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Experiences with
Traumatic macular hole
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No MRI results/still have bowel symptoms
Hi Everyone, I had an MRI to rule out deep endo on my bowels as I have bowel symptoms similar to IBS along with my endo symptoms. The gynae consultant said they would get in touch if they saw anything that required a multi-disciplinary team and I never heard anything about my results? I've come to
Hi Everyone, I had an MRI to rule out deep endo on my bowels as I have bowel symptoms similar to IBS along with my endo symptoms. The gynae consultant said they would get in touch if they saw anything that required a multi-disciplinary team and I never heard anything about my results? I've come to
sagexia
in
Endometriosis UK
2 years ago
Any link between under active thyroid and Pulmonary Embolism ?
Hi, Does anyone know if there is a link between under active thyroid and a Pulmonary Embolism and what that link would be ? I have found some information . If anyone can’t point me in the right direction it would be much appreciated. Just a wee bit of background I had a bilateral PE in March and now
Hi, Does anyone know if there is a link between under active thyroid and a Pulmonary Embolism and what that link would be ? I have found some information . If anyone can’t point me in the right direction it would be much appreciated. Just a wee bit of background I had a bilateral PE in March and now
Verve001
in
Thyroid UK
2 years ago
For worriers about anti-coagulants
From Practice Update today I've read this "In this retrospective observational study of 18,813 patients with atrial fibrillation (AF), the incidence of dementia was significantly lower among oral anticoagulant (OAC) users (HR, 0.59) compared with nonusers. In addition, direct-acting OAC (DOAC) use was
From Practice Update today I've read this "In this retrospective observational study of 18,813 patients with atrial fibrillation (AF), the incidence of dementia was significantly lower among oral anticoagulant (OAC) users (HR, 0.59) compared with nonusers. In addition, direct-acting OAC (DOAC) use was
Physalis
in
AF Association
2 years ago
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Niacin. Your thoughts?
I didn't find any hard evidence. Part of niacin converts into NAD+. I don't think that would be good. And the proven HDL increase doesn't seem to make much difference in actual cardiac risk (perhaps HDL is a marker and artificially changing it doesn't affect the root contributors to cardiac risk?).
I didn't find any hard evidence. Part of niacin converts into NAD+. I don't think that would be good. And the proven HDL increase doesn't seem to make much difference in actual cardiac risk (perhaps HDL is a marker and artificially changing it doesn't affect the root contributors to cardiac risk?).
Hidden
in
Advanced Prostate Cancer
2 years ago
ET long term concerns
Hi, I have ET which was diagnosed after a blood clot was found on my brain and blood tests revealed I had a positive JAK 2 result in 2019, I do not know anyone else who has the condition to talk with, when I see my haematologist i don’t always get the time to speak freely about my concerns, I read that
Hi, I have ET which was diagnosed after a blood clot was found on my brain and blood tests revealed I had a positive JAK 2 result in 2019, I do not know anyone else who has the condition to talk with, when I see my haematologist i don’t always get the time to speak freely about my concerns, I read that
Bear111
in
MPN Voice
2 years ago
Home dialysis question
Has anyone had experience with both home hemodialysis and peritoneal dialysis? If so, what were the pros and cons for each.
Has anyone had experience with both home hemodialysis and peritoneal dialysis? If so, what were the pros and cons for each.
Yojimboken
in
Kidney Dialysis
2 years ago
Tapering, back-update etc.
I have two pieces is that I've continued tapering and am down to 9 mg per day with no serious issues other than floor scraping exhaustion...I've got sleeping mastered. I've been under added stress also. On May 5, I will have a nerve ablation in my back, and from the diagnostic procedures I've already
I have two pieces is that I've continued tapering and am down to 9 mg per day with no serious issues other than floor scraping exhaustion...I've got sleeping mastered. I've been under added stress also. On May 5, I will have a nerve ablation in my back, and from the diagnostic procedures I've already
Grammy80
in
PMRGCAuk
2 years ago
Statins
Hi there everyone, I’ve been living with ET for 2 years now & am currently on 500g daily dose hydroxycarbamide , 2.5g lisinopril for slightly high blood pressure & 75mg aspirin. My GP wants to put me on statins now for high cholesterol ( 8.4) & I just wondered if there are any risks associated with this
Hi there everyone, I’ve been living with ET for 2 years now & am currently on 500g daily dose hydroxycarbamide , 2.5g lisinopril for slightly high blood pressure & 75mg aspirin. My GP wants to put me on statins now for high cholesterol ( 8.4) & I just wondered if there are any risks associated with this
Sashie
in
MPN Voice
2 years ago
Flashbacks and anxiety
How do you handle flashbacks? After being in the hospital in a diabetic coma, kidneys failing, pneumonia and more I have flashbacks of being in the hospital and coming slowly out of a coma. Also, I have flashbacks from being in rehab. I feel like I am in the hospital again when I am in my kitchen
How do you handle flashbacks? After being in the hospital in a diabetic coma, kidneys failing, pneumonia and more I have flashbacks of being in the hospital and coming slowly out of a coma. Also, I have flashbacks from being in rehab. I feel like I am in the hospital again when I am in my kitchen
rubydoobee
in
ICUsteps
2 years ago
Deteriorating eyesight...........
