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Genetic testing and Second Opinion – A result!
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Benkaymel
in
Advanced Prostate Cancer
4 months ago
First treatment of Taxotere
I haven't posted in a long time. My husband is going to have his first chemo treatment of Taxotere in about a week. He has ben fighting metastatic stage 4 prostate cancer for five years. Thankfully it has stayed in the bones and not spread to any organs. For those who have had this treatment, can
I haven't posted in a long time. My husband is going to have his first chemo treatment of Taxotere in about a week. He has ben fighting metastatic stage 4 prostate cancer for five years. Thankfully it has stayed in the bones and not spread to any organs. For those who have had this treatment, can
MsHope
in
Advanced Prostate Cancer
4 months ago
Cold cap advice?
Im a very lucky gal whose cancer was caught early (by accident) at stage 1c. I've had surgery and about to start chemo tomorrow. Carbopentin only. They booked me a cold cap as I was originally going to have Carbo + Taxil which usually results in hair loss. Now the risk is lower so not sure whether you'd
Im a very lucky gal whose cancer was caught early (by accident) at stage 1c. I've had surgery and about to start chemo tomorrow. Carbopentin only. They booked me a cold cap as I was originally going to have Carbo + Taxil which usually results in hair loss. Now the risk is lower so not sure whether you'd
Shluggie
in
My Ovacome
3 months ago
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House legislation aims to close a regulatory loophole to improve patient safety of nuclear medicine diagnostic tests in oncology&cardiology
[i]News to me, but something to think about the next time you go for a PET/CT scan or Pluvicto treatment. An issue that is definitely one our patient community should be aware of and legislation we should all support. Here is the final text of the proposed legislation:[/i] [i]
* * *
[/i] PRO-PATIENT
[i]News to me, but something to think about the next time you go for a PET/CT scan or Pluvicto treatment. An issue that is definitely one our patient community should be aware of and legislation we should all support. Here is the final text of the proposed legislation:[/i] [i]
* * *
[/i] PRO-PATIENT
cujoe
in
Fight Prostate Cancer
4 months ago
immunotherapy
anyone that been on Opdiva/Yervoy combo? May I know side-effects and whether it worked? It’s to control a tumor on my back psoas muscle, which was the spreading of OVCA clear cell 6 years after initial diagnosis. TIA.
anyone that been on Opdiva/Yervoy combo? May I know side-effects and whether it worked? It’s to control a tumor on my back psoas muscle, which was the spreading of OVCA clear cell 6 years after initial diagnosis. TIA.
Leniko
in
My Ovacome
4 months ago
New Year- New Challenges.
Hi all before I begin my 'Saga', I would like to wish you all a 'Better New Year'.😀 I am still waiting for the urgent needle biopsy for the large lump in my stomach, which was discovered in a recent 'Cat Scan'. Until that is completed my Haematologist cannot tell me the exact treatment I need to go
Hi all before I begin my 'Saga', I would like to wish you all a 'Better New Year'.😀 I am still waiting for the urgent needle biopsy for the large lump in my stomach, which was discovered in a recent 'Cat Scan'. Until that is completed my Haematologist cannot tell me the exact treatment I need to go
Vindicatrix
in
CLL Support
4 months ago
budlover
hi I am 77 mother to one son 32 lives in London 6 years ago had pneumonia my lungs never really recovered. when I get a cold goes straight on my chest and my chest infections are bad My last infection I was actually coughing up blood in my sputum antibiotics and it’s gone. No one as ever suggested
hi I am 77 mother to one son 32 lives in London 6 years ago had pneumonia my lungs never really recovered. when I get a cold goes straight on my chest and my chest infections are bad My last infection I was actually coughing up blood in my sputum antibiotics and it’s gone. No one as ever suggested
Budlover
in
Lung Conditions Community Forum
3 months ago
Pneumonia
