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hiiiiiiiiiiiiiiiiiiiiiiii.
just want to say a bigggggggggggggggggggggggg thank youuuuuuuuuuuuuuuuuu to all of you that have helped me this last week, this time last week i felt that drugged up i didn't know where i was, i did as you all suggested and rung my nurse, she was as much use as a chocolaty fire guard last Friday, but
just want to say a bigggggggggggggggggggggggg thank youuuuuuuuuuuuuuuuuu to all of you that have helped me this last week, this time last week i felt that drugged up i didn't know where i was, i did as you all suggested and rung my nurse, she was as much use as a chocolaty fire guard last Friday, but
gwen2013
in
NRAS
10 years ago
Anyone here familar with rapamycin
My doctors are planning to subscribe rapamycin also known as Sirolimus. Mainly because it seems to give good results with aPL antibodies. Is the use of this medication familar to anyone? It is sometimes used, or more often? And are there any knownresults? At this time I have considerable inflammation
My doctors are planning to subscribe rapamycin also known as Sirolimus. Mainly because it seems to give good results with aPL antibodies. Is the use of this medication familar to anyone? It is sometimes used, or more often? And are there any knownresults? At this time I have considerable inflammation
sander
in
Hughes Syndrome APS Forum
10 years ago
Wide awake :-(
Hi anyone of you are about at this hour ,I really need some shut eye , Iv been laid here , just listening to my heart beat convincing myself it's racing , feeling nervous anxious only starting feeling this since sat I was doing good otherwise , I am a week before that time of the month so must be suffering
Hi anyone of you are about at this hour ,I really need some shut eye , Iv been laid here , just listening to my heart beat convincing myself it's racing , feeling nervous anxious only starting feeling this since sat I was doing good otherwise , I am a week before that time of the month so must be suffering
Binkynoo
in
Anxiety Support
10 years ago
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Musculosceletal pain even after TKI treatment
I thought that this might have relevance to those of us in the future who may be discontinuing ibrutinib. This article was about another TKI imatinib, but it is worth noting here since it seems to occur in 30% of patients: [i]Discontinuation of therapy is being explored in patients with chronic myelogenous
I thought that this might have relevance to those of us in the future who may be discontinuing ibrutinib. This article was about another TKI imatinib, but it is worth noting here since it seems to occur in 30% of patients: [i]Discontinuation of therapy is being explored in patients with chronic myelogenous
zevkalman
in
CLL Support
10 years ago
Mental health therapists come in all shapes and sizes........
I wrote this post (very long!, sorry) as I wanted to share my thoughts in the terms of what I class as qualified therapists for mental health. Its something I agree we all need no matter what are problems are, yet over the years both seeking help and then having to try and open-up to someone who is
I wrote this post (very long!, sorry) as I wanted to share my thoughts in the terms of what I class as qualified therapists for mental health. Its something I agree we all need no matter what are problems are, yet over the years both seeking help and then having to try and open-up to someone who is
Hidden
in
Mental Health Support
10 years ago
Bad day
Hi all, I am still in my bed at this time of day,I feel weak,tired,sore,fuzzy head,yeah it's prob as I'm still in bed I feel this way,but I just can't seem to find the energy to move, I'm feeling hungry and thirsty but even that's not enough to get me up. I feel ashamed of myself and tell myself ,GET
Hi all, I am still in my bed at this time of day,I feel weak,tired,sore,fuzzy head,yeah it's prob as I'm still in bed I feel this way,but I just can't seem to find the energy to move, I'm feeling hungry and thirsty but even that's not enough to get me up. I feel ashamed of myself and tell myself ,GET
Lizzie57
in
Fibromyalgia Action UK
10 years ago
Looking at the stars
