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Jumpy legs!!!!
I have been struggling with jumpy, spasm like symptoms for a long time. I was given Mirapex which worked very well at first. I became used to it I suppose and had to increase the dosage. When I was at 4 times the original dose and still having issues, I had to stop all together to "reset" my body. The
I have been struggling with jumpy, spasm like symptoms for a long time. I was given Mirapex which worked very well at first. I became used to it I suppose and had to increase the dosage. When I was at 4 times the original dose and still having issues, I had to stop all together to "reset" my body. The
CraigS
in
My MSAA Community
6 years ago
Gaucher Disease
Does anyone on here have Gaucher Disease? There seems to be a link between that, Parkinsons, and being an ashkenazi Jew. I'm trying to get more information about this. Thanks. Symptoms and timing of getting one then the other or simultaneous diagnosis.
Does anyone on here have Gaucher Disease? There seems to be a link between that, Parkinsons, and being an ashkenazi Jew. I'm trying to get more information about this. Thanks. Symptoms and timing of getting one then the other or simultaneous diagnosis.
NancyJHP
in
Cure Parkinson's
6 years ago
Anxiety & dry gagging
Hi everyone ,just wondering if anyone suffers from dry gagging due to anxiety? Ive had social anxiety for years but probably like a lot of people suffered in silence .Im 57 now ,but can remember going back years being in crowded places always freaked me out & even more so enclosed rooms ie churches at
Hi everyone ,just wondering if anyone suffers from dry gagging due to anxiety? Ive had social anxiety for years but probably like a lot of people suffered in silence .Im 57 now ,but can remember going back years being in crowded places always freaked me out & even more so enclosed rooms ie churches at
Gstar1961
in
Anxiety Support
6 years ago
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Association of sleep apnea and Parkinson's ?
Recently I was diagnosed with sleep apnea and while looking up if there is any connection between it and PD found the following article https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5473481/ Would be interested to know if there are others on this site diagnosed with sleep apnea.
Recently I was diagnosed with sleep apnea and while looking up if there is any connection between it and PD found the following article https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5473481/ Would be interested to know if there are others on this site diagnosed with sleep apnea.
faridaro
in
Cure Parkinson's
6 years ago
DNA Testing
I did a DNA test for my PD dad back in February (around the time he had worsening dementia) and got the results back recently. There's a section on neurotransmitters, ie dopamine, norepinephrine etc and shows he has risks with Parkinsons. Not sure how accurate these tests are, obviously no idea what
I did a DNA test for my PD dad back in February (around the time he had worsening dementia) and got the results back recently. There's a section on neurotransmitters, ie dopamine, norepinephrine etc and shows he has risks with Parkinsons. Not sure how accurate these tests are, obviously no idea what
Dee1980
in
Cure Parkinson's
6 years ago
Post miscarriage - what next for prep
Hi all I haven't posted for a while but I have been around. Following our managed miscarriage two weeks ago I am desperately keen to get going with our next round with fet, but also keen never to go through another miscarriage. Everyone advises to wait for 2 miscarriages before doing further tests but
Hi all I haven't posted for a while but I have been around. Following our managed miscarriage two weeks ago I am desperately keen to get going with our next round with fet, but also keen never to go through another miscarriage. Everyone advises to wait for 2 miscarriages before doing further tests but
Hidden
in
Fertility Network UK
6 years ago
Where to do Buserelin Trigger?
Hi everyone, I am using buserelin as my trigger shot at 1230am Monday. I stupidly forgot to ask where to inject, tummy or thigh? Any advice is much appreciated. Thank you ladies xx
Hi everyone, I am using buserelin as my trigger shot at 1230am Monday. I stupidly forgot to ask where to inject, tummy or thigh? Any advice is much appreciated. Thank you ladies xx
JKT90
in
Fertility Network UK
6 years ago
Managing medication
I have had rls for many many years, way before it was a diagnosable condition. I have tried a lot of medications but side effects can be a big problem. I was taking mirapex which worked fairly well taking some in middle afternoon, some around dinner and some before bed. The two side effects that were
I have had rls for many many years, way before it was a diagnosable condition. I have tried a lot of medications but side effects can be a big problem. I was taking mirapex which worked fairly well taking some in middle afternoon, some around dinner and some before bed. The two side effects that were
Yakester
in
Restless Legs Syndrome
6 years ago
Impact of sleep apnoea on RLS
I have had RKS and PMLD for a long time now. Sorry I haven’t been on the site for a long time but recently have had a change in experience with my both and thought it might be of use to others. I saw my neurologist in January and she decided to have me checked for sleep apnoea. I was diagnosed with
I have had RKS and PMLD for a long time now. Sorry I haven’t been on the site for a long time but recently have had a change in experience with my both and thought it might be of use to others. I saw my neurologist in January and she decided to have me checked for sleep apnoea. I was diagnosed with
hazelrobson
in
Restless Legs Syndrome
6 years ago
Restless legs, why worse at times?
