Loss of a limb

[bobthomas1962]

My betchets has been causing havoc over the last twelve months I’ve heart problems sick to death of ulcers infections and now three weeks ago I had to have my lower left leg amputated due to vascular pro my foot bast died I’ve never smoked my rheumatologist says it’s my betchets playing up really starting to get a bit anno with it now 8 years of hell im coping with the loss I’ve a great Neto of family and friends especially my wife she has been amazing just wish there was a cure

[AusBehcets]

Sorry to hear bob. Glad you have great support network. Wishing you good recovery after your surgery. How is your heart being affected?

I got diagnosed with paroxysmal Atrial Fibrillation a few years ago. I also get episodes of sinus bradycardia. Had that as long as I can remember.

My brother also has AF.

I still cannot get diagnosis of Behcet’s. They thought my seroneg spondyloarthropathy to be Psoriatic as my brother has Psoriasis. However I have more asthma, eczema & atopy… no skin Psoriasis. I have skin problems of the spectrum like Behcet’s & Hidradenitis suppurativa. Get mouth ulcers, stomach ulcer.

Right now I’m just getting over Covid so in isolation until Friday. Managed to avoid it until now! Caught it from other half. He’s now out of iso & back to work tomorrow. He got the cough worse than I did.

I already have CFS & fibromyalgia, semi bedridden a lot. So baseline was never great! Illness has gone to sinuses & knee arthritis flared a bit. The virus seems to go for weak points. In the week before getting ill I got attacks of severe myalgias or neuralgia. Seemed one-sided made me think might be post-herpetic neuralgia? As I do get Shingles at times.

[bobthomas1962 in reply to AusBehcets]

Thanks for your reply your symptoms are very similar to mine it’s one horrible condition very hard to diagnose it took about 5 years for me to be officially diagnosed about six years ago I had to take early retirement I was a nurse fo36 years I hope one day they get a cure for it but so many conditions fighting for funding and I think it will be well down the list in all countries you take care and stay well