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What do you do for work?
Hi Just curious to hear what people do for work post-BI (what type of work and in what capacity), and particularly how it fits in with your fatigue management. Do you work part-time or have flexible hours to help manage your fatigue effectively? Does your job still fatigue you despite trying to manage
Hi Just curious to hear what people do for work post-BI (what type of work and in what capacity), and particularly how it fits in with your fatigue management. Do you work part-time or have flexible hours to help manage your fatigue effectively? Does your job still fatigue you despite trying to manage
Onedge93
in
Headway
5 years ago
5-HTP - A Trigger?
I take quite a few supplements. These days before I buy anything new I Google the name of the supplement and AFib to see if I get any legitimate hits. Wanting to try a new sleep aid that has 25 mg of 5-HTP I was surprised to see a few references that said 5-HTP was a trigger for some. Because it helps
I take quite a few supplements. These days before I buy anything new I Google the name of the supplement and AFib to see if I get any legitimate hits. Wanting to try a new sleep aid that has 25 mg of 5-HTP I was surprised to see a few references that said 5-HTP was a trigger for some. Because it helps
HiloHairy
in
AF Association
5 years ago
Weaned off Mirapex
Rexap; It's taken me 5 months to wean off 14 pills a week of Mirapex. I took 2, 0.25 per day of Mirapex for my rls. I am since 1 month without any Mirapex, as of Sunday.. I'm on 300mg of Lyrica with 5mg. Oxy as a back-up. Today I have an appt with a neurologist, n/p. I hoping and praying she knows
Rexap; It's taken me 5 months to wean off 14 pills a week of Mirapex. I took 2, 0.25 per day of Mirapex for my rls. I am since 1 month without any Mirapex, as of Sunday.. I'm on 300mg of Lyrica with 5mg. Oxy as a back-up. Today I have an appt with a neurologist, n/p. I hoping and praying she knows
Tennwalker1
in
Restless Legs Syndrome
5 years ago
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Sleep Paralysis?
Evening all! Quick question, does anyone else experience sleep paralysis? I remember one occasion in my teens but it’s frequent now. I’m lucky in that I get it when I’m falling asleep rather than when waking up which I believe is way more terrifying! It’s also not frightening, but I get stuck between
Evening all! Quick question, does anyone else experience sleep paralysis? I remember one occasion in my teens but it’s frequent now. I’m lucky in that I get it when I’m falling asleep rather than when waking up which I believe is way more terrifying! It’s also not frightening, but I get stuck between
Mackydee123
in
MPN Voice
5 years ago
Weekly Gathering
Hi again-you guys are so patient with me and my litany of questions!! Gracias!❤️😁 I’m trying to keep this nondescript as possible so I don’t offend anyone. I have been working on this for over five years-about the time my MS progressed quite a bit more. I very much want to attend a weekly group—a Support
Hi again-you guys are so patient with me and my litany of questions!! Gracias!❤️😁 I’m trying to keep this nondescript as possible so I don’t offend anyone. I have been working on this for over five years-about the time my MS progressed quite a bit more. I very much want to attend a weekly group—a Support
Hidden
in
My MSAA Community
5 years ago
Neuro appointment
I saw my neuro on the 11th of February. Had to double our driving time due to a snow storm. He’s pretty happy with where things are. We only adjusted the time of day I take my second dose of ampyra. Interestingly, I asked him his go to med if I just can’t stand taking Rebif anymore. (I don’t have side
I saw my neuro on the 11th of February. Had to double our driving time due to a snow storm. He’s pretty happy with where things are. We only adjusted the time of day I take my second dose of ampyra. Interestingly, I asked him his go to med if I just can’t stand taking Rebif anymore. (I don’t have side
StacyHayward
in
My MSAA Community
5 years ago
Sleeping tips?
I have a question for all of you who has/had trouble sleeping... how did you regulate it? I’m trying so hard to set my sleeping pattern but I find myself awake every night untill 5AM or 6AM and then sleep untill 2PM 🤦🏼♀️ And oftentimes I feel sooo sleepy during the whole day but as soon as the night
I have a question for all of you who has/had trouble sleeping... how did you regulate it? I’m trying so hard to set my sleeping pattern but I find myself awake every night untill 5AM or 6AM and then sleep untill 2PM 🤦🏼♀️ And oftentimes I feel sooo sleepy during the whole day but as soon as the night
masa2333
in
Anxiety Support
6 years ago
What treatments or tests from here?
