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Traumatic macular hole
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BCD
Hi, I have been recently diagnosed with Bietti Crystalline Dystrophy. I have been getting intravenous avastin in both eyes for wet macular degeneration since 11 years (when needed). But my diagnosis is relatively recent. I personally have neither met or known anyone with BCD and wanted to see if anyone
Hi, I have been recently diagnosed with Bietti Crystalline Dystrophy. I have been getting intravenous avastin in both eyes for wet macular degeneration since 11 years (when needed). But my diagnosis is relatively recent. I personally have neither met or known anyone with BCD and wanted to see if anyone
GC_0007
in
Macular Society
3 years ago
Muscle weakness/tracheotomy
Hi everyone, My dad was fitted with a trach on Monday and they are reducing his sedation and he’s somewhat responding to commands now. From being on the ventilator to fitter with a trach, it’s been about a month. The nurse told us today that his arms and legs are very very weak. They have started physio
Hi everyone, My dad was fitted with a trach on Monday and they are reducing his sedation and he’s somewhat responding to commands now. From being on the ventilator to fitter with a trach, it’s been about a month. The nurse told us today that his arms and legs are very very weak. They have started physio
Ren2985
in
ICUsteps
3 years ago
Tracheostomy
Ok my husband has been in ICU for 11 days kidneys and lungs ok pancreas and liver a bit damaged since in ICU hasn’t deteriorated or improved. Been sedated and been on a ventilator ever since. Tried weaning off sedation every 24 hours but gets agitated and reaches for the tube down his throat. So today
Ok my husband has been in ICU for 11 days kidneys and lungs ok pancreas and liver a bit damaged since in ICU hasn’t deteriorated or improved. Been sedated and been on a ventilator ever since. Tried weaning off sedation every 24 hours but gets agitated and reaches for the tube down his throat. So today
Jess0186
in
ICUsteps
3 years ago
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Hi, I'm new here. I'm just trying to find help for depression, anxiety, and PTSD
Hi, I'm new here. I'm just trying to find help for depression, anxiety, and PTSD
Alexia453
in
Anxiety and Depression Support
3 years ago
Need advice for backup power supply for doing home dialysis
My husband has been on home hemodialysis for two years. We want to get a backup power supply for the dialyzer in the event of a power failure. We know nothing about how to go about this. Does anyone else have a backup power unit for their home equipment? Thanks.
My husband has been on home hemodialysis for two years. We want to get a backup power supply for the dialyzer in the event of a power failure. We know nothing about how to go about this. Does anyone else have a backup power unit for their home equipment? Thanks.
Hidden
in
Kidney Disease
3 years ago
Extremely vulnerable
I wasdiagnosed with ET and JAK mutation about 3 months ago and take hydroxycarbamide and clopidogrel. My platelets were in the 900 s then 6 weeks later in the 800 s now 6 weeks later down to 600 so I was feeling pleased with myself. Then I received a phone call off my doctor who said she is putting me
I wasdiagnosed with ET and JAK mutation about 3 months ago and take hydroxycarbamide and clopidogrel. My platelets were in the 900 s then 6 weeks later in the 800 s now 6 weeks later down to 600 so I was feeling pleased with myself. Then I received a phone call off my doctor who said she is putting me
Hidden
in
MPN Voice
3 years ago
SUPPORT GROUPS N' OR ZOOM MEETINGS
HI EVERYONE. I'M NEW TOO THIS SITE. HOPING U ALL HAD A GREAT DAY TODAY !! FEEL FREE TOO ADD ME IF U LIKE :);) I CURRENTLY AM DIAGONISED W/ DEPRESSION, ANIXITY, OCD, GAD, PERSONALITY DISORDER, PTSD, N' BIPOLOR. DOES ANYONE KNOW ON HERE OF ANY ZOOM MEETING'S ABOUT ANY OF THE CONDITIONS I LISTED
HI EVERYONE. I'M NEW TOO THIS SITE. HOPING U ALL HAD A GREAT DAY TODAY !! FEEL FREE TOO ADD ME IF U LIKE :);) I CURRENTLY AM DIAGONISED W/ DEPRESSION, ANIXITY, OCD, GAD, PERSONALITY DISORDER, PTSD, N' BIPOLOR. DOES ANYONE KNOW ON HERE OF ANY ZOOM MEETING'S ABOUT ANY OF THE CONDITIONS I LISTED
QUEENIENSPA
in
Anxiety and Depression Support
3 years ago
diagnosed recently
Hi, newly diagnosed with BPD and PTSD OCD anxiety and depression, and currently switching from sirtraline to imipramine anyone taking this ?