At different times in my life, I've had restless legs, and insomnia caused by that. I would take a sleep aid, one not mentioned as being worse for rls. Right now, big issue. Six nights in a row. I'm in a remote location for three more weeks with no access to pharmacy. Besides stretching exercises, what
At different times in my life, I've had restless legs, and insomnia caused by that. I would take a sleep aid, one not mentioned as being worse for rls. Right now, big issue. Six nights in a row. I'm in a remote location for three more weeks with no access to pharmacy. Besides stretching exercises, what
Jrid
in
Restless Legs Syndrome
6 years ago
Rough time
Kind of a tough time for me I moved out of my house after my mother passed and I was very lucky to get a low income unit and a brand new apartment don't get me wrong I am so so lucky to be here but I am just surrounded by people that seem to be enjoying themselves couples young kids I'm 62 years old
Kind of a tough time for me I moved out of my house after my mother passed and I was very lucky to get a low income unit and a brand new apartment don't get me wrong I am so so lucky to be here but I am just surrounded by people that seem to be enjoying themselves couples young kids I'm 62 years old
Mikez12355
in
Mental Health Support
6 years ago
Lining scan and failed cycle
Hi Ladies, I had my first scan today since taking progynova (day 7) on 6mg. Dr said there was only 1 line and we need three for fet transfer. My second scan is on Friday and am taking 8mg progynova from tonight. Dr said if lining doesnt get to the level, my cycle will be cancelled and I will have to
Hi Ladies, I had my first scan today since taking progynova (day 7) on 6mg. Dr said there was only 1 line and we need three for fet transfer. My second scan is on Friday and am taking 8mg progynova from tonight. Dr said if lining doesnt get to the level, my cycle will be cancelled and I will have to
cryst4l
in
Fertility Network UK
6 years ago
Septic arthritis anyone?
Tis a rare beast I believe so I'm not expecting a huge response, but I'd be interested to hear from anyone who's had this awful condition?...how your docs think it occurred, what meds are you taking now, etc.... I had it in my hip 3 years ago and was advised not to take enbrel again, which I was on
Tis a rare beast I believe so I'm not expecting a huge response, but I'd be interested to hear from anyone who's had this awful condition?...how your docs think it occurred, what meds are you taking now, etc.... I had it in my hip 3 years ago and was advised not to take enbrel again, which I was on
wishbone
in
NRAS
6 years ago
New to this forum
Hello I'm 54 years old. I have relapsing remitting MS for 17 years. I am on Rebif
Hello I'm 54 years old. I have relapsing remitting MS for 17 years. I am on Rebif
Linda243
in
My MSAA Community
6 years ago
My TSH was 5.6
Yesterday the Specialist called and told me to stop taking my Methamizole since my TSH level was 5.6 and to go in 3 weeks for another blood work on my TSH. Well let's see how it goes since I'm stuck with high blood pressure and been on medication for that, I really believe I got high blood pressure because
Yesterday the Specialist called and told me to stop taking my Methamizole since my TSH level was 5.6 and to go in 3 weeks for another blood work on my TSH. Well let's see how it goes since I'm stuck with high blood pressure and been on medication for that, I really believe I got high blood pressure because
sarajuarez2912
in
Thyroid UK
6 years ago
Buserelin Vs contraceptive pill
Hello, I'm about to start injecting Buserelin and I'm wondering why some people go on the contraceptive pill and some people go onto injections or nasal spray? Is there any reason I would be told to take Buserelin? I asked the doctor and he just said not to compare and everyone is different and I couldn't
Hello, I'm about to start injecting Buserelin and I'm wondering why some people go on the contraceptive pill and some people go onto injections or nasal spray? Is there any reason I would be told to take Buserelin? I asked the doctor and he just said not to compare and everyone is different and I couldn't
Box01
in
Fertility Network UK
6 years ago
Question??
I've been having what I consider a new symptom. Background info, I take Baclofen for spasticity since last August. My right leg has been having a shooting pain between the ankle and knee. Feels somewhat like "shin splints" that runners sometime feel. Any ideas on that? Obviously, I'm not running these
I've been having what I consider a new symptom. Background info, I take Baclofen for spasticity since last August. My right leg has been having a shooting pain between the ankle and knee. Feels somewhat like "shin splints" that runners sometime feel. Any ideas on that? Obviously, I'm not running these
CalfeeChick
CommunityAmbassador
in
My MSAA Community
6 years ago
Sleep study
Hi all! I just wanted to encourage anyone who has severe issues in the morning to get a sleep study done even if you don’t have sleepiness during the day. I live in North Dakota and have pretty limited access to good neurologists or movement disorder specialists. I’ve only been diagnosed for a year and
Hi all! I just wanted to encourage anyone who has severe issues in the morning to get a sleep study done even if you don’t have sleepiness during the day. I live in North Dakota and have pretty limited access to good neurologists or movement disorder specialists. I’ve only been diagnosed for a year and
Hidden
in
Cure Parkinson's
6 years ago
No sleep!
About 8 months ago, rather suddenly, my husband started have sleep issues. He is able to sleep only for stretches of about an hour and a half at a time. He can't get comfortable ... everything bothers him, the sheets, his clothing, can't find a comfortable position, etc. He is terrible fatigued and
About 8 months ago, rather suddenly, my husband started have sleep issues. He is able to sleep only for stretches of about an hour and a half at a time. He can't get comfortable ... everything bothers him, the sheets, his clothing, can't find a comfortable position, etc. He is terrible fatigued and
Mjm012649
in
Cure Parkinson's
6 years ago
Cetrotide how long will i be taking this.
Hi everyone. I've been taking injections and the cetrotide ones started last night. I hate them ready. I'm on short protocol. Right ovaries show lots of follicles. What size so they need to be before ER? My left ovary is due to be removed and only has 2 follicles.. how long will i be taking cetrotide
Hi everyone. I've been taking injections and the cetrotide ones started last night. I hate them ready. I'm on short protocol. Right ovaries show lots of follicles. What size so they need to be before ER? My left ovary is due to be removed and only has 2 follicles.. how long will i be taking cetrotide
Leah_russ
in
Fertility Network UK
6 years ago
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