So I am 40 and since having my second child in September I have had 3 exacerbations (also 1 bad one in pregnancy). I was sent to ambulatory care today as I am on day 10 taking 40mg pred a day, and still acutely ill. I was on Fostair 200/6 and am now trialling Seretide 50/500 to see if it gives better
So I am 40 and since having my second child in September I have had 3 exacerbations (also 1 bad one in pregnancy). I was sent to ambulatory care today as I am on day 10 taking 40mg pred a day, and still acutely ill. I was on Fostair 200/6 and am now trialling Seretide 50/500 to see if it gives better
netochka
in
Asthma Community Forum
6 years ago
Heartbeat vibration
I first felt this vibration today immediately after using a percussion massager on my shoulders, legs and arms. Vibrations ran through chest and down both arms to fingertips. Lasted for 30 to 40 minutes. Have had valve repair and replacement 17 months ago. ECHO 4 months ago showed complete surgical
I first felt this vibration today immediately after using a percussion massager on my shoulders, legs and arms. Vibrations ran through chest and down both arms to fingertips. Lasted for 30 to 40 minutes. Have had valve repair and replacement 17 months ago. ECHO 4 months ago showed complete surgical
S1camp
in
Arrhythmia Alliance
6 years ago
Nocturia.
Nocturia - for those who have it. Since my surgery 15 years ago, I regularly visit the bathroom twice each night to void the bladder. Disturbed sleep (& shortened duration of sleep) have sometimes been associated with increased mortality. In a paper published in September, Steve Freedland & team looked
Nocturia - for those who have it. Since my surgery 15 years ago, I regularly visit the bathroom twice each night to void the bladder. Disturbed sleep (& shortened duration of sleep) have sometimes been associated with increased mortality. In a paper published in September, Steve Freedland & team looked
pjoshea13
in
Advanced Prostate Cancer
6 years ago
CPAP Trial - one week in
It’s interesting that there has been a lot of discussion here lately around sleep apnea. I’m one quarter of the way through my 4 week CPAP trial. Being claustrophobic I’m struggling but getting used to it. I’m determined to complete the trial and see if it helps my heart. This is the mask so it’s the
It’s interesting that there has been a lot of discussion here lately around sleep apnea. I’m one quarter of the way through my 4 week CPAP trial. Being claustrophobic I’m struggling but getting used to it. I’m determined to complete the trial and see if it helps my heart. This is the mask so it’s the
Kaz747
in
AF Association
6 years ago
Lisuride (Dopergin)
Lisuride, sold under the brand names Dopergin, Proclacam, and Revanil, is an antiparkinson agent of the iso-ergoline class, chemically related to the dopaminergic ergoline Parkinson's drugs. Currently it is not available in the US I could not find any single post mentioning this medicine. Was wondering
Lisuride, sold under the brand names Dopergin, Proclacam, and Revanil, is an antiparkinson agent of the iso-ergoline class, chemically related to the dopaminergic ergoline Parkinson's drugs. Currently it is not available in the US I could not find any single post mentioning this medicine. Was wondering
Farooqji
in
Cure Parkinson's
6 years ago
SLEEP APNOEA
Be careful with seeking a sleep apnoea diagnosis because if toggled with daytime sleepiness it could mean loss of your drivers license as you have to inform DVLA and they have the right to withdraw your license. You will be given a CPAP machine to use and providing you use it 80% of your sleeping hours
Be careful with seeking a sleep apnoea diagnosis because if toggled with daytime sleepiness it could mean loss of your drivers license as you have to inform DVLA and they have the right to withdraw your license. You will be given a CPAP machine to use and providing you use it 80% of your sleeping hours
Rosyrobics
in
AF Association
6 years ago
Google Doodle - caffeine - methyl donors.
