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Urinary tract tumours
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Recurrence after 2 years
Long story short,was undetectable for approx 2 years until I hit .oo6 in April of 2024. Fast forward to August it shot up to. 88, about a 15 fold increase in 3 months. Had the psma pet scan dont at Dana farber yesterday and the results are below .Uptake into left lateral l4, intense Uptake into iliac
Long story short,was undetectable for approx 2 years until I hit .oo6 in April of 2024. Fast forward to August it shot up to. 88, about a 15 fold increase in 3 months. Had the psma pet scan dont at Dana farber yesterday and the results are below .Uptake into left lateral l4, intense Uptake into iliac
northshoreguy
in
Advanced Prostate Cancer
1 month ago
Very happy !!
Am pleased to say that the cystoscopy showed no irregularities, all clear and report now being forwarded to urologist . It's a tremendous relief for me and to be able to tell my husband and son they can now stop worrying. thanks to everyone who has listened to me and responded kindly to my messages
Am pleased to say that the cystoscopy showed no irregularities, all clear and report now being forwarded to urologist . It's a tremendous relief for me and to be able to tell my husband and son they can now stop worrying. thanks to everyone who has listened to me and responded kindly to my messages
gillsky8
in
PMRGCAuk
1 month ago
What's your experience been with CTC tests?
Hi everyone I'm Sunitha, was diagnosed with 3b epithelial high grade ovarian cancer in Nov last; been through debulking and six rounds of chemo; on follow up Avastin. Have my next PET scan in October. I'm seeing an integrated oncologist (recommended by my gynac onco) who told me about a Circulating
Hi everyone I'm Sunitha, was diagnosed with 3b epithelial high grade ovarian cancer in Nov last; been through debulking and six rounds of chemo; on follow up Avastin. Have my next PET scan in October. I'm seeing an integrated oncologist (recommended by my gynac onco) who told me about a Circulating
Sk72
in
My Ovacome
1 month ago
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Good news on recurrence
Hi Ladies I’ve had good news from my July scan report. All new growth from recurrence is NED, good partial remission 😊 I had 6 cycles of Caelyx/Carbo after recurrence when 7 months of PARP Olaparib should have but hadn’t work, instead had new growth. I also started Avastin privately with Lloyds
Hi Ladies I’ve had good news from my July scan report. All new growth from recurrence is NED, good partial remission 😊 I had 6 cycles of Caelyx/Carbo after recurrence when 7 months of PARP Olaparib should have but hadn’t work, instead had new growth. I also started Avastin privately with Lloyds
Towergirl
in
My Ovacome
1 month ago
Question about clinical trials
Just started my treatment for my condition last Thursday. Was given Degarelix and Zometa. The Apalutamide pills were due today by FedEx but was contacted by my oncologist to wait before taking as she wants to discuss a clinical trial with me. In opinions out there, are clinical trials a Good or
Just started my treatment for my condition last Thursday. Was given Degarelix and Zometa. The Apalutamide pills were due today by FedEx but was contacted by my oncologist to wait before taking as she wants to discuss a clinical trial with me. In opinions out there, are clinical trials a Good or
PARKER3237
in
Advanced Prostate Cancer
1 month ago
Tagrisso + Carboplatin and pemetrexed
Hi all, I'm pretty new to this. Had a thoracotomy in July to remove a 1.6cm(ish) tumour from my upper left lobe. Upon investigation my surgeon found unexpected lesions on the lower left lobe (that did not show up on the PET scan) and it seems that there are 'snowflakes' in my right lung too. Anyhow
Hi all, I'm pretty new to this. Had a thoracotomy in July to remove a 1.6cm(ish) tumour from my upper left lobe. Upon investigation my surgeon found unexpected lesions on the lower left lobe (that did not show up on the PET scan) and it seems that there are 'snowflakes' in my right lung too. Anyhow
SwimmingInTheSun
in
The Roy Castle Lung Cancer Foundation
1 month ago
Liver nodules
Hello. Just wanting to see if anyone's had similar. My brother has recently been diagnosed with stage 4 kidney cancer... they say its a genetic mutation from a certain gene which causes paraganglioma... my mum died from paraganglioma cancer when I was small. So I had a ct scan recently to check myself