It turns out that I thought my extreme fatigue was due to having tapered to 4 mg, that I have pneumonia. So I have been on an antibiotic for two days and am much better. I had a cough but no fever but it was not improving so finally my dr did a chest xray. He told me to stay at 4 mg for the rest of
It turns out that I thought my extreme fatigue was due to having tapered to 4 mg, that I have pneumonia. So I have been on an antibiotic for two days and am much better. I had a cough but no fever but it was not improving so finally my dr did a chest xray. He told me to stay at 4 mg for the rest of
Paulagcl
in
PMRGCAuk
3 months ago
Kisqali added to Letrazole
So I was diagnosed with stage 2b lobular BC on 3/2023. Had a double mastectomy on 5/2023 and radiation. Onco and mammaprint said “no chemo benefit”. 26 lymph nodes taken out and 2 positive. Now oncologist wants to add Kisqali to my treatment regimen even though I am “cancer free”. I am sure it is due
So I was diagnosed with stage 2b lobular BC on 3/2023. Had a double mastectomy on 5/2023 and radiation. Onco and mammaprint said “no chemo benefit”. 26 lymph nodes taken out and 2 positive. Now oncologist wants to add Kisqali to my treatment regimen even though I am “cancer free”. I am sure it is due
mimosa412
in
SHARE Breast Cancer Support
4 months ago
Cotreatment with dichloroacetate and omeprazole exhibits a synergistic antiproliferative effect on malignant tumors
As a follow up to my last post I found this on DCA / Omeprazole. like myself,please treat this as information , not promoting any treatments. For me I find reading and learning about my cancer and possible treatments to be uplifting and gives me hope. To be honest something I never get from my doctor
As a follow up to my last post I found this on DCA / Omeprazole. like myself,please treat this as information , not promoting any treatments. For me I find reading and learning about my cancer and possible treatments to be uplifting and gives me hope. To be honest something I never get from my doctor
85745
in
Advanced Prostate Cancer
4 months ago
I will be well....
Hello- I am a 10 year IBS-D sufferer. It worsened over the past two years as i went through the loss of my husband of 40 years to a rare cancer. The IBS gut-brain axis is real as my anxious mind can attest to. My IBS started after an 8 month round of chemotherapy for an early blood cancer. I've
Hello- I am a 10 year IBS-D sufferer. It worsened over the past two years as i went through the loss of my husband of 40 years to a rare cancer. The IBS gut-brain axis is real as my anxious mind can attest to. My IBS started after an 8 month round of chemotherapy for an early blood cancer. I've
Awannabe
in
IBS Network
4 months ago
A New complication!
My husband was diagnosed with PC in 2013, PSA 18, Gleason 4+3. Possible small met on pelvis. This was treated with radiotherapy. On Decapeptyl 6 monthly injections, and over the years, Xgeva, Xtandi and for the past couple of years, Erleada. Unfortunately, due to stomach surgery 2 years ago, where
My husband was diagnosed with PC in 2013, PSA 18, Gleason 4+3. Possible small met on pelvis. This was treated with radiotherapy. On Decapeptyl 6 monthly injections, and over the years, Xgeva, Xtandi and for the past couple of years, Erleada. Unfortunately, due to stomach surgery 2 years ago, where
Grasscutters
in
Advanced Prostate Cancer
4 months ago
Just had Bronchiectasis flare up. ? due to cold weather.. has that happened to anyone else ? are there temp guidelines for us bronchs?
Have Bronchiectasis with colonized pseudomonas Just finished 2 weeks of Ciprofloxacin.. had my first flare up for 10 months .. 🙄 Thought I was doing well .. but then just started producing loads of mucus which was different consistency & also keeping me up during the night . Hadn’t had a cold or
Have Bronchiectasis with colonized pseudomonas Just finished 2 weeks of Ciprofloxacin.. had my first flare up for 10 months .. 🙄 Thought I was doing well .. but then just started producing loads of mucus which was different consistency & also keeping me up during the night . Hadn’t had a cold or
Phill1
in
Lung Conditions Community Forum
3 months ago
Genuine Essiac Tea
I am wondering if anyone is taking chemo using Docetaxel & carboplatin? also wondering if they are also on morphine? Has anyone tried taking Genuine Essiac Tea while doing treatments?