You may have noticed the chemical diagram in today's (Feb 8, 2019) Google doodle. It represents caffeine & is in recognition of the 225th birthday of its discoverer, Friedlieb Ferdinand Runge (8 February 1794 – 25 March 1867). The thing I noticed is that the molecule has three - gasp - methyl groups
You may have noticed the chemical diagram in today's (Feb 8, 2019) Google doodle. It represents caffeine & is in recognition of the 225th birthday of its discoverer, Friedlieb Ferdinand Runge (8 February 1794 – 25 March 1867). The thing I noticed is that the molecule has three - gasp - methyl groups
pjoshea13
in
Advanced Prostate Cancer
6 years ago
Pramipexole side effects
I've been on 2 x 0.88 Pramipexole for 6 months having spent all my adult life (I'm now almost 60) feeling tired during the day and very gradually getting RLS. I use a CPAP machine for central apnoeas, and then a sleep study showed that RLS/periodic limb movement was repeatedly waking me in the night.
I've been on 2 x 0.88 Pramipexole for 6 months having spent all my adult life (I'm now almost 60) feeling tired during the day and very gradually getting RLS. I use a CPAP machine for central apnoeas, and then a sleep study showed that RLS/periodic limb movement was repeatedly waking me in the night.
StillStriving
in
Restless Legs Syndrome
6 years ago
hi guys it has been long time to take tasigna
I have been taking tasigna since January 17 this year. I take one tablet(150mg) every morning for two weeks from the 17th and eat after two weeks. I take(150mg) low dose twice daily in the morning and evening. Results of taking 23 days of tasigna 1, reduction of physical exhaustion 2, less muscle stiffness
I have been taking tasigna since January 17 this year. I take one tablet(150mg) every morning for two weeks from the 17th and eat after two weeks. I take(150mg) low dose twice daily in the morning and evening. Results of taking 23 days of tasigna 1, reduction of physical exhaustion 2, less muscle stiffness
Emily_kim
in
Ataxia UK
6 years ago
Sleep apps and snoring apps, are they useful for fibro fighters?
Since I bought an iPhone several years ago I’ve been using the pre-installed alarm clock which supposedly monitors how much sleep or more accurately sleeplessness I get. This measures how much time I spend in bed or asleep...up to press it has never recorded how much sleep I get, just the hours I spend
Since I bought an iPhone several years ago I’ve been using the pre-installed alarm clock which supposedly monitors how much sleep or more accurately sleeplessness I get. This measures how much time I spend in bed or asleep...up to press it has never recorded how much sleep I get, just the hours I spend
Hidden
in
Fibromyalgia Action UK
6 years ago
Ocrevus — dose 1
So had my first dose today , went well no issue little tired but they said it could be the antihistamine ( or the fact I had no sleep last night worrying) .. but now I’m wide awake and just remembered they gave me a dose of steroids in beginning and that gives me insomnia .. just got back in to sleeping
So had my first dose today , went well no issue little tired but they said it could be the antihistamine ( or the fact I had no sleep last night worrying) .. but now I’m wide awake and just remembered they gave me a dose of steroids in beginning and that gives me insomnia .. just got back in to sleeping
Annabal82
in
My MSAA Community
6 years ago
Can sleeping tablets make sleep apnea worse?
Hi all, just had a quick question - can herbal sleeping tablets worsen sleep apnea? I am not actually diagnosed with it yet, but strongly suspect that that a what's happening. Took some herbal sleep aid last night and as soon as I was drifting off I would stop breathing every time. Woke myself up a few
Hi all, just had a quick question - can herbal sleeping tablets worsen sleep apnea? I am not actually diagnosed with it yet, but strongly suspect that that a what's happening. Took some herbal sleep aid last night and as soon as I was drifting off I would stop breathing every time. Woke myself up a few
DaveT81
in
Sleep Matters
6 years ago
Narcolepsy and thyroid problems
Hello everyone, May I ask if there any one coping with narcolepsy and cataplexy together with thyroid problems? Thank you, Cristina
Hello everyone, May I ask if there any one coping with narcolepsy and cataplexy together with thyroid problems? Thank you, Cristina
cristina1304
in
Thyroid UK
6 years ago
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