Hello. Just wanting to see if anyone's had similar. My brother has recently been diagnosed with stage 4 kidney cancer... they say its a genetic mutation from a certain gene which causes paraganglioma... my mum died from paraganglioma cancer when I was small. So I had a ct scan recently to check myself
Kjs1993
in
British Liver Trust
1 month ago
Secondary cancer
Hello all, Due to some vomiting I was experiencing, seemingly out of nowhere, I had an upper endoscopy last week. Still no word from anyone on the results, but I read them on the portal. Apparently, I now have signet ring carcinoma in my stomach. From what I have read, this is completely unrelated
Hello all, Due to some vomiting I was experiencing, seemingly out of nowhere, I had an upper endoscopy last week. Still no word from anyone on the results, but I read them on the portal. Apparently, I now have signet ring carcinoma in my stomach. From what I have read, this is completely unrelated
Nocillo
in
SHARE Metastatic Breast Cancer
1 month ago
Secondary cancer
Hello all, Due to some vomiting I was experiencing, seemingly out of nowhere, I had an upper endoscopy last week. Still no word from anyone on the results, but I read them on the portal. Apparently, I now have signet ring carcinoma in my stomach. From what I have read, this is completely unrelated
Hello all, Due to some vomiting I was experiencing, seemingly out of nowhere, I had an upper endoscopy last week. Still no word from anyone on the results, but I read them on the portal. Apparently, I now have signet ring carcinoma in my stomach. From what I have read, this is completely unrelated
Nocillo
in
SHARE Metastatic Breast Cancer
1 month ago
Haemophilus influenzae
Has anyone been able to get immunised against haemophilus influenzae? I've just had a bad infection which has been hard to shake off and I don't want it again. I know there is a vaccine available for adults but my hospital seems never to have heard of it.
Has anyone been able to get immunised against haemophilus influenzae? I've just had a bad infection which has been hard to shake off and I don't want it again. I know there is a vaccine available for adults but my hospital seems never to have heard of it.
1234emc
in
CLL Support
5 months ago
Do I need an MRI with Contrast or without?
Soon will get a Prostate MRI done and I am worried about possible side effects of the gadolinium based contrast agent (dye). Can I decline the dye and ask for a MRI without contrast? I don't have any prior cancer diagnosis, but my PSA is 10.9 and 12.15 (two readings, 5 days apart, different labs)
Soon will get a Prostate MRI done and I am worried about possible side effects of the gadolinium based contrast agent (dye). Can I decline the dye and ask for a MRI without contrast? I don't have any prior cancer diagnosis, but my PSA is 10.9 and 12.15 (two readings, 5 days apart, different labs)
cederpicket
in
Prostate Cancer Network
2 months ago
Considering orchiectomy due to chronic constipation from Orgovyx
I've been on Orgovyx for 33 months for metastatic prostate cancer. Constipation is a known issue with Orgovyx and it has affected me to some degree most of the 33 months. Earlier this year it seem to get more chronic and intractable. I'm also currently using a 37.5mg weekly E2 patch, up from 0.025 twice
I've been on Orgovyx for 33 months for metastatic prostate cancer. Constipation is a known issue with Orgovyx and it has affected me to some degree most of the 33 months. Earlier this year it seem to get more chronic and intractable. I'm also currently using a 37.5mg weekly E2 patch, up from 0.025 twice
NewPotatoCaboose
in
Advanced Prostate Cancer
2 months ago
Proton Therapy Had PT Therapy 15 years (2009) ago 5 year follow Up No Cancer Just Diagnosed with Mets in Bone/Pelvic Lymph Nodes in 2024
Had PT Therapy at MD Anderson 15 years ago with Pencil beam radiation. Gleason at the time 2009 was 6 (3 +3) and PSA was 5.9. I am now 73. Successfully treated and follow up every year for 5 years showed my PSA at between .2-.4. For 15 years up untiil now, no symptoms. According to MD Anderson,
Had PT Therapy at MD Anderson 15 years ago with Pencil beam radiation. Gleason at the time 2009 was 6 (3 +3) and PSA was 5.9. I am now 73. Successfully treated and follow up every year for 5 years showed my PSA at between .2-.4. For 15 years up untiil now, no symptoms. According to MD Anderson,
Rcole727
in
Advanced Prostate Cancer
2 months ago
Eribulin/ Halaven experiences.