Here's a wee quest for you. All you have to do is look at the stars. You might feel silly, you might wonder why or if you are doing it right. That's fine, just look at the stars and let these thoughts happen, don't pay any attention to them, just let them drift away . Do your breathing exercises, feel
Here's a wee quest for you. All you have to do is look at the stars. You might feel silly, you might wonder why or if you are doing it right. That's fine, just look at the stars and let these thoughts happen, don't pay any attention to them, just let them drift away . Do your breathing exercises, feel
Hidden
in
Pain Concern
10 years ago
Beauty treatments
How many of you lovely ladies would Prefer Pure Homemade Beauty treatments e.g face masks, body moisturizers, sugar lip scrubs, facial care, Skin care, Spritz sprays, Feet scrubs... than going to boots and buying a brand known? Please write back to me this is just a survey for all the lovely ladies
How many of you lovely ladies would Prefer Pure Homemade Beauty treatments e.g face masks, body moisturizers, sugar lip scrubs, facial care, Skin care, Spritz sprays, Feet scrubs... than going to boots and buying a brand known? Please write back to me this is just a survey for all the lovely ladies
lisat21
in
Endometriosis UK
10 years ago
Night owl :-(
Hi everyone , is anyone there , just needed a chat , I'm sat on bed , it's nearly midnight, I remember the good days I would crawl into bed at 10pm & fall asleep no problems woke feeling refreshed & rekaxed, now feel like a deer in the headlights , I am on thyroid medication with a lot of side effects
Hi everyone , is anyone there , just needed a chat , I'm sat on bed , it's nearly midnight, I remember the good days I would crawl into bed at 10pm & fall asleep no problems woke feeling refreshed & rekaxed, now feel like a deer in the headlights , I am on thyroid medication with a lot of side effects
Binkynoo
in
Anxiety Support
10 years ago
Tertiary Hypothyroidism
You hear a lot about Primary and even Secondary hypothyroidism but very little about Tertiary hypothyroidism. Has anyone on here been diagnosed with it or had any Hypothalamic Dysfunction recognised?
You hear a lot about Primary and even Secondary hypothyroidism but very little about Tertiary hypothyroidism. Has anyone on here been diagnosed with it or had any Hypothalamic Dysfunction recognised?
Gsp177
in
Thyroid UK
10 years ago
is there anything that can help me cope with a cpap
i have been diagnosed with sleep apnea after having a sever pneumonia last year where i was put on a ventilator
i have been diagnosed with sleep apnea after having a sever pneumonia last year where i was put on a ventilator
bexx
in
Lung Conditions Community Forum
10 years ago
Modafinil/Provigil tablet to improve cognitive/memory enhancer
Hi all I was surfing the web last night looking for something to do with brain injury and I came across the above drug, which reports to be a memory enhancer and stops feeling sleepy. The generic name is Modafinil, pharmaceutical name Provigil. It states this is for narcolepsy and shift worker disorders
Hi all I was surfing the web last night looking for something to do with brain injury and I came across the above drug, which reports to be a memory enhancer and stops feeling sleepy. The generic name is Modafinil, pharmaceutical name Provigil. It states this is for narcolepsy and shift worker disorders
Sem2011
in
Headway
10 years ago
Sleep aid
Hi just wondering if any of you have suffered with really bad insomnia like I am doing , I went through a phase just before diagnosed with over active thyroid , now 7 months into meds Carbi , it's awful cant sleep for feeling dizzy I'm sat crying I don't know what to do I have a lil boy surely I should
Hi just wondering if any of you have suffered with really bad insomnia like I am doing , I went through a phase just before diagnosed with over active thyroid , now 7 months into meds Carbi , it's awful cant sleep for feeling dizzy I'm sat crying I don't know what to do I have a lil boy surely I should
Binkynoo
in
Thyroid UK
10 years ago
I saw a Cardiologist this week. Seems I may have a complication due to another complication of PSP. I'd appreciate feedback.