Hi, newly diagnosed with BPD and PTSD OCD anxiety and depression, and currently switching from sirtraline to imipramine anyone taking this ?
Hidden
in
Mental Health Support
3 years ago
Orgovyx
Beginning Orgovyx this week. Co pay $50/mo. Will see how it goes. Just finished focal proton radiation to a spot on a rib and 1 node with Dr Rossi at California Proton. No side effects. Medicare paid 100%. Have been on Firmagon 3 months to radiosensitize the cancer we planned to radiate prior to treatment
Beginning Orgovyx this week. Co pay $50/mo. Will see how it goes. Just finished focal proton radiation to a spot on a rib and 1 node with Dr Rossi at California Proton. No side effects. Medicare paid 100%. Have been on Firmagon 3 months to radiosensitize the cancer we planned to radiate prior to treatment
wilcoxsaw
in
Advanced Prostate Cancer
3 years ago
Medical Input
Hi, my dad was diagnosed with CBD in October 2018 but has had no follow up since the diagnosis. As dad is now bed bound and can do nothing for himself we have Carers coming in 4 times a day to help with daily living, district nurses now attend twice a week due to pressure sores and his GP did a referral
Hi, my dad was diagnosed with CBD in October 2018 but has had no follow up since the diagnosis. As dad is now bed bound and can do nothing for himself we have Carers coming in 4 times a day to help with daily living, district nurses now attend twice a week due to pressure sores and his GP did a referral
Scoobydoo70
in
PSP Association
3 years ago
Taking other medication
Is it ok to take other medication? I have been given medication for chronic constipation as my haemorrhoids have REALLY flared up. Have suppositories ointment and drinks to take. Told to take each in the morning and night and after bowel movement. This doesn’t affect levo meds then? (Isn’t it great to
Is it ok to take other medication? I have been given medication for chronic constipation as my haemorrhoids have REALLY flared up. Have suppositories ointment and drinks to take. Told to take each in the morning and night and after bowel movement. This doesn’t affect levo meds then? (Isn’t it great to
Grohlgirlgg
in
Thyroid UK
3 years ago
Please make it stop
I am new to this level of anxiety. It has completely debilitated me. I need help but can't afford anything, even with insurance. On the surface, it looks irrational but I can't control it no matter what I do. I meditate, breath, exercise and try to take care of myself. I have new medications that
I am new to this level of anxiety. It has completely debilitated me. I need help but can't afford anything, even with insurance. On the surface, it looks irrational but I can't control it no matter what I do. I meditate, breath, exercise and try to take care of myself. I have new medications that
needhelp2z
in
Anxiety Support
3 years ago
Shielding and covid-19
Are people with anoxic brain damage classed as vulnerable during this covid-19 epidemic? I was in a coma in intensive care for weeks and my body/system as never been the same since and I know my body won't survive another trauma.
Are people with anoxic brain damage classed as vulnerable during this covid-19 epidemic? I was in a coma in intensive care for weeks and my body/system as never been the same since and I know my body won't survive another trauma.