starting Eribulin after trodelvy did the trick for 6 months. I’m beet nervous and scared as you all know when starting anew chemo. Scared it won’t work and scared of side effects. I now have liver Mets🥹. I’m devastated. Can someone share some experiences with this drug? Side effects? How long they
starting Eribulin after trodelvy did the trick for 6 months. I’m beet nervous and scared as you all know when starting anew chemo. Scared it won’t work and scared of side effects. I now have liver Mets🥹. I’m devastated. Can someone share some experiences with this drug? Side effects? How long they
Maraki
in
SHARE Metastatic Breast Cancer
2 months ago
Is it Prostate Metastases or Lung cancer
Brief background- Current age 75. Prostate cancer 8 years ago. Gleason 4+3 Radiation and Eligard shots for six months. All good until 6/2023 when PSA went to .6. On 1/2024 went to 1.0 then 1.6 on 6/2024. During the last year I have had many scans. 8/23 - Pet/PSMA - Multiple right lung nodules but
Brief background- Current age 75. Prostate cancer 8 years ago. Gleason 4+3 Radiation and Eligard shots for six months. All good until 6/2023 when PSA went to .6. On 1/2024 went to 1.0 then 1.6 on 6/2024. During the last year I have had many scans. 8/23 - Pet/PSMA - Multiple right lung nodules but
wpeebles
in
Advanced Prostate Cancer
2 months ago
Life after ADT
Hello, I finished my ADT treatment 7 months ago ( ORGOVYX for 22 months . Still having emotional rollercoaster. Held my own during the cancer journey ( Brachy therapy, 25 sessions of IMRT, then ORGOVYX. I guess I was lucky only mind numbing, soul crushing fatigue, bad brain fog/confusion, shrunken
Hello, I finished my ADT treatment 7 months ago ( ORGOVYX for 22 months . Still having emotional rollercoaster. Held my own during the cancer journey ( Brachy therapy, 25 sessions of IMRT, then ORGOVYX. I guess I was lucky only mind numbing, soul crushing fatigue, bad brain fog/confusion, shrunken
watertender
in
Advanced Prostate Cancer
2 months ago
DIPNECH diagnosis.
DIPNECH - carcinoid lung nodules. Has anybody had this recognised as cancer by DWP when there is minimal cancel active, although present? I was told by an ILD consultant at Rbh that they don’t? Even though it requires regular Pet CT scans. Bella.
DIPNECH - carcinoid lung nodules. Has anybody had this recognised as cancer by DWP when there is minimal cancel active, although present? I was told by an ILD consultant at Rbh that they don’t? Even though it requires regular Pet CT scans. Bella.
Bellaowl
in
Lung Conditions Community Forum
2 months ago
Lost my lovely Dad 48 hours ago....want to thank you all.
Dad had another spinal cord compression at C2. PSA at this point was 3700. Radiotherapy was out of the question; having had treatment there before. Came home from hospital, and we tried desperately to take him to Istanbul for Lu177. We even booked the tickets. Sadly, 24 hours later, he deteriorated
Dad had another spinal cord compression at C2. PSA at this point was 3700. Radiotherapy was out of the question; having had treatment there before. Came home from hospital, and we tried desperately to take him to Istanbul for Lu177. We even booked the tickets. Sadly, 24 hours later, he deteriorated
kikinini
in
Advanced Prostate Cancer
2 months ago
Calquence
I just was diagnosed with sll after getting an mri on my back for back pain showed a swollen lymph node on my spine. Ct and biopsy showed sll. I am supposed to get a pet scan this week and then start calquence. I am normally a very active person and am wondering what my tolerance to physical activity
I just was diagnosed with sll after getting an mri on my back for back pain showed a swollen lymph node on my spine. Ct and biopsy showed sll. I am supposed to get a pet scan this week and then start calquence. I am normally a very active person and am wondering what my tolerance to physical activity
1reb
in
CLL Support
2 months ago
recently diagnosed with 3.5cm acoustic neuroma
Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going in my right ear a couple of years ago, and thought nothing of it, until now. The ringing, buzzing and sounds of crickets is getting slightly worse
Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going in my right ear a couple of years ago, and thought nothing of it, until now. The ringing, buzzing and sounds of crickets is getting slightly worse
Longtallsally22
in
Acoustic Neuroma Support
2 months ago
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