For those who've been following my posts, some of this is old info; for the benefit of newer caretakers/persons with PSP, I'm going to briefly refer to the complication of PSP I was diagnosed with May of 2013. My Doc (a Neuro) surprised me with a referral for a sleep study. Sleep apnea was the furthest
For those who've been following my posts, some of this is old info; for the benefit of newer caretakers/persons with PSP, I'm going to briefly refer to the complication of PSP I was diagnosed with May of 2013. My Doc (a Neuro) surprised me with a referral for a sleep study. Sleep apnea was the furthest
JudyJ
in
PSP Association
10 years ago
3rd opinion
I went to Davis for my 3rd opinion and he wants more data. Then wants to see me in about a month again. For some reason, my glands are NOT nearly as big as they were in June. (can stress make then HUGE? Because they were really big in June and that's really the only difference between June & July
I went to Davis for my 3rd opinion and he wants more data. Then wants to see me in about a month again. For some reason, my glands are NOT nearly as big as they were in June. (can stress make then HUGE? Because they were really big in June and that's really the only difference between June & July
rlyndecker
in
CLL Support
10 years ago
Are you Interested in Volunteering for FibroAction? Please check out the details here for Volunteer vacancies.
FibroAction are currently recruiting for a number of volunteers roles:
About Us
FibroAction is a small national charity committed to supporting people affected by fibromyalgia. Fibromyalgia is a widespread chronic pain condition for which there is no cure and no designated treatment in the
FibroAction are currently recruiting for a number of volunteers roles:
About Us
FibroAction is a small national charity committed to supporting people affected by fibromyalgia. Fibromyalgia is a widespread chronic pain condition for which there is no cure and no designated treatment in the
Hidden
in
Fibromyalgia Action UK
10 years ago
Ambiem
Does anyone feel horrible the next morning after taking ambien for sleep? I started taking it along with my. PD meds after knee replacement surgery. It. Really works putting mt to sleep, but I feel HORRIBLE the next morning. It will take me at least 2 hours after taking my pain meds and pd meds to feel
Does anyone feel horrible the next morning after taking ambien for sleep? I started taking it along with my. PD meds after knee replacement surgery. It. Really works putting mt to sleep, but I feel HORRIBLE the next morning. It will take me at least 2 hours after taking my pain meds and pd meds to feel
xolentz4
in
Cure Parkinson's
10 years ago
Writing to the ME Association
Hello there everyone, I thought I'd give an update about my misdiagnosis project. Since I discovered that I have a pituitary disorder in addition to my Behçet’s I have been in touch with a lady called Jill Mizen. Jill recently got a really good article published in the Daily Mail about the misdiagnosis
Hello there everyone, I thought I'd give an update about my misdiagnosis project. Since I discovered that I have a pituitary disorder in addition to my Behçet’s I have been in touch with a lady called Jill Mizen. Jill recently got a really good article published in the Daily Mail about the misdiagnosis
Herbiv4
in
Behçet's UK
10 years ago
New Sleep Apnoea Support Group In Ayrshire
Hello all, i have just set up a new support group for anyone who has sleep apnoea or know anyone who may have it or would simply like to know more about this condition. I have had confirmed sleep apnoea for over six years now and have various other conditions which are now being linked to sleep apnoea
Hello all, i have just set up a new support group for anyone who has sleep apnoea or know anyone who may have it or would simply like to know more about this condition. I have had confirmed sleep apnoea for over six years now and have various other conditions which are now being linked to sleep apnoea
davidmcs
in
Lung Conditions Community Forum
10 years ago
Sick of doctors not knowing what conversion disorder is :(
So Saturday I had a siezure one after another 911 was called in and there were two fire trucks and a ambulance. I new what was going on I just couldn't talk or control my body my neck stiff as a board eyes fluttering back well the meg that came said to my boyfriend this is not a siezure. All the rescue
So Saturday I had a siezure one after another 911 was called in and there were two fire trucks and a ambulance. I new what was going on I just couldn't talk or control my body my neck stiff as a board eyes fluttering back well the meg that came said to my boyfriend this is not a siezure. All the rescue
Flower9867
in
Functional Neurological Disorder - FND Hope
10 years ago
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