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hidden
in
Macular Society
2 years ago
Apathy
does anyone suffer from apathy following a hypoxic brain injury and can it improve in time
does anyone suffer from apathy following a hypoxic brain injury and can it improve in time
bruno2008
in
Headway
2 years ago
Suffering alone
My C-PTSD, anxiety, and depression are consuming me whole. I've lost access to my sons (my best friends) until 2025. I would really appreciate a P2P support group near Gilroy/Morgan Hill/San Jose CA, preferably virtual. https://neurosciencenews.com/cptsd-trauma-abuse-19751/
My C-PTSD, anxiety, and depression are consuming me whole. I've lost access to my sons (my best friends) until 2025. I would really appreciate a P2P support group near Gilroy/Morgan Hill/San Jose CA, preferably virtual. https://neurosciencenews.com/cptsd-trauma-abuse-19751/
ZeroOne01
in
Anxiety and Depression Support
2 years ago
Really wet nights - 9 year old
We are struggling with how to help our 9 year old (very soon 10) - he has primary enuresis. He is getting very conscious of his wet nights. We have just been camping for 4 nights and 3/4 he was wet so much it came through everything (he wears a drynite) and through to his air bed. The drynites are
We are struggling with how to help our 9 year old (very soon 10) - he has primary enuresis. He is getting very conscious of his wet nights. We have just been camping for 4 nights and 3/4 he was wet so much it came through everything (he wears a drynite) and through to his air bed. The drynites are
Phoenix78
in
ERIC
2 years ago
Lupron and infusion (Taxotere/Docetaxel) on the same day?
Has anybody had a Lupron injection + taxotere/docetaxel infusion on the same day? Were the side effects worse or the same as receiving them separately, more than a week apart? I am scheduled for a double whammy in two weeks. Considering asking to postpone the Lupron by a week.
Has anybody had a Lupron injection + taxotere/docetaxel infusion on the same day? Were the side effects worse or the same as receiving them separately, more than a week apart? I am scheduled for a double whammy in two weeks. Considering asking to postpone the Lupron by a week.
Oldie68
in
Advanced Prostate Cancer
2 years ago
Loss of a limb
My betchets has been causing havoc over the last twelve months I’ve heart problems sick to death of ulcers infections and now three weeks ago I had to have my lower left leg amputated due to vascular pro my foot bast died I’ve never smoked my rheumatologist says it’s my betchets playing up really starting
My betchets has been causing havoc over the last twelve months I’ve heart problems sick to death of ulcers infections and now three weeks ago I had to have my lower left leg amputated due to vascular pro my foot bast died I’ve never smoked my rheumatologist says it’s my betchets playing up really starting
bobthomas1962
in
Behçet's UK
2 years ago
a "year"
well,yesterday was exactly a year since i first saw my boy after his horrible accident.some of you will recall that i was unable to see him for 17 weeks due to covid/restrictions in h.d.u ward at hospital.he had been transffered to nuero unit from hospital.i remember how terrified i was on my way there
well,yesterday was exactly a year since i first saw my boy after his horrible accident.some of you will recall that i was unable to see him for 17 weeks due to covid/restrictions in h.d.u ward at hospital.he had been transffered to nuero unit from hospital.i remember how terrified i was on my way there
Dogsabighelp
in
Headway
2 years ago
Warfarin self-doser experience
This post is for those who take warfarin, and in addition to doing their own testing they also decide on their own dose. I have been taking warfarin, and deciding my own dose, for over 28 years. I had a series of temporary contracts abroad. I became used to self-management, so when I took early retirement
This post is for those who take warfarin, and in addition to doing their own testing they also decide on their own dose. I have been taking warfarin, and deciding my own dose, for over 28 years. I had a series of temporary contracts abroad. I became used to self-management, so when I took early retirement
ILowe
in
AF Association
2 years ago
Covid question -
Diagnosed PV jak2+; take aspirin, BP meds, thyroid meds and hydroxycarbamide . I tested positive for Covid last night so far not too bad. Phoned NHS Lanarkshire this morning to try and get the anti virals. Within 2-3 hours of speaking to a doctor he arranged for the anti virals to be delivered to my
Diagnosed PV jak2+; take aspirin, BP meds, thyroid meds and hydroxycarbamide . I tested positive for Covid last night so far not too bad. Phoned NHS Lanarkshire this morning to try and get the anti virals. Within 2-3 hours of speaking to a doctor he arranged for the anti virals to be delivered to my
2261
in
MPN Voice
2 years ago
Same old same old
Well here I am again still stuck in fatigued and stiff sore body trying to just drag myself on. It been 3 mths since my synatchen test that was normal. So still just trying to get down on the steroids and don’t feel any different . Don’t know if it’s post covid , flair, steroid withdrawal ( doing 1/
Well here I am again still stuck in fatigued and stiff sore body trying to just drag myself on. It been 3 mths since my synatchen test that was normal. So still just trying to get down on the steroids and don’t feel any different . Don’t know if it’s post covid , flair, steroid withdrawal ( doing 1/
Avadip12
in
PMRGCAuk
2 years ago
Suspecting Superficial thrombosis after varicose vein surgery
Hi guys, I am APS triple positive , DVT on Right calf and Superficial thrombosis on arm 3 years ago. So after properly bridging from Warfarin to Heparin (100mg a day) to get a saphenectomy (varicose veins) and after 1 week of recovery I started feeling pain in my calf (typical from DVT or similar) and
Hi guys, I am APS triple positive , DVT on Right calf and Superficial thrombosis on arm 3 years ago. So after properly bridging from Warfarin to Heparin (100mg a day) to get a saphenectomy (varicose veins) and after 1 week of recovery I started feeling pain in my calf (typical from DVT or similar) and
Ignacio182
in
Hughes Syndrome APS Forum
2 years ago
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