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2 acoustic neuromas
Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the left appears to be stable but had gamma knife on the right in September. Just wondering if there is anyone else who has this and any tips on
Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the left appears to be stable but had gamma knife on the right in September. Just wondering if there is anyone else who has this and any tips on
Operalovers
in
Acoustic Neuroma Support
6 months ago
Review of medication at GP.
Just seen on my GP notes on line my medication review. I have not seen this gp or any other for this review.i am on 4 sheets of prescription pad.is this normal? I would have thought with 3 previous heart attacks ,14 stents, bronchitis, constant pain in legs and feet, diabetes I would have been consulted
Just seen on my GP notes on line my medication review. I have not seen this gp or any other for this review.i am on 4 sheets of prescription pad.is this normal? I would have thought with 3 previous heart attacks ,14 stents, bronchitis, constant pain in legs and feet, diabetes I would have been consulted
jhorsf
in
Lung Conditions Community Forum
6 months ago
Bronchoscopy
My mom was diagnosed with pneumonia 2 weeks ago. Unfortunately 10 days of antibiotics were ineffective. She had a bronchoscopy today and while waiting for results, I was wondering if anybody else was in the same situation and what did the bronchoscopy show?
My mom was diagnosed with pneumonia 2 weeks ago. Unfortunately 10 days of antibiotics were ineffective. She had a bronchoscopy today and while waiting for results, I was wondering if anybody else was in the same situation and what did the bronchoscopy show?
nyla668
in
Lung Conditions Community Forum
6 months ago
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Seeking anyone familiar with aggressive small cell neuroendocrine prostate cancer and/or with lurbinectedin as 2nd line chemotherapy.
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
silver5
in
Advanced Prostate Cancer
6 months ago
Weighing the pros and possible risks of treatment holiday.
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
Decktime
in
Advanced Prostate Cancer
6 months ago
Radiotherapy
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
Hota
in
My Ovacome
6 months ago
Cancerous thyroid nodules. Are they painful sometimes?
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Aoifel73
in
Thyroid UK
6 months ago
musician - hearing loss after surgery
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
domforr
in
Acoustic Neuroma Support
6 months ago
Nose bleeds on rivaoxaban
I have nose bleeds but what l have also is a permanent cold and blocked nose.
I have nose bleeds but what l have also is a permanent cold and blocked nose.
444AHENSON01
in
Atrial Fibrillation Support
6 months ago
Thrush 3 days before FET
Hi everyone, I am booked for a natural FET on Monday (I didn't take anything this cycle, not even progesterone) and the Friday before I discovered that my discharge looked like cottage cheese and I may be getting thrush. Which I haven't had in years! Has this happened to anyone else before their FET
Hi everyone, I am booked for a natural FET on Monday (I didn't take anything this cycle, not even progesterone) and the Friday before I discovered that my discharge looked like cottage cheese and I may be getting thrush. Which I haven't had in years! Has this happened to anyone else before their FET
raverg
in
Fertility Network UK
8 months ago
2ND Opinion by Radiologist
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
Jimbo47
in
Advanced Prostate Cancer
6 months ago
Teva - short supply
Happy New Year everyone , Is anyone else finding it difficult to get 100mcg and 50 mcg Teva Levothyroxine ? I had a thyroidectomy 6 years ago and have been really well on this medication. I changed to Accent because independent pharmacist unable to source Teva . I was really unwell for 7 days on Accent
Happy New Year everyone , Is anyone else finding it difficult to get 100mcg and 50 mcg Teva Levothyroxine ? I had a thyroidectomy 6 years ago and have been really well on this medication. I changed to Accent because independent pharmacist unable to source Teva . I was really unwell for 7 days on Accent
CheerfulCharlie
in
Thyroid UK
9 months ago
bile reflux
I thought I would bring you all up to speed on my endoscopy yesterday ( Friday 15 March ). I have to say I was surprised by the results, I have Bile reflux, something I didn’t even know existed. It was a bit of a shock if I am honet. So me being me , I read up about it when I got home, as most things
I thought I would bring you all up to speed on my endoscopy yesterday ( Friday 15 March ). I have to say I was surprised by the results, I have Bile reflux, something I didn’t even know existed. It was a bit of a shock if I am honet. So me being me , I read up about it when I got home, as most things
Popsic
in
Oesophageal & Gastric Cancer
7 months ago
bleeding 3 years after total hysterectomy
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Fela1113
in
Endometriosis UK
7 months ago
Saxon clinical trial
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
58Willys
in
Advanced Prostate Cancer
7 months ago
Does having CLL really make you 3 times more likely to get (another) cancer, and does CLL treatment add to the risk? - Part 1
1. The risk of developing a Secondary Primary Malignancy
"[i]The higher risk of SPM associated with CLL has been recognized for many years, well prior to the modern therapy era. Manosow and Weinerman in 1975 demonstrated a three-fold increase of SPM and an eight-fold increase of SC in CLL[/i]
1. The risk of developing a Secondary Primary Malignancy
"[i]The higher risk of SPM associated with CLL has been recognized for many years, well prior to the modern therapy era. Manosow and Weinerman in 1975 demonstrated a three-fold increase of SPM and an eight-fold increase of SC in CLL[/i]
bennevisplace
in
CLL Support
7 months ago
Upcoming TTALC Workshop 3/23/24
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
7 months ago
NUV-1511 drug-drug conjugate (DDC) to enter the clinical stage: phase 1
"Dosing the first patient with NUV-1511 marks a significant milestone for our proprietary DDC platform, from which we are developing potent oncology-focused chimeric small molecules designed to selectively deliver anti-cancer therapeutics to cancer cells, while mitigating effects on healthy non-target
"Dosing the first patient with NUV-1511 marks a significant milestone for our proprietary DDC platform, from which we are developing potent oncology-focused chimeric small molecules designed to selectively deliver anti-cancer therapeutics to cancer cells, while mitigating effects on healthy non-target
Maxone73
in
Advanced Prostate Cancer
7 months ago
18 years ago today!
🧡 18 years ago today we said our final farewell to our beautiful mother, best friend, devoted wife and grandmother Karen Clifford (represented by the KC in SKCIN) following her courageous battle to melanoma. The devastation caused by her loss, made us determined to ensure her untimely death was not
🧡 18 years ago today we said our final farewell to our beautiful mother, best friend, devoted wife and grandmother Karen Clifford (represented by the KC in SKCIN) following her courageous battle to melanoma. The devastation caused by her loss, made us determined to ensure her untimely death was not
SkcinHQ
Partner
in
Skin Cancer UK
9 months ago
NGS Test/Next-Generation Sequencing Important to have done.
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
7 months ago
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