do the blood tests. For those in the states - unfortunately I don't know the systems there - sorry!

[ENuk]

Hi, I was prescribed Urso by the hospital consultant and picked up the first prescription from the hospital. The consultant will then write to your GP with the details and they will start a repeat prescription. It is usually for 2 months so you have to order before you run out. Most GP surgeries will have an online facility and I arrange to collect from my local pharmacy so it's pretty straight forward.

If you pay for prescriptions and have other conditions then it is worth getting an annual pre payment certificate as can be very cost effective.

My blood results came back into line within 6 months of taking Urso so I would say it's pretty important to continue taking the medication.

Good Luck

[hells456]

Thank you everyone for your help. There's so much to learn with all this and I keep getting tripped up by the little things. I will see my GP for a repeat on Monday so I can continue without a break. I had a blood test at 6 weeks to check response but I don't have the results yet. I have prepayment already and it saves a ton over a year.

[recipes]

I agree with others don't stop taking urso . I would get in touch with the Dr. that gave the prescription and follow his direction. Good luck. recipes

[bobbycat]

hi...I always get a repeat prescription now ....I really think its a very good idea not to have a gap from them....I did for some years and I now have PBC Cirrhosis.... my own fault as I thought I would never get it......

[hells456]

I'm already on the verge of cirrhosis because this seems to have started in my twenties without me knowing. I didn't want to interrupt taking them, just didn't know how to get more as my GP couldn't prescribe them when he diagnosed me.

No point blaming yourself, you didn't ask for this disease. I hope you are as well as can be now.