Lollipopslife
in
Headway
3 years ago
Gynae appt
Hi everyone, I have a gynaecology appointment on Thursday to discuss the possibility of endometriosis, I’ve never really seen a gynaecologist before and I was just wondering if anyone could tell me what to expect? I assume I will have a physical exam but will the doctor want to do an internal exam? I
Hi everyone, I have a gynaecology appointment on Thursday to discuss the possibility of endometriosis, I’ve never really seen a gynaecologist before and I was just wondering if anyone could tell me what to expect? I assume I will have a physical exam but will the doctor want to do an internal exam? I
Amy0302
in
Pain Concern
3 years ago
Varicose veins
So since i was diagnosed with ra in nov 19, ive had swollen legs but my left leg is bigger. I have a ganglion cyst inside the knee and found out in november 2020 that i have varicose veins beside my knee on the inside and at my ankle. Neither are visible. The hospital gave me support stockings but
So since i was diagnosed with ra in nov 19, ive had swollen legs but my left leg is bigger. I have a ganglion cyst inside the knee and found out in november 2020 that i have varicose veins beside my knee on the inside and at my ankle. Neither are visible. The hospital gave me support stockings but
Sammie48
in
NRAS
3 years ago
Swopping to Xarelto from Warfarin
I have just changed from warfarin to Xarelto, at my own request. While in warfarin and bisoprolol for the last 5 or so years, I have felt very stiff, achy, painful muscles and joints, thick headed, and overall struggling day to day, plus extreme fatigue and unable to walk far without exhaustion. I have
I have just changed from warfarin to Xarelto, at my own request. While in warfarin and bisoprolol for the last 5 or so years, I have felt very stiff, achy, painful muscles and joints, thick headed, and overall struggling day to day, plus extreme fatigue and unable to walk far without exhaustion. I have
Tilly1957
in
AF Association
3 years ago
Diagnosed with pelvic floor dysfunction.
Hi all, Just an update. I had a proctogram examination today and it has confirmed pelvic floor dysfunction. I'm a 44 year old man and have been suffering for years with pelvic pain which was made worse after pooping. I'd suffered constipation and developed haemorrhoids from straining to defecate. It
Hi all, Just an update. I had a proctogram examination today and it has confirmed pelvic floor dysfunction. I'm a 44 year old man and have been suffering for years with pelvic pain which was made worse after pooping. I'd suffered constipation and developed haemorrhoids from straining to defecate. It
Lovetocycle76
in
Pelvic Pain Support Network
3 years ago
Infusion.
Hi everyone. I've not been on here for a long time. I'm at my worst ever at the mo and just feel so down and low. The pains are constant, I cant sleep, sleepwalking is back again. I know this whole crappy situation isn't helping anyone right now and we just have to learn to live with it but why should
Hi everyone. I've not been on here for a long time. I'm at my worst ever at the mo and just feel so down and low. The pains are constant, I cant sleep, sleepwalking is back again. I know this whole crappy situation isn't helping anyone right now and we just have to learn to live with it but why should
QUEENIE74
in
Fibromyalgia Action UK
3 years ago
Delayed Post or digital hiccup
I just received an alert on my page about help with boiler costs , warmhome discount and other help which I posted five years ago. The discounts for boilers or free ones via the government has now changed to a system called ECO, via most reputable heating companies. Warm home discount is available still
I just received an alert on my page about help with boiler costs , warmhome discount and other help which I posted five years ago. The discounts for boilers or free ones via the government has now changed to a system called ECO, via most reputable heating companies. Warm home discount is available still
katieoxo60
in
Lung Conditions Community Forum
3 years ago
On the road to recovery
Dr consultation and very nice caring paramedic visit too. The bleeding has finally stopped completely. I am anemic and have hemorrhoids. The Dr has given me cream for relief and high energy drinks. I am drained, completely exhausted but on the mend. Thank you so much to everyone that answered my plea
Dr consultation and very nice caring paramedic visit too. The bleeding has finally stopped completely. I am anemic and have hemorrhoids. The Dr has given me cream for relief and high energy drinks. I am drained, completely exhausted but on the mend. Thank you so much to everyone that answered my plea
Bronn
in
LUPUS UK
3 years ago
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