I am wondering if anyone is taking chemo using Docetaxel & carboplatin? also wondering if they are also on morphine? Has anyone tried taking Genuine Essiac Tea while doing treatments?
TIRED2024
in
Advanced Prostate Cancer
4 months ago
Signing off, happy New Year to all
Hi all, didn't want to leave this site without saying goodbye and wishing everyone all the very best for the coming New Year.The last year has been intense for me and looks to continue in the same vein into 2024 and as I haven't posted/ commented for so long it's become obvious to me that I simply
Hi all, didn't want to leave this site without saying goodbye and wishing everyone all the very best for the coming New Year.The last year has been intense for me and looks to continue in the same vein into 2024 and as I haven't posted/ commented for so long it's become obvious to me that I simply
Hidden
in
Macular Society
4 months ago
Promising (maybe for PCa): World’s First Allogenic mRNA CAR-T Treatment for Solid Tumor by Ever Supreme Bio Technology, Phase 1 started.
The world's first to use mRNA electroporation technology, enhancing product safety. The world's first to use artificial intelligence to identify Target HLA-G, employing AI to identify critical tumor targets of human leukocyte antigen-G (HLA-G). The technology, “Allogeneic Non-viral Gene-Edited Multi-targeted
The world's first to use mRNA electroporation technology, enhancing product safety. The world's first to use artificial intelligence to identify Target HLA-G, employing AI to identify critical tumor targets of human leukocyte antigen-G (HLA-G). The technology, “Allogeneic Non-viral Gene-Edited Multi-targeted
Maxone73
in
Advanced Prostate Cancer
4 months ago
Cough after embryo transfer
Hi All, I had my 6th embryo transfer yesterday and this time I’m being treated with an immune protocol including steroids and other drugs. I’ve managed to pick up a cough and it seems worse after the transfer. Has anyone experienced a cough/cold after transfer and had any successes please? I don’t have
Hi All, I had my 6th embryo transfer yesterday and this time I’m being treated with an immune protocol including steroids and other drugs. I’ve managed to pick up a cough and it seems worse after the transfer. Has anyone experienced a cough/cold after transfer and had any successes please? I don’t have
Batsford
in
Fertility Network UK
3 months ago
fainting every time I’m ill
hi, really hoping someone can help! Basically I have an under active thyroid that’s medicated with 100 lethothyroxine which seems to keep my levels ok. The problem I have is every time I’m ill i’ll pass out multiple times a day. Most recently I have a cough/cold virus not nice but also nothing serious
hi, really hoping someone can help! Basically I have an under active thyroid that’s medicated with 100 lethothyroxine which seems to keep my levels ok. The problem I have is every time I’m ill i’ll pass out multiple times a day. Most recently I have a cough/cold virus not nice but also nothing serious
Frisbeeroo
in
Thyroid UK
3 months ago
Has anyones Endo returning after hysterectomy?
It's been awhile since I've posted.I got an MRI report back, after urologist found abnormality after bladder stretch. The MRI found endometriotic deposits by the rectosigmoid colon. I have extensive surgery and hysterectomy in January. Having a bowel shave, rectosigmoid colon as well DIE within the
It's been awhile since I've posted.I got an MRI report back, after urologist found abnormality after bladder stretch. The MRI found endometriotic deposits by the rectosigmoid colon. I have extensive surgery and hysterectomy in January. Having a bowel shave, rectosigmoid colon as well DIE within the
Jasmin24
in
Endometriosis UK
4 months ago
colonoscopy query
I’m scheduled to endure a colonoscopy on 16th January. We are booked on a flight to Thailand on 1st February (14 hours) . Guidelines say two weeks should pass before flight so in theory ok. However this is a trip of a lifetime for us, much delayed and all booked before this cancer worry. I’ve no idea
I’m scheduled to endure a colonoscopy on 16th January. We are booked on a flight to Thailand on 1st February (14 hours) . Guidelines say two weeks should pass before flight so in theory ok. However this is a trip of a lifetime for us, much delayed and all booked before this cancer worry. I’ve no idea
Stills
in
LUPUS UK
4 months ago
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